Sudden decline. How quickly can this happen?

As a caregiver for the elderly for many years, I cannot stress enough how many elderly people get UTIs and /or low sodium which can make them go from seeming like very low-grade Dementia or even having no dementia to appearing to having alzheimers with a snap of a finger. So I always tell people if your loved one seems to have dramatically changed, please get them tested for a UTI and a blood test for electrolytes/sodium/magnesium.
If they continue to be very dramatically different, they could have low sodium which can even cause delirium. A bad UTI can also cause delirium.

A husband of a patient of mine- he was relatively healthy, 80 years old- woke up one morning and did not recognize his wife, his home, his bedroom... He knew nothing. He had complete memory loss. His daughters came over and were in complete shock and called an ambulance. The hospital said he had low sodium and that is what caused the complete memory loss. He had no Dementia or Alzheimer's, but the low sodium brought on those symptoms.
So even though your loved one may have what you think is dementia, the starting of dementia, or full-blown dementia, please, please get them checked often for UTIs and get them a blood test to check for low sodium and low magnesium. I can't tell you how many elderly people have suffered and are even branded as having Dementia but it's really a chronic UTI. Or it's untreated low sodium and delirium. And, if the delirium isn't treated, then it can cause damage to the brain. It's really sad. Elderly people are not treated the way they should be in this country.
We have to be their voice, their advocate.

Usually sudden changes are a sign of a health challenge: an infection, low level of oxygenation, a minor stroke, a blood chemistry imbalance... Please take her to an urgent care center to rule out a medical problem.

i was looking at old videos I took of my husband last summer, june , july and august2021 and he was still walking around, no cane, eating non stop, watching tv for short periods of time but I did have a caregiver just to stay with him about 4 hours a day so I could do errands, my medical appointments, pay bills ect.I was doing all his personal care and grooming, helping him to the bathroom and cleaning up accidents. Fast forward 4 months… still eating and snacking, but falling, trying to leave the house, trying to jump from the car while I was taking him for a ride to see the ocean, incontinent of both urine and stool. Insisting someone was trying to hurt us, insisting I was holding him hostage and wasn’t his wife and thought he’d abandoned his kids, which led to severe depression. I had no choice but to place him In LTC after I ruptured a disc In my back and was unable to even lift a half gallon milk jug.His admission date was December 15,2021 and I was heartbroken. Now 6 months later on June 27,2022 my wonderful husband who ive been with since we were 16 years old, passed away. He had a fall, thru no ones fault but him climbing out of bed over the half rails, ended up in the hospital via ambulance for a cat scan of the head which showed NO head Injury, I knew he was on a downward spiral , he was a DNR/DNI and I had him sent back to be with staff who adored and took good care of him.( I’m a retired nurse and I can honestly say he was NOT treated very nicely at the hospital ER… apparently the nurses feel the way to calm someone with dementia these days is to scold and verbally antagonize them while trying to insert a catheter which resulted in trauma and bloody urine the remainder of his life).I’m thankful that I placed him on comfort care with the staff who loved him and gave my VietNam Veteran the respect and dignity he deserved and he died peacefully 12 days after he was discharged from the hospital. I’m sad and grieving but also feel proud of the life we had together .we both kept all of our promises right to the end. If I can say anything, I’d say “ make the very most of the time you have left with your love ones. Be kind to the staff, especially the CNA because they are the angels who make a difference .advocate for your loved one In a respectful way. This is a difficult job for EVERYONE. Never stop telling your loved one how much they are loved”. Love and hugs to everyone💔💔🇺🇸

One must keep in mind that in a facility, sometimes elderly people are over-drugged, so they create less work for staff (especially at night before going to sleep). It depends on the facility. But seriously, this does happen sometimes.

Those drugs of course affect the mind, memory, and can result in rapid decline.

When trimming mom's toenails one day she asked me how many people I do that for. Just you, I said. She asked my name. Nanette, I said. She said now that's funny. I have a daughter with that name too.

It seems we go along day to day and she likely doesn't know who I am, but she doesn't let on. I get a glimpse of her dementia though at these odd times like pedicures.

Yes it can happen that fast. I had been with my dad for 3 hours in the lounge at the nh. He wanted to go to bed so they took him to his room. I went into tell him something and he forgot who I was. Then two days before he passed we had a family reunion for him at the nh my husband went to get him and he didn’t remember him and then he didn’t remember me. Eventually it did come back to him. He did remember all his nieces and nephews and he hadn’t seen them for a few years. It’s very upsetting but you just have to know in your heart that they know who you are and they still love you and you love them.

