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I am here to ask advice how to manage this hard situstion our family is having to face. We are family of 5 , my first born is very hurt physically and require 24/7 care I do it all myself at home, therapies, personal care, homeschool her and her 2 younger siblings. I dont need to explain how financially, physically and emotionally draining for a family with medically challenged child. Before kids, my husband looked after and supported his parents even helped his brothers when they needed him. Now both his brothers have good life earn well, kids graduated from uni and working unlike us who struggle daily to pay bills. Their mum is 85 need their financial support. After her fall over Christmas and broken hip , she stayed with us and my husband cared for her till she recovered and was ready to go home but cannot be on her own and must provide out of pocket assisted living for her. My brothers in law didn't bother sitting and talk about. They just sent my husband, their brother an email with a list of their mom's financial expenses, house rent, live in carer, medication... and suggested it is only fair the total to be split among the three of them as their duty to care for their mum for the few years left for her to live happy. Now please know that we always provided and still physical and emotional support, send meals over, we help as much as we can, but is it fair to be asked to share the cost of care when they know our financial situation and what we go through? My friends with Special need kids rely on family friends for support . We never asked for anything. But it always helped when my thoughtful mum and siblings who live in another country and only speak to them on skype because I cannot afford to travel to see them send monitory gifts, nice clothes for my kids on various occasions, even some of my close friends help out treating the kids, taking them out, preparing meals and coming over, because they know what we go through. Not my husband's family, they live close by but they never offered any help. Still they relied on me hosting family dinners paying for it all... my nephew will come with an envelope offerinng help for christmas dinners, my kids first ipad, most of their clothes, my special need daughter hot tub... all were gifts from my side of the family and few close friends, nothing from the uncles. And I was fine with it. I watch them travel overseas on holiday, eat out, party... and never considering helping us. And now they are asking us to help them care for their mum. I feel so sorry for my husband he aged so much in last week, stressed worried, and complaining about anything we buy even a 5 dollars floating ring I got my son before we go on a local boat trip in the river. I asked him what is bothering him and I found out about their email to him. He told me we need to be super careful because he has more responsabilities now. He thinks he has to do it because he is her son too, even if he cannot afford it, even if it meant possibly stopping some of our daughter therapies so we can pay our share of care as the brothers requested. Please don't think I am selfish and trying to run away from responsibility, the load on us all these years is not easy and we cannot carry more. It is very important for my kids, and for me to stay in good term with the family, I live overseas far from my own family so I don't want to lose this one. How I can make them understand that we cannot help without upsetting them. I mean what to explain if they cannot see it themselves my husband said, if all these years they cannot see what we go through, they don't get it. I am reaching out hoping you can advice me what to say how to approach them and avoid family troubles.

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First of all, I want to say that you and your husband are angels, no make that living saints! You have done more than your share, don’t you think? Your daughter is your first priority. You cannot continue to over extend yourselves like this. Please set some boundaries with your family. Please learn to say no to all of their requests.

Stick around, others will share their viewpoints. Blessings to you and your family. Sending a million hugs your way. 💗
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Vivianeb Jan 2020
Thank , i might use your answers for my husband to read so he can feel at peace and stop feeling like not a good son because he cannot pay . He is a wonderful person with big faith , very loving and caring person so this is really affecting him emotionally .
(7)
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It seems to me in a situation like this, the family should look into governmental support (if there is any) and then, if there needs to be a family contribution, it should be based on each member's ability to pay.

Your children come first
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Vivianeb Jan 2020
Thanks but we live out in Africa so no governemental support at all. All care cost out of pocket . In our situation it is even more challenging because i cannot get care for my daughter locally , i travel for therapies learn them and come back home and work with her so you can immagine our financial strain , not only we have to pay for therapies but also we have to cover travel expenses , accomodation , and back home cost of special diet , oxygen , medical equipment rental , grateful and thank god we are able to do it but we basically live for that and had to set our priorities so all the money we make we put toward taking care of our daughter and our 2 younger kids who are amazing in how they are handling our family struggle , their love for their sister . I work hard to keep it balanced so they also feel loved and happy . But i think we are doing already a lot to be asked ro do more .
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+1 Govt supports & *ability* of each family to assist $.

I'm sure MIL would not want to take funds away from her grandchildren's upbringing. Put it like that to the brothers - they may not have thought about it like that - but should!
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My work mate from Ethiopia sends a percentage of his wage back home. He was expected to send a fixed dollar amount but this was causing stress as he earnt less than the other families contributing. He worked out with his Church Pastor the fairer solution of a percentage range for each family - depending on their expenses & circumstances.

