I am the 20 year old granddaughter of a physically disabled 80 year old who is nearly paralyzed and confined to a wheelchair. I sadly lost my other grandmother last March so I’m now forced to rely on her. It’s very horrible to see her suffer like this (she was diagnosed with severe Myositis in 2012 and I think it’s getting worse for her every year) and she can no longer do the things she used to do (like go to Disney or the beach or even stay in a local casino hotel because she likes gambling). She has someone from an in home care company come to help her get out of bed and get dressed every morning (I don’t live with my grandparents but I stay at their house almost every afternoon) and she seems to appreciate that but I think it’s getting very hard for her and it’s heartbreaking to see her like peeing in a jar (her legs won’t open far enough to sit on the toilet) and feeling guilty because she’s living with this condition. How can I cope??

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Im so sorry you are in this sad situation. Grandma’s are such special ladies. Mine’s been gone for 43 years and I still miss her so much.

I truly believe that Grandma needs to level up in care. It sounds like she’s in pain, very disabled and needs much help toileting. Three shifts of caregivers around the clock could help her a lot. Where are your parents in all this? What do they say?
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