Msblcb: Although my late mother was never diagnosed with dementia, she went from being a very lucid person to a woman who asked "Why haven't you called me?" That was three minutes after having chatted with her on the telephone.

I've often heard that putting family pictures around the patient can be comforting when they come in from the abyss.

Any sudden decline can be a sign of something else. I wouldn’t accept a sudden change as “normal, oh well, I can’t do anything about it”.

Sometimes one truly can’t do anything about it. But sometimes sudden decline is caused by a treatable problem. Please get it checked out.

There can be the reasons besides dementia such as stroke, sudden vision or hearing changes, UTI or other acute illness. Unlike dementia these are fixable, especially if diagnosed and treated ASAP. They can also trigger acceleration of dementia. Last week was the first time Mom (95) didn't know my name, although she has been mixing up the rest of the family for 2 years. At least she called me by my younger daughter's name! ( She's half my age, I'll take the complement.)

Yes, it can happen. However, I suggest that you take her for a trip to the doctor to have her checked out.

My mother 2 weeks ago, woke up one morning and said she couldn't walk. Just the previous day, she could lift her legs and move them. She could still pedal on her own on the exercycle, but it was more work than normal. I thought we had progressed to another level of dementia so I decided to wait it out. One week later, no progress. She was resigned.

My Mom has severe arthritis and hasn't had xrays for awhile so I emailed the doctor and he ordered xrays.

I don't know how they did it, but they also did a urinalysis.

Verdict: UTI

Within 1 day of Cipro, she could stand on her own. Within 3 days, we are nearly back to where she was before she said she couldn't walk.

About 9 months ago, my Mom had bloodwork done and it showed low levels of thyroid. After going on a very low level of thyroid medication, in about a week, her ability to speak and her overall memory improved.

I would go to the doctor and tell him what is going on and see if he offers any help. It could just be a progression or it could be amiss that medicine can help.

This can definitely seem like a sudden change, but in reality, in the past she may have thought she knew you but wasn’t completely sure in her mind. At this point now, she is starting to forget you or who you are I should say. This is very painful for both you and her, But this will continue to advance now and it will happen quickly in some cases which was the case for me with my husband. This is a very difficult road we travel And I wish you the best. Hugs

After 3 years of not knowing me, one day I walked in and she said..here is my daughter..isn't she pretty? She has a handsome son, too. We talked like the old days, many years in the past...when I left I went home and cried. It meant so much to me she really knew me. That was on a Wednesday, my day off, when I could stay a long time. My next visit, after work on Friday, I was a stranger again...went home and cried again....she left us the following Monday....so thankful for her final 'gift'...

After 3 years of not knowing me, one day I walked in and she said..here is my daughter..isn't she pretty? She has a handsome son, too. We talked like the old days, many years in the past...when I left I went home and cried. It meant so much to me she really knew me. That was on a Wednesday, my day off, when I could stay a long time. My next visit, after work on Friday, I was a stranger again...went home and cried again....she left us the following Monday....so thanakful for her final 'gift'...

Yes, it can happen that suddenly and randomly. On any given day, my mom can recognize me at 8am, and then at 12pm, she's calling me by my aunt's name. Then at 3pm, she know's who I am again, then an hour later, she doesn't! It's happening more frequently and more quickly as her dementia continues to get worse.

The only time that has happened with my mom, I realized afterwards that I had walked into her room in MC and just said hello. I didn’t say”Hi Mama” like I usually do. That day, she talked to me like I was a nice stranger who had come to visit and told me I looked a lot like her daughter. Since then, when I walk in, I always say “Hi Mama” as a prompt. I know the day may come when she doesn’t know me at all, but for now, she’s remembered me since that one episode. It’s unnerving for sure. when it happens.

Yes, some day it will happen, and that day will be "overnight".
Doesn't mean that she might not remember you again tomorrow. Sometimes these things come and go and sometimes they are permanent.
Often the elder is aware that this is someone they SHOULD know and they will confabulate, pretending that they do know you.

Yes. Just llike that. My mother has lewy bodies dementia. She forgets my name, calls me mister or hey lady. Yes, My mother is not who she was. I remember her forgetting things little by little till one day, she can't talk, feed or use toilet without any assistance to total assistance. I could only tell you. You'll need to understand that her brain is shrinking, you'll need to be her best friend and always tell her. You love her.