Maybe a trusted third party could be asked to help draw up a money agreement so any resentment is avoided.

Maybe one of the more well off brothers could take MIL in to live?
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If it were me, I would have husband say something to the brothers like this--

As you know, our daughter has special needs, and we have done our best to handle this without being a burden to the rest of the family. I guess in handling it this way, we have shielded all of you from knowing the full extend of the financial and emotional load we are carrying. If you would like to sit down we can show you a little of our finances and you will see that, although we love mom, there is just no way we can be part of her financial support. We will continue to help as much as we can with: (fill in the blank of what you can and are willing to do)."

Like others have said, your own family -- and your daughter -- are your first responsibility. I presume that she will not "recover" from her medical situation? That means you will be caring for her for many years -- and you need to be prepared for that. If you give to his mom's care now, you may find yourself in a terrible financial situation down the road for your daughter's care.

Sending some [[[hugs]]] your way, because it is a difficult situation, two hard things - and no good answers really.
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Vivianeb Jan 2020
Calicocat i loved your answer and almost copied it word by word . The one brother didnt say anything , the other still arguying eveeybody got his own financial burdens even if they dont talk about it . You know this makes me sad when he says we are all in the same soup. They dont count their blessings 2 grownup healthy kids , he considers maybe soending 3 weeks in holland or italy in hotels on holliday is financial burden he struggles to soet out . But no i am not taking away funds from my sick daughter so he can enjoy his summer holiday and keeo his life to a ceetain standard . I dud mention if it is really hard for him maybe one option since he lives on his own with his girlfriend /partner in a big house and they are barely home he can save on rent and bring mum to live in with him. I know this is going to piss him off , even my husband said i shouldnt have said that . Now i know what his answer will be why dont you take her yourself since you cannot contribute financially. I did it when i had 2 whe she broke her hip and was recovering , she slept in my bed and i slept on a mattress on the floor , i dont have the space to make her confoetable while we maintain good life . My kids are still young and have friends over and it can be busy and loud for an eldery but the thing is i like it busy and loud for my disabled daughter so she gets some fun and is surrounded by other kids so yes we do playdates sleepovers we are loud ,.. and in the time she was with us all this had to stop. I ecplained to kids that this is temporarely because we need to care for grandma, but it was hard for them. U know if my husband was the only son and we had no other choice she will come live with us however hard it can be , we will learn to adapt. But it is not the case , she has 2 other sons who can do it their problem they want to maintain certain life standards and thinks their mum got 3 sobs not 2 so paying third is easier than paying half .
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Love calico's response. Just tell them when all the bills are paid, there is nothing left over.
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Is there a reason why brothers did the sums by themselves and then virtually sent your family the bill? Do they resent your choice of where to live and work, and don’t see why they should subsidise it? Has your husband talked about your financial difficulties, and they don’t believe it? It really does seem that there might be a back story that is important here.

If you want to keep good relationships, it may be that the only option is to send them a detailed budget of your own finances, and ask for their advice in finding the money they are asking for. Give them your problem! And ask them what other options they have looked at (including Medicaid), and the costings for those – a live-in carer with 24/7 responsibilities is not affordable for most families.
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Vivianeb Jan 2020
One lives close to us and the mum and the other lives in canada . They both travel back and forth take yearly holidays . The brother from canada was visiting over Christmas and new year for 2 weeks and we had several famy reunions and nothing was discussed . Only a day the brother was flying back to canada the other brother sent him and my husband the famous email stating all the figures and how it should be devided between the three of them . It bugged us that they couldnt discuss it face to face , they didnt check with us wether we can afford it or not . My husband felt like he carry all the weight of the world on his shoulders but didnt say anything . When i told him i am going to reply he didnt object . I wrote something in the line of what calicocat wrote of course from my husband . The brother who sent the original email replied explaining how hard it is for eveeybody not just us but he doesnt complain. He said he is unable to pay more than his share which is one third if not his family will suffer .
Now a bit of background , he is divorsed has 2 adult boys one 31 and the other 28 both unversity graduated , independant , with job . He lives overseas with us here with a partner no children , just them couple , have a good life , fly regularly to visit family and on holiday , ...
Our life : 3 kids , my specialneed medically challenged daughter another 13 years old and 11 years old boy , they are school aged kids , they need a lot still education , clothing , food , activities add to it our medical obligations , my son needs braces and i am struggling to figure this out . The brothers did all that the raising kids , clubs , braces , clothing , now kids are independant adults , of course as parent you want maybe to continue looking after their kids spoil them with expensive holidays gifts help them buy houses ,.. but this is no more "" needs and financial burdens "" my husband is the youngest and our kids are still young and still need a lot .
In reply to his second email we said that we cannot give what we dont have . That by the time we pay all our bills nothing is left . That they are not the one who are paying ,... and i listed few of the things we have to cover monthly. I will just hate that this will drag and we will go back and forth with emails . He did say we are basically in the same soup meaning same financial struggle and it is not right at all because he has no idea what we go through raisingbour specialneed daughter and it is sad that he doesnt get it .
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Viv, your original question is how to cope with this situation without upsetting the others. You probably can’t. They don’t seem too worried about upsetting you. They also don’t seem to have considered other care options – just continuing the current expenses, which would be unaffordable for most people, not just you. You might tell brother how sorry you are to hear that he is also in financial difficulties, which you didn’t realise. Then you just say No, you can’t do this. You don’t have to prove all the details of how hard up you are – he doesn’t seem to think that he has to do that himself. You don’t have to deal with whether or not it’s fair. The details get you into an argument that you don’t want. ‘No’ is not judgemental or unfair, just make it final.
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First stop worrying about upsetting them. Just tell them, "We can't afford to help out right now. Our daughter's needs come first and our first priority." Don't argue, just state the facts.
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kdcm1011 Jan 2020
This was going to be my suggestion as well. No need at all to provide everyone your financial information, that is really no one else’s business but you & your husband. Your husband needs to find the backbone to just keep saying NO to money and here is how we can help (or are helping) in other ways.

