My husband was diagnosed in mid 50s. Over the last twelve years everything has fallen to me. I’m still working, just turned 65. Love my job, make a good income which is needed to pay for care.
He is volatile, sundowns, is completely negative, has pushed everyone away from us and I’m exhausted.
The constant stress and negativity is draining me and it is becoming harder and harder to cope. Everyday is a screaming match.
He refuses to cooperate on anything, including eating.
I feel like im being robbed of my life, having fun, enjoying myself and really struggle with loneliness.
Anyone have experience with building a life outside of the caregiving that helps meet your personal need for companionship, good discussion, some happiness and not still managing to care for your loved one.