Need opinions from you wonderfully experienced people. I have written before about my 90 year old mother, on home hospice now 4 weeks. The aide and nurse both thought her left hip was dislocated since, practically overnight it became extreme painful and is at a strange angle. She called the Dr and of course, all he recommended was heat and morphine. But since moving her even a tiny bit, and changing her diaper, was so painful, we decided to take her off hospice for a day to get it checked out. The er Dr looked at me like I was crazy for bringing her. The xray showed no problem. They said, which I had suggested to nurse, it is probably muscle contracture, normal with end stage dementia. And since Mom hadn't had a bm for a week, the hospice nurse thought she might be impacted. Again, the er Dr said, which I had suggested, that she isn't going because she isn't eating!
So, anyway, got her home and back on hospice. Yesterday, I was changing her diaper, and saw the start of a bed sore. I put antibiotic cream and a dressing on it. Then I moved her onto her side, and propped pillows behind her.
The aide and nurse both came today, and I had informed both by phone about the bed sore. So, when I got home....how is she laying? Flat on her back! Not happy, and I called nurse and asked why. She said she must have slid down off the pillows. I told her the pillows weren't even behind her, they were stacked neatly at the end of her bed! She said, well, she can be on her back sometimes.
So, opinions please. This is all pretty new to me. I have taken care of her on and off for ten years but this is serious. And they keep telling me to keep giving her the morphine because she is in so much pain. But she is sleeping fine, breathing normally, and only grimaces when moving that leg. I give her a little an hour or so before I have to move her.
Someone needs to write a book on caretaking!