First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
This is fantastic news!!!
What an ordeal you’ve been going through. And are still coming out of, but you’ve kicked this Thing over the ropes.
Onwards and upwards for you! Seriously, cheers and blessings and here’s to feeling better and being able to plan and do nice things. Bravo!
We should all celebrate tonight to share in your and Chuck’s joy and your new lease on life.
l’ll have some dessert. A Hagen Dazs ice cream bar.
Anyone else having dessert with me?
Cheers to Lea and Chuck!!!
Enough to go around!
Truly a miracle.
So happy for you Lealonnie!
I am so very very happy for you ❤️
I am actually sitting in a cafe courtyard, in the warm autum sun, with birds making a racket around me, reading all these messages, sharing in the feelings of such LOVE.
#blessed
"l’ll have some dessert. A Haagen Dazs ice cream bar.
Anyone else having dessert with me?"
I am having Haagen Dazs, leaving now.
Joy!
Joy!
Joy!
Send, pls pick me up some......vanilla swiss almond sounds good. I used to eat that when pregnant w My son 38 yrs ago.
Sp.....fun this summer would be nice. A vacay would be magnificent.
Ty madisoncuckoo! 😘
Beatty, blessed INDEED
Msblcb.....I'm not surprised either.....I'm shocked. 😊 I was praying to have the cancer kicked back a bit or stopped from spreading.....not expecting THIS!
I do love Haagen Dazs too
I just got home from Bible study and saw the great news. That IS a miracle if there ever was one, no ifs and or buts!
Now we just have to pray your dizziness away and your tapering off of the prednisone, so you can really live and enjoy the life that God has blessed both you and Chuck with.
You both have a great testimony and I hope and pray that you'll be sharing Gods goodness every chance you get.
Sp - haha 😉. I doubt anyone can beat your pair of cheesecake.
Instacart member here. I have actually sent deliveries to places far away, but only in California. Can use Walmart, Costco, and even a local market if it's on the list. And I always look for "In Store Prices" to save.
WM delivers Haagen Dazs. $3.98, best price for Haagen Dazs ever.
You deserve the best in celebrating!
And, WM has the Cheesecake Factory brand.
NED....isn't that code for: cancer free?
[Barukh attah adonai]
our God, King of the universe,[eloheinu melekh ha-olam]
For granting us life, for sustaining us,
[she-heḥeyanu v'kiy'manu]
and for helping us to reach this day.
[v'higi'anu la-z'man hazeh]
Amen.
(Which I recited after reading Lealonnie's update)
BarbBrooklyn, I love the prayer that you shared!
Geaton, hope the dentist isn't a huge ordeal. Imo, God's big mistake = teeth and feet 😑
Send: yes, NED= NO Evidence of Disease
Been up since 4 am watching Golden Girls and playing Word Blitz. Sleep. I forgot what that feels like.
Grandson and DIL coming over later to pick up the Harry & David brunch box #2 that arrived in much better condition than box #1.
There were to many believers praying for your healing for there to be any other outcome.
You helped me so often, in many ways, by your posts to many others, and by your responses to me. THANK YOU, Lealonnie!
I, too, will pray for you and look forward to more postings by you!
k
Good news is reason to sparkle for sure. ✨
"I feel like I am superhero diva and my power is glitter." -Jujubee.
Loved your prayer, as well, Barb! Amen!
Psalms 118:29
Lea,
There is so much to be thankful for in our lives.
I’m so very thankful that you have no evidence of cancer. It’s truly a miracle and a blessing in your life.
Actually, it is a blessing for all of us who believed that this day would come.
Hallelujah!