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He has had Parkinson's for over 11 years now, and is declining.Our communication is compromised and is very frustrating toboth of us. I've asked him to write things down but his handwriting isalso very bad now. I gave him a box of a preparation that I have usedbut he doesn't want it and insists on the one he's been using.I have leg problems, and do my best to go shopping, but will NOTgo out again just to get him what he wants, if we already have something comparable. I'm at my wit's end sometimes.

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Use Amazon.com for your needs as well as your husbands. Pick your battles lest everything become a battle. When Parkinson's dementia sets in, you can't expect him to use sound judgement anymore.
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Reply to lealonnie1
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You don't really ask us any questions here, but tell us how difficult this is, instead. And I know we all hear you. But that doesn't solve the problem.

Can you tell us it you are coming close to a point where you cannot continue in in home care for someone who really now requires the help of several shifts of caregivers?
If something happens to you with this continuous 24/7 caregiving, what for your hubby then?

I think you may be approaching the time when you can no longer continue in this. I hope you have the support of children, family, friends. If you do not I highly suggest you see a therapist, a good one (none of that online nonsense) who can help you comb out your thoughts, and some plan of action.

The sad truth is that a "caregiving spouse" gives up the second word in that definition and becomes a "caregiver" only. They loving spouse becomes the one the one to get angry at, to feels guilty about, to fight for control continually.
I am so very sorry. You are not alone in this, and if you stay on Forum for a while and read you will see this. We have a few members currently right in the place you are, and it is increasingly difficult for them. I know they will commiserate with you. I wish you the best of luck.
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Reply to AlvaDeer
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