First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
And, Barb, for your dear friend. May God give her His peace through this challenge.
Congrats on your new granddaughter! I’m glad that there weren’t any incidents when Chuck went to visit her.
So happy that you are able to walk laps to gain some strength. Am keeping you in my thoughts and prayers for when you go back to see Dr. C. on Thursday. I know that you must be so tired of having to go to the doctor for follow up appointments.
Our oldest daughter had jaundice as an infant and had to stay in the hospital for awhile. Will pray that your granddaughter will get well soon.
It’s so frightening to find out that something isn’t normal on our mammogram. I had a biopsy done many years ago for a solid mass. Fortunately, it was benign.
You are so kind to share your "prayer thread" with "my" Leah. I very much appreciate it.
Barb, praying for your young friend regarding her double mastectomy. So young... ugh.
My estranged stepdaughter gave birth to our 10th grandchild, a daughter Scarlett Summer, on Thurs morning. She was 7 lbs 15ozs. She has jaundice which is worsening and some water in her lungs so she's in the NICU under blue lights and oxygen. Mom will likely be released tomorrow (c section) Chuck did go to the hospital to meet his granddaughter and there were no issues.
Barb, prayers sent for your friend Leahs surgery next month. My cousin had the exact same surgery in her early 30s. She's 68 now and healthy.
Wish we could get avatars and edit buttons back consistently. . .
Barb, praying your young friend has a good outcome. It's awful to be dealt a blow like this at the age of 28.
To keep the flames of hope alive.
That love & hope can support our darkest hours.
I will ask for a prayer for my 28 year old friend to also named Lea(h) who is having a double mastectomy on Aug 16.
(((((Hugs)))))
Hang in there girl. You've got this!
Praying now for restful sleep, tonight! And, for that lump to be NOTHING.
Big hugs to you from Fl.!
I also hope what's on your elbow turns out to be nothing. Sending lots of love XO
(((hugs)))
Happy Wave Goodbye to Steroids Day!
🎉🎉🥳🥳🎈🎈🪩🪩🎈🎈🥳🥳🎉🎉
Looking forward to hearing how things improve after the infusion!
Keep going, girl!
We’re cheering LOUDLY for ya!!
Sent you a private message. Please read when you can. I would love your feedback on something.
Thanks!
I hope you are doing well today. Sending many hugs your way!
Thanks so much for sharing your story. DNA is truly fascinating, isn’t it? It certainly answers many questions that we have. I’m so grateful for the progression of science that we see in today’s world.
I love 23andme. I know that Ancestry is good too.
I am not Mormon but I use their app to research my family history. It is free. Go to familysearch.org and register.
Family search doesn’t have a fee to pay like you do at Ancestry. I do some pay sites and others are free.
I also go to the library and look at records there on film. I visit cemeteries as well. You will find names and dates.
Family Bibles contain family records. Baptismal records hold information as well as marriage and death certificates.
I really enjoy doing genealogy. It takes a lot of time and effort to validate the findings but it is so interesting. It can be addicting because the more we dig into our history, the more that we learn about our heritage!
I am predominantly British. I would love to visit the areas of England where the majority of my family lived (greater London area).
A hopeful report!