My parents, now both passed, faced this same situation with my mom's mother who was widowed. This was before Social Security (in the U.S.), pensions, & all the financial assistance everyone seems to think has been around forever. My grandmother had absolutely no money coming in & her 7 children felt it their duty to help her. Some could help financially while others could not. Those that couldn’t help financially helped in other ways — ways that entailed time & effort. It’s actually easier to send money & be done with it than it is to help by doing.

My suggestion is to just keep doing what you can, do not give anything that would take from your own children’s needs/welfare, and realize that whatever you & hubby do will never be enough as far as his brothers are concerned. So what if they get upset? No one seems to care that your husband is upset.
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Your priority, your husbands priority is to YOUR family.
You will up set them if you do not (they may not comprehend that you can not) help out. You can not be expected to do more than you can.
Do not let them guilt you or your husband.
Be there in ways that you can.
As you say you bring meals and help out in other ways. That is all you can do at this time it will have to be enough.
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Your family is your higher priority. Maybe make a list of services you provide MIL and get prices for those if your had to pay somebody to do them: meals, companionship, travel expenses.... Let your husband show which of those tasks you will still handle as a bargaining chip with his brothers. Discuss with your husband how much your budget will allow for MIL's care. Them he should stick to what you as a couple have agreed on. He can also explain that caring for his special needs child does not allow him to be able to split the costs of MIL's care evenly.
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Zdarov Jan 2020
I was thinking the same thing - what you do are services that would cost money, which you’d never break out for them until they were discussing money but makes up part of the total picture!
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Your husband needs to reply by sending them your budget back, this will show that you can’t afford to help out financially. Then he can state while he can’t do financial support he is willing to continue providing the physical support he has been doing all along.
If the brothers can’t accept these facts shame on them.
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NeedHelpWithMom Jan 2020
Their financial situation isn’t anyone else’s business. They don’t need to share that. They can if they like but I seriously doubt it that they sway them. Selfish people will take someone’s last dollar!

There is no need of a future promise of money either. That will only set them up to keep requesting money.
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Vivianeb You have written a very powerful Post here and none of Us could ever think of You as being selfish. Of coarse Your prime commitment is to Your Husband, and to Your Children and Calicokat has really hit the nail on the head with a very powerful Post. Try to be strong and avoid stress and worry
as Your Family need You. Good Luck.
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Your husband needs to tell (or remind) his brothers that you have a special needs child, which is very expensive. It's unfair and rude of the brothers to ask you to contribute.
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My favorite quote ever - "NO is a complete sentence" from Carol Burnett. These brothers don't understand and never will. Reasoning with them will not work and you cannot make them understand. You must do what's right for your family and just say NO. A dear friend of mine who has a special needs child (now almost adult) has known she will care for him until she dies and she told her family long ago, I have my own problems so don't look for help from me. It's just my opinion but I would stand strong and say we can help in other ways but with daughters expenses we cannot and will not help financially. End of discussion.
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