First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
What a ride!
Hope you’re snoozing! 🥱 😴
Maybe she accidentally deleted her account. Sendhelp did that and she had to get AC to fix it for her.
When a person deletes their account it will show up as anonymous.
Lealonnie went way above and beyond anything anyone could ask to keep us informed, answer questions, and now needs to rest, take a break maybe.
I am going to continue to pray for Lea and Chuck, always.
Thx Barb for letting us know Lea is OK and for alerting admin about Lea's account.
Sorry that your account is messed up. I hope that it is fixed soon. More importantly, I hope that you are resting and recover soon from your surgery.
Many, many hugs for you and Chuck.
Here’s a message from LL1, via email:
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I'm unable to log in. So I sent admin an email and nothing yet. Would you mind posting on my thread to let everyone know I'm OK? Just mysteriously had my account hacked or shut down somehow and am working w ac on it. I'll stay in touch with you, who will keep them informed.
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Let’s keep praying for our dear friend. 😀
Regardless our prayers for her and Chuck will continue.
Agreed our concern for her is no less and prayers continue.
From time to time certain posters live portions of their lives through this site. It becomes a comfort for them and for many others who bond so strongly with them. That simply is the nature and the humanity involved here.
I would hope some staff could see beyond a technical matter or time period when a member is dealing with stage 4 cancer and likely wants to share as well as that there are so many who communicate with her daily. We can't be erased.
Sending hugs and much love, prayers and support your way.