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Lea: That's why I said the Meclizine could be and IS lack luster. Basically Dramamine, I did not find it helpful to alleviate my Presyncope.
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Yes llama, lackluster in spite of the docs insisting it would fix something I didn't suffer from to begin with! Doctors, sheesh. Although I'd be open to trying just about anything at this point if the docs thought it'd help. I even tried Dramamine and Benadryl to no avail.

Graygrammie: The vestibular system helps provide the brain with information about your movement, positioning, and where you are in space. My brain is misfiring these signals, I'm told. The symptoms of a vestibular balance disorder include:

Dizziness.
Feeling off-balance.
Feeling as if you are floating or as if the world is spinning. (Drunk for me)
Blurred vision (and floaters, still)
Disorientation.
Falling or stumbling.
Hearing loss, tinnitus

I also have swollen eyes and eye issues bc all those systems are interconnected. Blurry vision prevents me using my desktop or seeing in the mirror (Which is not all bad at this point). My head feels disconnected from my neck....like a bobble head which requires me to lay my head down or rest it against something most of the day. Can't shower w/o a walker, go up and down stairs, or do much of anything else in general. Imagine trying to do anything after drinking a gallon of moonshine, which is how I feel 24/7. Riding in the car is an ordeal requiring me to lean the seat back to rest my head, too. Bumps and ruts in the road cause nausea.

Plus I'm hyper sensitive to noises of any kind, light, odors and stimuli in general. The startle reflex is ramped up so I wear earplugs in the house, but it comes and goes. The ringing in my ears is a constant high pitched drone. The combination of symptoms makes for a very disabling situation which social security classifies as a disability that they pay SSDI for.

Never heard of a Rife machine but I'm sure it'll be recommended soon.

Cxmoody, isn't parasthesia similar to neuropathy? No fun there, that's for sure. My neuropathy in hands and feet is pretty mild (also from immunotherapy) fortunately, and also seems to come and go. Sometimes it feels like there's a buzzer on my toes....other times pins and needles, other times nothing.
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Lea, I hate people I don't know touching me too. In fact I once thought I'd like to be an esthetician but didn't cause the thought of being so close to others and all that touching. UGH!

Lea, I did an update about my ongoing foot and ankle problems on General Topics thread if you are interested. I'd rather not type it all out again. It just depresses me.

Maybe, my foot problem is all in my mind? I'm talking to the orthopedic doc again on Friday. Last time I saw her, her last words to me were "Go get em!" My DH thought it was funny. It just riled me up. Maybe she'll tell me on Friday to talk to a counselor. She better not or I might lose it.
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Gershun......ugh....I read your post on discussions about your foot. I'm sorry you are facing such a situation and I'd seriously explore surgery if it were me. I am stuck with a walker (can't even use a rollator it's too unsteady) and I hate it. My daughter in laws brother just had a big foot surgery which was VERY successful. Look at your options before you make a decision. Exercise can't fix everything and it's NOT in your head......none of us are making these issues up. I am sending you a hug and a prayer for wisdom in a tough situation. It's hard to keep a happy outlook in the face of such things, I know. It's ok to cry and feel angry too. 😘 And please feel free to spit in your orthos eye if she dares suggest counseling on Friday. Tell her its from me 😑

PS: go check your PMs
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Lea, my ortho is a no nonsense one and has the bedside manner of a piranha. So if spit enters her eye I'll definitely say it's from you. LOL
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Thinking of you, Lea. 💗
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Resting on the promises that He cares for you!
And we do too.
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Hi all. I consider today a success since I woke up and was able to walk to my recliner w/o the frame walker. Score 😁

Thurs morning is the IVIG infusion at Kaiser which lasts 4 hours, not including pharmacy prep time, IV prep time, lab time, etc,,,,,so all day basically. I hope this one kicks in and brings some relief.

My grandson came over for 2 hours yesterday while dad took mom to a medical procedure. She insisted on saying bye bye to him (2 years old) repeatedly so he refused to leave the foyer of our house for most of the time! We have a little window next to the front door he wanted to look out of, while playing with my Willow Tree angels, and only managed to break 2 of them in the process. Grandpa sux as a babysitter, did I mention that? 😂 But he did manage to lure him into the living room with a tub of watermelon and no napkins! Oh and M&Ms that DO melt in your hand after all. Who knew? All the moms and grandma's on earth, that's who! Ha. As soon as mom and dad came back, the little guy said ALL DONE BYE BYE UP and laughed. Lol. He was ready to go to Tokoyo Joe's and have a Bento Box with edamame. His tastes are apparently refined away from chicken nuggets and chocolate milk to soybeans and San Pellegrino sparkling water 🙄 Anyway, times have changed since we were raising kids, that's for sure, but the cuteness overload hasn't changed one bit! I told them to drop g/s off anytime they need a lunch date all to themselves.
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Yay, Lea. Awesome!
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Glad your afternoon was filled with the sunshine only a baby can shine!!!!
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I love your grandson stories, LL!

My four year old sweetheart and I collided on Sunday, when he ran across the playground, yelling my name, and running into my legs. And my feet. And my right big toe didn't make it out of the fray unscathed.

