How to rediscover yourself and keep going?

I am 79 this year. I have made it clear to my children that they are NOT to consider caring for my health in any expected decline. My life work has been lucky enough, given my natural frugality, to provide enough to pay for my care in facilities when it is needed. That has addressed for me, my children. I even have the agreement/cooperation of one of my children to see me through my own voluntary withdrawal from food and drink when I want to do it/if I want to do it.
It has always been clear to me that I am not someone without limitations. One of those limitations I knew well and surely. I was a nurse. I knew what it took and did it three days a week, 12 hour shifts, for a very good salary, and was dedicated and loved my career. But it was always clear to me what it took, and that I could not do it 24/7 for family. Ever. So I did not take on the care for others.
Ages 45 to 75 were the most free of my life. It was a time when my children were grown. When I was well enough to travel. We built a small second "cabin" on land that was in the middle of nature. We went to Europe. I took classes and formed hobbies I loved. After retirement at 62 I still had 15 years when I could hike and chop wood.
I would say that you are correct. When you are a caregiver it is consuming and consumes your life entirely. It was accepted in other cultures and in our own earlier generations that this is the way it is. But not it is more or less a choice.
I now don't wish to travel. Am content with the garden and with the books and with hobbies, activities I enjoy.
It might be of interest to you that my grandson is this year graduating college. He will have a career. And now questions EVERYTHING as in "Is this it? You are born, go to school, go to work, have a family, die? Is this all there is".
So your thoughts aren't unusual even in the young.
I would say that you are now coming to an age where you have decisions to make about what you WANT to do with your remaining years, what you CAN do.
I have twice in my life been to a counselor. Once a very heartbreaking divorce. Once a cancer (35 years ago) diagnosis that made life itself an uncertainty. It truly helped. It helped comb out issues, choices. I recommend it.
It is difficult to stay in the present day. We are planning creatures. Some of us are more anxious than others (count me IN on that).
I so agree this is a great Forum. And you are a trusted participant here often.
I sure do wish you good luck. Don't try to do the "I should" or "you should" thing. Allow yourself to think whatever you want on any given day. I learned THAT from cancer, to ignore those who said "You have to think positive". Guess what! You can think as negative as you want and still be alive 35 years later. Hee hee.

I can relate to your situation. It is one of the most misunderstood activities in life to be a caregiver. Kudos to you. The one thing I did early in my 12 year long caregiving for my massively handicapped wife, was to pray to be given a servant’s heart. God provided that in spades. Each day I awoke and felt as though there was a wind puffing up my sails, so to speak, and I was eager to get to the nursing home. I went to assist my wife with breakfast, have a prayer time with her and come back to assist her
with lunch, watch Judge Judy and the soap operas. Then she would nap. For supper time, I paid ladies to come from four to six pm and assist her with dinner and have one way girl talk. (She could not speak despite being very alert). She was also paralyzed on one side.
(the staff could not provide the level of care that I and the paid helpers at supper time did.)

I often felt stressed but made a decision early in her years of confinement to always exhibit a positive view of everything. It worked well for us.
I realize I have not addressed the details of your post. I hope what I have said gives you a glimpse of how handled our situation.
my wife died in 2017, after 61 years of marriage.
Now my health is very precarious. I doctor it as I can and put on a happy face.

grace + peace,

old Bob

I have been a busy person for so many years--wife, mom, sister, daughter, caregiver, grandma (my favorite job EVER) friend and neighbor.

And a cancer survivor. Why did I think that the big "C" somehow wouldn't be a factor in my life? But I really never did.

I went from having some fatigue and a cluster of swollen lymph nodes one day into full fledged emergency chemo after a LOT of very painful tests....it was all a blur. Dh couldn't handle the stress, so he traveled as much as he possibly could and asked me to please cover my bald head, it was 'bothering' him. I felt so very, very alone. And so angry at him, as I have nursed him through 5 life threatening things, not the least of which was a liver transplant!! He was not 'there' for me and I wondered if I even wanted to stay with him.

Turning my heart to my faith and trusting God, He sent people into my life who checked on me, brought dinners and sent cards and flowers. Just as I was down in the dumps so bad I thought I would give up, someone would step in and raise me up.

I cleared the cancer and now am in remission. I opted to only do 4 of 12 FU chemos (with the drs approval) and have been very slowly recovering.

I'm working on forgiving my DH for what he could not be---and planning the last portion of my life. I will not live to 90, so I hope to get what I can out of the next 20 years.

My primary focus is on service. There are always so many people who need help. I find when I am giving, I am not so enmeshed in my own 'anxiety'. Everyday I try to include lifting up somebody else.

So many things I thought I'd have forever to do are not going to happen, and I'm at peace with that.

I turn 65 in a few weeks and it's so weird. I never thought I'd get that old :)

I have 5 amazing kids, 5 amazing in laws and 14 beautiful grands I hope to see grow up.

