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So much criticism - Dad put up with this and l say 'No' to negative input when driving. I have made an ultimatum, 'Would you like me to order you a taxi?'I now wonder is her complaint/s justified with the dementia. I slow where it is safe but then need to be right in with the traffic flow at times. Tried music on the radio. Asking her to close her eyes.She is reacting to other cars moves, some times, like anticipating they could have got us. I've not been reactive to this stunt or what ever it is. But who needs the thrill! How do l judge that it's time for her to not go on long drives which she loves and asks for. Any ideas for comforters....

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You say she loves going for drives but you also say she reacts because she is terrified of everything around you when she is in the car, those things do not go together. Perhaps what she really loves is the idea of getting out and being somewhere different, try and find ways to give her that without needing to drive anywhere. Another possibility is to consult with her doctor about the possibility of using an anti-anxiety medication (like ativan) before she needs to go out.
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Read about Amaxaphobia. Your mom’s extreme anxiety may get worse if not treated.

She may do better with an anti anxiety med before or during a long trip.

She may have inner ear issues that affect her as well.

My DH aunt did better if we talked to someone on the phone a bit when we were driving to an appointment. I like to listen to talk programs but not music.

Aunt had a fear of ferrying. Once when we were rerouted due to traffic conditions we wound up on a ferry. Because she had taken a very light anxiety med before we left home, she actually enjoyed the ferry for the first time in her life.

I have a cousin who won’t drive or ride on an expressway. She does fine on other roads. I have a SIL who won’t cross a body of water. Seems tedious but any travel for her is full of what others would find needless detours.

Your mom’s condition seems long standing as you refer to your dad “putting up with this”.

Might be worth a discussion with her doctor.
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If you are driving someone who is suffering from dementia then you need to understand that there IS NO UNDERSTANDING dementia. Her anxiety and reactions are a combination of who she is, and perhaps always was as a passenger in the care with anyone; she feels out of control when others are driving her and of her current disability.

You will have to decide how much she is in control and how much is out of her control. Telling her that you cannot drive her if she continues to speak while you are driving is pretty clear. So we are down to whether you CAN drive when she is speaking or CANNOT. If she can't stop, and you can't safely drive with this chatter, then yes, a hired car may be the only solution. You cannot control her and you cannot allow yourself to be "driven to" being an unsafe driver by her chatter.
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Keep the drives short.
One of the things that people with dementia seem to want is familiarity and on a long drive that takes them out of familiar territory.
Perception is also skewed a bit. So time is different, movement is different these both can account for her reactions.
It may also come to be that short drives will also make her nervous. When that happens it is time for no more car rides. I had to stop taking my Husband out when it was no longer safe for me to try to get him into the car. He just did not "know" how to turn and sit in the car. (needed 2 people, 1 to guide him, 1 to be on the ground to pivot his feet...and that person on the ground was me!)
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To me this a no brainer, as why in the world would you want to continue doing something that causes you both such stress? It can't be worth it anymore.
If you feel the need to get your mom out occasionally, then make the trip short and sweet. Or now just visit her at home or facility and bring her little treats that you know she enjoys.
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Hi,
As the disease damages her brain it's going to alter all her senses, and her sense of balance too. A lot of times the person with the disease stops wanting to leave the home because they can't process a lot of data--things feel like they're coming at them too fast for them to handle. It sounds like you've tried good work-arounds. I agree with waytomisery that it may be time to stop the drives.
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I’ve now had two family members with dementia who both felt as if the car was going faster than it was .

I’d give up the long drives . There is no point if you are both uncomfortable .
Just make excuses and keep the drives short , to get ice cream
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