Off to Urgent Care I went, yesterday. Fractured!

I shall be wearing a Surgical Shoe for the next four weeks.

Worth it?

Oh, yes!

He will be sixteen some day, and NOT running across the playground towards me, yelling, "DeeDee! DeeDee!"

Music to my ears!
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cx,

Me too. I love hearing about everyone’s grandchildren. I don’t have grandchildren but everyone who has them says how special of a relationship it is. My friends say that it’s very different from raising our own children. It’s fun to spend time with them without the responsibilities of being the parent!
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Oh cx, I am sorry but understand that it was worth it.

Lea - a big BIG high five from my dd about your NED results. She was so excited for you. She knows better than I what that means. (((((hugs)))))

"It's not my fault. when I was a baby, I was dropped in a pile of pink glitter, and I've been really sparkly ever since."

Works for me!! Now where are my earrings?
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CX Yes enjoy the grandkids while you can. I took my grandson at every opportunity I could. His other grandmother is always busy. I knew the day would come where I would slide down the ladder of importance LOL That day has come, he is now 15, takes drum lessons, performs with his music school, and is in two bands.
I go to most of his gigs that I can…

Feel better
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Thread Buddies, you guys are just such good encouragement!


LL, I'm praying for you right now. May God delight you in some way, today!
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Cxmoody.....omg I'm sorry about your toe. Just one more issue you don't need to deal with, huh? I hope you heal quickly and easily from this injury.

Geaton, I too am grateful for the sweet and sustaining friendships that have been cultivated on this thread! Amen. 😁 I look forward to coming here often to read the uplifting posts. They buoy my spirits.

Chuck is at the doctors office right now and I have a pit in my stomach. He's been having a lot of pain where his shoulder meets the first rib. We're hoping it's from too much photography and lugging around a heavy camera (but wrong arm for that). But history shows every time he's had odd pain, it's something awful. Last time he had a shoulder pain it was liver cancer. I am seriously praying to God for a break in these health crises we've been going thru non stop since 2019.

I'll update later once he's back and there's GOOD news to share. Then I have to go give blood for my IVIG infusion tomorrow.....our new hobby: doctors office appointments 🙄
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Ok, putting Mr. Chuck on the prayer list! ((((Hugs)))) to you both, Lea.
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Me too! Prayers for good news and good health for both of you.

“Finally, brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things.” Philippians 4:8 

One of my favourite bible verses. Think on good things. Praising God for His mercy!

"For the LORD is good; His mercy endures forever, and His faithfulness to all generations." Psalm 100:5
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Update: Chuck is ok.....arthritis in neck and shoulders is all that's going on, with old fractured ribs that have healed (xrays confirm). The heavy camera is causing strain and pain, nothing worse like tumors or PEs. Phew. 😁
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Oh, Praise God. Never thought I would say that for arthritis lol.
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Lea,

Happy to hear that Chuck is doing okay with the exception of arthritis.

Does everyone eventually end up having arthritis? Just curious.

My aunt had rheumatoid arthritis. I remember her hands being horribly affected by it. She lived in pain.
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Nhwm: Anyone can get osteoarthritis, but it is more common as people age. Women are more likely than men to have osteoarthritis, especially after age 50. Other factors that may make it more likely to develop osteoarthritis include: Overweight or obesity.

RA is an autoimmune disorder and entirely different than osteoarthritis
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Lea, as we age, we get more and more grateful for these "benign" dxs!
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Lea,

That’s interesting.

My aunt was in her 30’s with RA. When I was a child, I remember wondering why her fingers were permanently bent.

She stayed as active as she could. She was like my mom and grandma. She was an incredible cook and seamstress.

She struggled with ironing and my uncle told her to hire someone to do the ironing.

I remember my aunt telling my mom that it was worth paying 50 cents for each article of clothing to be ironed! Oh my, oh prices have gone up, huh?
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Whew! So relieved to hear the good news about Chuck!

Praise God!
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NHWM,
Do some elderly people never develop arthritis?
While there are about 27 million Americans with osteoarthritis, it is possible for a person to live their entire life without developing the condition. The number includes the elderly. Jul 7, 2022
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Send,

I suppose people who exercise and eat healthy the majority of the time have a better chance of not getting it. Or am I wrong about this?
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Nhwm.....my good friend is healthy, eats right and exercises daily, maintains a normal body weight, and has osteoporosis AND arthritis. Luck of the draw, mostly. Just like my mother who ate right, exercised, no drinking/smoking/drugs etc and still developed dementia. Genetics play a big part in all these things too. If you're in your 60s w no arthritis to date, I'd not worry on it too much......you probably never will.
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NHWM,
I think you are right. Well, you are not wrong, because the doctors will tell you to eat healthy, maintain your weight, and exercise.

In so far as you can delay the onset of a terribly debilitating disease that you are going to get anyway. Not sure. I really do not know.
So, maybe a better chance of health over the long term.

I was just adding to the discussion.

Yes, Lealonnie. Adding that, in your 60's and don't have it yet would be a good indicator you may not get it. I agree.
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Lea and Send,

I guess it is luck of the draw. I am 67 and don’t have arthritis.
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