My husband (diagnosed with MCI last year) is refusing additional testing to see if it is actually dementia. He is afraid they will tell him he cannot drive anymore. His doctor told him that it would just put a name on his condition, but it doesn't matter to him. I have asked him to do it for me, so that I know what I am dealing with. He refuses. His best friend talked to him today, and my husband said the same thing he has been saying about driving. He doesn't trust the conclusion the doctor might reach.
My husband is certainly able to make his own decisions about his medical care (right now, anyway). So, that makes it hard.
He says his frustration comes in when he puts something down and 15 minutes later he doesn't remember where he put it. The truth is, he doesn't know what he doesn't remember, which is what I have told him. Most times he "seems" fine. Then he will forget something that was told to him a few minutes before, a day before, two weeks before, or even a month before. (Two weeks after a doctor appointment recently, he didn't remember that the doctor prescribed BP meds....)
Along with the BP meds, he is on Aricept. His "decline" (if that is what it is) has been slow. I just wish he would get additional testing so that I can prepare for what might be in our future. Not knowing where this is going is weighs heavily on me