Some days are bad, face it, and accept it. I don't cry anymore, but I can sure get bluesy blue. It's not forever and it always passes.

As soon as COVID is manageable, we will do a little traveling and begin to look for our retirement home.

I think my faith has shored me up so much. And not listening to the news very much--seriously--it doesn't help and makes me angry and sad.

Each one of us is an important part of the puzzle of the world. Knowing that each day of life is a gift helps.

Accepting the good days and being grateful for them and trying to let the bad ones slip away without leaving a footprint on our hearts--takes some doing, but remembering that we are blessed so much, even when we're struggling.

I SO respect and admire Old Bob and the sweet comments he makes about his dear wife. This forum has also been a godsend.

Finding your niche, once again in life, is a challenge.

Hi Sunnydayze,
Your post brings back many many memories of 3 am bouts of crying myself back to sleep as my hubby deteriorated with Frontotemporal Dementia. After 6 long years he passed away Dec 8, 2020 and I am now trying to figure how what is next for myself. As I read your post I remembered an exercise I did in my darkest days that really helped me. I call it an exercise because at times it was difficult to make myself do it. I began to write down the things I was thankful for (also wrote the dates). The dates come in handy when you go back later and read them. You could use a journal. I wrote mine on the blank pages in the back of my Bible. At first most days I had to really focus to come up with what I was most grateful for that day. My counselor explained it like this, “when you are focusing on being thankful, the things that are overwhelming you have to take a backseat”. Apparently our brains cannot do thankful and worry at the same time!! It’s one or the other. And eventually you get better and better at staying thankful in the moment. I am a believer in Christ and this really helped me in my walk with Him as well. Perhaps it is an exercise that could help you as well. I had to quit 4 jobs to care for my husband, so I know the way you feel. The rest of the world just goes on like before and we have to completely rebuild our lives. But we are survivors and we will rise up. Stay strong an Blessings to you on your journey!!💪

PS perhaps this exercise could be a way to use the beautiful stationary mentioned in GardenArtist’s post.

How do you keep going?  You make plans, to be implemented in stages over time, and you create goals integrated into those plans.   

Formulate them in such a way that you have lists of activities and goals, and each day engage in an activity for the goals, however small.   That gives you daily progress, and something to look forward to.

One way to approach this is to ask yourself what your goals would be outside of caregiving, for you and your children.    Then identify the steps and activities and figure out ways to contribute to them along the caregiving journey.

Sunnydayze, you're quite welcome.    If it's any consolation, you're not alone in this process.    It's helped me through some tough times.   What I'm also starting now is using decorated stationery to print out my goals, steps, accomplishments, etc.    Just looking at lovely stationery (apparently becoming obsolete as I think less  and less people are writing letters) makes me feel better.

I also listen a lot to the classical music channels through cable, jot down the ones I want to learn, and search through my piles of music to find the scores, then start practicing.   I won't even address how badly my playing is, not having practiced for years!)

(Chocolate helps too, but it's not without unpleasant recourse!)

It is the first day of Spring. Embrace the new beginning, get out and do something for you!. Mind over matter. We all worry about the burdens we have heaped upon as as nurturers ... Allow a "worry" time and then get on with the rest of your day and life. It will be hard at first. I'm trying to avoid being like my grandparents and now my folks... I'm always purging stuff. I'm consolidating accounts and purging old files.... I own a small first floor living cottage to downsize into. It is currently rented.

Spring has me planning for my flowers. My husband can sit on the deck nearby and watch me. As long as he sees me he will not try to get up by himself, which he can’t. Planning in my head for planting in May

You are and have been going through horribly tough and what you are feeling is completely normal. First of all, if there is some way you can get a caretaker to tend to the situation so you can sit back completely to get a break and take care of yourself. If that is not possible, you may need to face the fact that you are being terribly harmed by just too much on your plate and consider placement in a facility. Finally, perhaps there is a good counselor or someone you can talk to who can advise you how to cope and get through these times. I feel that might help - you just have to take step one and get away and then find the right person to confide in. You cannot continue like this and right now YOU are the most important one to look after.

So I think I read that you are a teacher? In my life I've always found that whenever I feel down it lifts me up to help others. I know how to help my students, seems in my blood to know, and also they are striving to do similar things I've done all my life. It is much more difficult to learn how to help my family, what is helping, and what is enabling. With my mom, though, I did learn over the years what had to be done, what really helps her, and to do those things first. All the paper work and practical stuff sometimes has to take a back seat to the emotional help. Same for myself. Is going into my studio for the day the best thing for me or cleaning the house. House can usually wait. I'll suffer if I don't do my soul work. When we have so very much on our shoulders as caregivers, we absolutely have to let some stuff go and do what really matters.