My dad lived with us for about year after his last stroke. He perceives no cognitive deficits and will not acknowledge any physical limitations. He kept taking off in Uber’s to return to his house intent on driving a car, even though his license had been revoked. I finally had to file for guardianship, as a last resort.
He has been living in his home with 24/7 care for going on two years, but is now refusing to let the caregivers manage his medications. He doesn’t believe he has Parkinson’s or dementia. As of late, he has been skipping doses and we are finding medicine stashed in piles around the house.
He craves sugar to the point where he wants to eat a 28oz container of pudding and several high sugary yogurts everyday for breakfast. I found out he has been having the caregiver bring him 3 ice cream sandwiches as a treat several times a week. He eats them all at once. He has gained almost 30lbs in 6 mo. His AC1 is climbing at an alarming rate.
I was worried about Covid before, but now am realizing the caregivers are really more babysitting than managing him. I absolutely do not fault them. I gave in to his crazy requests too when he lived with us just to avoid the rage.
In his current situation he just lays in bed watching tv most days. He isn’t going out even for a walk on the beach. He has no interest in interacting with any visitors, family or friends. The only pleasure he seems to have is food and now that his lab work has come back that is going to have to radically change.
I wanted my dad to be in the least restrictive environment possible, but it no longer makes sense to leave him in his home when he is not taking his medication properly, his diet is completely out of control, and he refusing to do anything that would make his life more pleasurable.
He is completely unreachable by anyone who tries to talk to him about making changes. That includes doctors, family members, friends and caregivers. He is only 73 years old, and surprisingly strong. He is totally paranoid. He will never willingly go to a memory care unit. I have a care manager. She says that in her 35 year career, she has had only one patient as difficult as my dad. How do I make the move when a therapeutic lie will not work?