First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
It will be all over by this time tomorrow. We are Mountain time too. I will be praying as you are setting off as I always wake up in the middle of the night for a while.
“fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.” Isaiah 41:10
Blessings for you all and prayers for peace and healing and the clinical trials to come.
As I got in the back seat of my daughters SUV yesterday afternoon, I looked down and found a dime on the floor. I of course couldn't help but think of you.
Sending many blessings your way.
My cousin Instagrams me once a month or so to check in. We were close as kids, now she never even picked up the phone once since all this began. Which is fine.....checking in is ok too, I don't mind. What I do mind is being lectured about how "attitude" is critical to outcome here. If that were true, this dizziness would have resolved long ago bc she's suggesting I'm doing something wrong. I told her I'm hopeful, not depressed, etc, but that my attitude and $5 won't buy me a cuppa SB. She continued to argue, so I said Have A Nice Day and muted her indefinitely on IG which I'm now gonna delete entirely since I don't use it.
I wonder what makes people feel entitled to say whatever they feel like saying? Or to insist there's one "proper" way to do things or cope with a difficult situation? Walk a mile in my shoes (or on my walker) before casting judgment on what you THINK my "attitude" may be! Sheesh.
Then my bff called on the phone to wish me luck for tomorrow. She asked me how I was coping w the anxiety of the entire situation at hand? Which is what makes her my bff since grade school. I always feel good after a real talk with that woman, God bless her.
My stepdaughter called Chuck today (not the estranged one who lives here but the semi estranged one who lives out of state) to let him know she, dh and her 2 teen sons are coming for a visit next week bc I "could be dying so this may be their last chance to say goodbye". 🙄 Okaaay.......this from the gal who's not called me once either! Or her father, for that matter, the entire time we were in Phoenix! They will NOT be staying with us. I hope Chuck has a chance to visit with them bc HE needs this opportunity and I am not planning to kick the bucket any time soon, hello? I have no issue visiting w them as I'm able, though.
Anyway, I'm off to eat a light dinner, watch bad tv and pretend to sleep till 330am wake up time.
Isn’t it liberating to mute someone who isn’t supportive of you? You go, girl! I hope your cousin learned something from you.
Take notes, everyone! Lea has many lessons to teach us. Thanks for always being supportive of me when I needed someone to kick my a**!
Note -The expression "some mothers do have them" was once a common British euphemism to refer to a foolish or inept person.
In his case referring to the step ds.
I thought of you this morning . A dime from Aruba ( I was there last week ) fell out of my purse today .
Speaking of dimes, just realized there has been one sitting on a small chest in the hall. Must be for you, Lea,
Wishin and hoping and praying. Like that old Dusty Springfield song.
Continued prayers for you, agreeing with everyone that is praying for a complete healing for you.
Great big warm hug! You got this!
Thank GOD to be on the other side of this, and thanks to all of you for the prayers, vibes, thoughts and care you've sent me. I'm off to bed just as soon as this car hits the garage. We stopped at my step sons house to pick up all the food he's cooked for us, Chuck's loading it, then we're off. I'm sitting in the car posting an update to my peeps.
Love to all, and Geaton, the avatar is a beauty! 😁
This is good news!
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Praise the LORD. [1] Praise God in his sanctuary; praise him in his mighty heavens.
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Praise him for his acts of power; praise him for his surpassing greatness.
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Praise him with the sounding of the trumpet, praise him with the harp and lyre,
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praise him with tambourine and dancing, praise him with the strings and flute,
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praise him with the clash of cymbals, praise him with resounding cymbals.
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Let everything that has breath praise the LORD. Praise the LORD
Your step son is a treasure!
Have a good healing sleep. May God surround you with His angels for protection.