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Her internal time clock is off and needs to be reset. I am sure some one will chime in and help you with this.
When my dad was in the hospital his time clock got reversed, so he slept all day and couldn't figure out why the night person staying with him was aggravated that he kept calling out for stuff all night. I wasn't there every night or it would have killed me.
Do you get any time off and are you generously paid for being a 24/7 on call caregiver? Your employer needs to think about bringing in an overnight person or you will crash and burn, as you are already feeling the insanity of 24/7.
You have to take care of you as well.
So they leave in the morning and don't come home until afternoon and they expect you to be there so he can get in? That is being completely unreasonable and asking far to much.
Are they low income? Perhaps the medical challenges that they have they can get some aid, maybe he can get an electric wheel chair. There has to be options besides holding your kind hearted neighbor hostage. Look at it from the angle that you ended up in the hospital, what would they do? This might help you say I can't do this 24/7/365 for years on end. They are young and need to take responsibility for themselves and get some realistic expectations of what they can ask of someone.
Also, why would home aids only come to help people who only home bound? Is this through some charity or government program? I would think that home care aids come to help seniors who have all kind of needs.
If someone has to be pushed up and down a ramp 7 days a week because they are incapable of navigating it on their own then that is the very definition of home bound, isn't it? It's the fact you can't get out without assistance, not that you can't get out at all (which would be almost no one IMO). I too am wondering who "they" are that is giving you this information? And who hired you and signs your paycheck?
Let me know how it is working out.
I am happy for you that you were able to communicate and come up with a solution. Good to know that is an option for future, if needed.
The only way that statement can be true is if you are doing unpaid hours. Does this couple have a lead social worker or anyone you can talk to? How did you come to be their caregiver?
In home health is not about age but need. Being a disabled vet doesn't disqualify you for low income assistance, unless you are already getting federal assistance through the VA. If that is the case, then he could get some in home health, VA offers this, especially if he was wounded in combat.
I know we probably seem harsh and the reason people are freaking out is most everyone here has had to figure out care for a loved one and that includes financial aid. I think we are seeing some red flags and we are bringing them to your attention. Because you are being taken advantage of, 24/7 on call proof.
Anyone that doesn't feel that way is obviously excluded, so please do not think I am speaking for you.
Get the facts and make decisions that are best for you. You can not continue 24/7 without having caregiver burnout, it is just to much for anyone.
How is the sleep cycle helping?