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The family member is in danger of falling (uses a wheeled walker and was hospitalized once), has no sense of danger, has no sense of time (we understand this is not unusual), leaves the oven on and refuses the help of an aide; they have sent nine aides away by yelling 'get out of my house'! My family member is due for their annual appointment with their memory care specialist and insists they won't got. (This is a smattering of what's going on.)


Our family does everything for our family member: all paperwork/bills, shopping, laundry, cleaning/vacuuming, appointments, outings, visiting, etc. but due to the changes in the last couple of months, we/they need help.


Is there a point someone (doctor, etc.) will declare she needs to have 24-hr care? If so, when this happens, what do we, the family, do? If we're told she would be best served by living in a community that services folks like them, what do we do? We feel utterly blind.


Our family member needs more help. What can or do we do? (We are not in a position to use an Assisted Living community; there aren't funds available for this.)


Please... Any input is appreciated. Thank you.

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If no one is her PoA then no one is going to declare her anything -- except APS. Your strategies now: 1) step completely away from helping her: no doing paperwork/bills, shopping, laundry, cleaning/vacuuming, appointments. Call APS and report her as a vulnerable adult. She will get on their radar and will eventually be assigned a 3rd party legal guardian by the courts. Then she will be transitioned into a facility and receive the appropriate care she needs. It may take a while for this to happen but if you prop her up then it will take even longer. 2) you call 911 and have them take her to the ER (telling them she may have an undiagnosed UTI, she is confused and aggressive and is refusing care). Once in the ER you talk to the discharge planner to tell them she is an "unsafe discharge". No one takes her back home. You ask to talk to the hospital social worker about discharging her directly into a facility. Your LO won't like it but it doesn't matter, it's what she needs. She is only going to get worse. 3) "someone" in the family pursues guardianship for her and then has to wrangle her into a facility since she is shooing everyone out of her house. It will be expensive and time consuming and the guardian will need to figure out how to pay for her care. I'm so sorry for this stressful situation. It will be rocky for a while and then she will get the appropriate care she needs.
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Reply to Geaton777
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Who has POA?
the person that has POA is the one that can get the proverbial ball rolling with getting your family member placed in Memory Care
If NO ONE has POA then at this point the Court will appoint a Guardian. It could be a family member or one the court appoints. Being a Guardian is not an easy task and there is a lot of paperwork involved as well as at least yearly meetings or court appearances.
You all STOP what you are doing for this person.
Your report this person as a "Vulnerable Senior with dementia" and is living alone and is unsafe. APS will follow up and if it is determined that they are unsafe and a danger to themselves they will be placed in a safe environment.
You can begin the application process for Medicaid,.
The house they are in will and should be sold to pay for their care.
There is no way that any family member should be supplementing this person by paying for food, housing and other expenses. Anyone that is "helping" is placing their own retirement in jeopardy and the cycle comes around by other family members having to "bail out" another person. It has to stop!
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Reply to Grandma1954
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I agree with the advice to STOP doing everything for her!
Let her fail or accept another solution.
When she does go into a nursing home or memory care facility, the family does not pay for this, the care recipient does. When admitted to a hospital for an emergency, there will likely be a social worker who will meet to discuss financial assistance, such as applying for medicaid if the patient doesn't have sufficient resources.

The reason so many here have advised you to stop doing everything for your family member, is because you are giving them a false sense of independence.
They don't think they need outside caregivers, or to live in a facility specially designed to provide for their needs, because the family will continue to allow them to feel secure living at home on their own.
Unfortunately, for many stubborn elders who insist on living alone at home, it will take a serious life threatening emergency to get them out of the house.
If you are concerned about their well-being, you can install a couple cameras around the house to look in on them.

When the emergency does happen, and they are taken to the hospital, DO NOT take them back home. Ask the doctor to refer to a suitable care facility.

The emergency may be that the person dies in their home. That is not the worst thing that can happen. Many people would rather die in their own home than to live out the rest of their days in a nursing home.
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Reply to CaringWifeAZ
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Bunny567 Jun 1, 2025
Amen to that last paragraph!!
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Just my experience with Arizona APS. I feel your pain - I’m in a similar situation with my unsafe, stubborn, demented, 90-yr-old mother, but I live 1000 miles away, and my brother lives in Europe. My mother now has FIVE separate reports on file with APS, from five separate episodes/reporters (including her physician, a geriatric neurologist). They send an affable young man to visit her, she showtimes and refuses all services. She is physically mobile and keeps her small condo neat and clean. They shrug and say she is not endangering herself or others, and close the case. Till next time she pounds on the neighbor’s door, demanding they call the police because another neighbor may be coming to shoot her. So don’t rely on APS to do doodly. You may need to put extra pressure on her neurologist and/or social workers associated with his/her medical facility. Calling 911 for a trip to the ER May not work either (been there, done that) - if she says she doesn’t want to go, they can’t force her. So yeah, you might have to just wait for a catastrophe of truly dangerous proportions and then pick up the pieces. I am so sorry. It’s a nightmare.
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Reply to RunningOnFumes
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Bulldog54321 Jun 1, 2025
Unfortunately this is true for many— sit back and wait for the disaster.
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My MIL (86 no dx and I’m not sure she would be dx) says she is lonely and doesn’t have any help.

I replied that we are doing what she wanted: she doesn’t want my housekeepers to clean her house. She doesn’t want a companion. She doesn’t want elder meals. She doesn’t want me to grocery shop for her. She doesn’t want home health.

She had nothing to say as a reply.

Another family here waiting for the “BIG EVENT”
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KNance72 Jun 1, 2025
The Big Event does Happen .
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Stop doing for this family member. If she is lucid sometimes, tell her that she has exhausted nine aides who were assigned to help her. Aides will bathe, cook, grocery shop, laundry, light housework, and in some cases will drive and accompany the patient to doctor's appointments. The family would do the bill paying and paperwork since aides do not handle any financials of their clients. If you decide to go the aide route again, don't try to use shorter hours and pack all of the above in one visit. Stretch out the duties throughout the week. Opt for one long day and maybe two short days just to keep things going.

It sounds like this has gone beyond homecare, and the patient is ready for placement. Assign a guardian. I would let APS handle this. Call and report a vulnerable adult who refuses help.

Don't quit your jobs or move in with your loved one or move them in with you. It is all downhill for you if you do this. You have to make money for your own social security, pensions and such. Don't spend your own money on things she needs.
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Reply to Scampie1
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Stop propping your LO up and let them drive the bus into a wall.
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Reply to Bulldog54321
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You are making the LO think that they are independent when they are not, stop doing everything for them you and others are their crutch.

Back off, let the chips fall where they may.

If need be after you have stopped enabling, call APS. If this person has no money then Medicaid can step in with home help.

Does anyone have the DPOA? If not, this needs to be explored.
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Reply to MeDolly
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For my mom, it took her breaking her hip. They saw at rehab and would not sign off for her to live alone.
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Reply to darts1975
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JJDFLT: Cease enabling said family member.
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