First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
My dh installed heaters as part of his previous job. The company always sent two guys, each physically able to handle their share of the weight, and more, of navigating a wet cylindrical object out of a tight spot and replacing it with same. This is probably one of the more physically demanding jobs in the field for both parties.
Rather than Chuck being physically hands on in this process, maybe his son and his friend?
Hoping you have a good result from your next infusion.
How true! Your FIL was correct. Most people who get married and have children end up spending a lot of money.
I am fascinated by people who are successful in saving a lot of money.
Years ago I read about a librarian in New Hampshire. He was able to stash away $4 million dollars. He left all of his fortune to his alma mater. He was single, no children and lived very simply.
Gaaaaah on the water heater! Home ownership is sure not for sissies! A year ago, we had to replace a complete A/C system, the dishwasher, and the washing machine, all around the same time! And, the house is only 7 years old! 😜
Girl, I’m praying that the next infusion you have is able to work wonders for ya! 🙌
Yes, NHWM, it is always something. When we were about to get married my FIL (an insurance salesman) said, "You never get done spending money" which astonished my 23-yr old self (and let me just say that money management was never my strong suit). I thought he was just being a cynical miser. How right he was!
It is always something! Hope you find the best solution for your hot water heater problem.
I also hope that Chuck and his daughter can find peace, especially since he has a new grandchild on the way.
DH is being wise not to have high expectations from his daughter, considering her track record. Still, it would be nice if they could live in some sort of harmony.
Meanwhile, Chucks estranged DD wants to meet w him for lunch tomorrow to sort out their issues ( her issues, in reality) before he arrives at the hospital for her c section next week on the 25th. He wants to meet his new granddaughter regardless. She hasn't contacted me once or asked about me once since my cancer diagnosis which is the utmost disrespect for both her dad and me. She hasn't asked after HIM either after his liver transplant, only caused grief for all of us. It's doubtful she'll apologize so Chuck is not hopeful for a fruitful meeting tomorrow. I hope they can work it out. For me, I want nothing to do with her again but will not stand in Chucks way if he wants to go visit.
I'm struggling w dizziness and a bad headache today. The heat is oppressive, too. Day 3 of a taper is always bad, and today is no exception. No more brain buzzes since throwing the grapefruit away.....😁
My Mom's a retired RN... she taught me so much useful stuff. I totally agree that everyone should have a nurse in the fam!
So happy that your daughter passed along this information to you.
I have started asking my pharmacist about interactions with meds when I have a script filled. I have found that they are more knowledgeable than doctors!
Aside from the mind numbing headache, I feel pretty good today! The first time ever I feel like I WILL recover from this toxic reaction I've had. On the 27th I'm having another IVIG and I'm curious to see if it'll help me feel better this time since I'll be OFF the damn steroids which I've always contended MADE me dizzy. We'll see.
Hope you all have a great Sunday!
So good to hear!
You are on your way to more healing.
Turning your head! Outside!!
Thank you, Lord, for small mercies!!
Sending all my love to you. Hoping you will start to feel like yourself again very soon.
Now, on to getting rid of that darn dizziness!
Maybe you and your son could wear matching T-shirts and hats, which say, “Not Answering Any Questions. Have a nice day!”, while you take that wheelchair ride around the neighborhood. 👩🦽 😀
Hope you have a lovely, quiet evening, alone! 😂
Come back Golden!
Lea, hang in there!
Geaton, Ive taken dozens of car rides to doctor appts and can tell you they don't agree with me, actually. My head feels detached from my neck, like a bobble head feeling. So bumpy car rides exacerbate the dizziness even if my head is resting against the headrest. My son had a lovely idea but the reality isn't so lovely. In fact, it's a huge ordeal to get me out of the house and into the car in the first place, with walkers etc. We have to leave an extra 15 min to get me in the car before we go to an appointment. Once we get there, it's a wheelchair from the door onwards.
ITRR, thanks for the upbeat words.
Golden, we miss you check in as you can. Moves and renovations are miserable 😑