I would say about a month. My wife broke her hand and by the time it was healed she had full blown dementia. I was slow to recognize it. But it seemed like less than a couple of weeks it was on a doctors visit they tested her and it all made sense.

Yes, this disease takes you on quite the roller coaster ride. One day I showed up at my DH's MC center while he was eating lunch in the dining room. He seemed unusually surprised to see me as if I were a long-lost friend he hadn't seen in years. Then, with a big grin, he said, "So, tell my friends here, when was the last time we had sex?" I think he was trying to place me in his timeline. He also seemed very surprised when I kissed him good-bye. Next day everything was back to "normal." Occasionally he talks about me in the 3rd person. When he does that, I go along with it and tell him his wife sounds wonderful. ;-) The more you can laugh about, the better it will be for your own mental health. Hang in there.

Thank you for posting this today. During the past two weeks, I've notice a precipitous decline in my mom. She has just lost all enthusiasm, her appetite is way off, and she is forgetting simple things such as how to end a phone call, which button on the remote is for volume or changing channels. She is still able to toilet herself during the day, but it takes at least 20 minutes to urinate. She forgets names of family members and I can never tell if she is telling me about something that actually happened or that she "thinks" happened.

UTI?

We rock along real well for awhile and then my mom says something odd that makes me think she's not sure who I am. It's a little jarring the first time it happens, but so far it has come back for her. I suspect that's what you will find too. One of these days I'm sure it won't come back, but at least these little moments prepare us for that eventuality.

The other day we were driving to a doctor's appointment and it was as though my mother was trying to make small talk with a stranger. She said "So are both your parents still alive?" Now THAT threw me for a loop! I poked her and she jumped, so I said "One of them is". She suddenly realized what she had asked and we had a good laugh.

I recently had to remind her of her own name. That's unsettling too, maybe more than her forgetting me. It felt a bit like her identity was drifting away from her.

I remember asking my mom's doctor this same question -- "How could this happen so suddenly?" He said that decline in the elderly often follows a pattern of drop>plateau>drop>plateau rather than a steady downward slope, and I have absolutely found this to be true in our case.

Having said that, within each "plateau" my mom will have good and bad days/weeks depending on how well she's been sleeping, her anxiety level, and who knows what other factors. Some days she's not even sure who SHE is; other days she's having philosophical discussions about Roe v. Wade. The "bad" periods can be upsetting but I've learned (ok... am still learning!) to just roll with whatever the day brings.

Do definitely check for signs of a UTI, as that can cause severe and sudden (and temporary) changes in cognition.

My heart goes out to you... the first time my mom didn't know who I was, I felt absolutely shattered. The grief literally brought me to my knees. Sending lots of comfort and strength to you!

Yesterday, my mother greeted me with a paragraph of Word Salad. 😢

2 minutes later, she asked, “Is there a toilet in there?”, pointing to her bathroom. 😩

Both were for the first time.

I walked out of there, praying out loud for The Lord to JUST TAKE HER, ALREADY. 🙏

At some point many people with dementia get muddled about relationships, as they go through stages of decline. My mother eventually forgot who I was. She recognized me as someone she knew and trusted, but didn't recognize me as her daughter. Sometimes the memories come and go; there are good days and bad days. Accept her for where she is day by day, and try to channel your love for her. Dementia is often called the "long goodbye." You may find that you experience grief at her loss of capabilities. Seek support groups and grief counseling if it will help you deal with being a caregiver for a loved one with this terrible disease.

My mom changed almost overnight. This disease is awful. Even today, although she lives with me, she doesn’t know my name but refers to me by her brother’s name. I respond to it because I know she’s trying to remember my name but just can’t. Every once in a while she will call me by my real name and I’m in shock to hear my name being called. This disease is awful.

There were declines that my Husband had that were literally overnight. And I can pinpoint each one.
My Husbands "official" diagnosis was Alzheimer's but I think he also had Vascular Dementia.
With that type of dementia there can be a mini stroke that can cause an "over night" change and depending on what part of the brain was effected by that damage will effect what is "lost". It could be the ability to recognize you, it could be how to use a utensil or how to button a shirt.
So simple answer is yes it is possible.

Yes, it is like someone came and pulled the shade all the way down, overnight. My step-mother held very well for several years, then poof, she was totally gone.

We moved her from AL to MC 2 months ago, she is safe and well cared for.

Yes, such a thing is possible. The thing about dementia/Alzheimer's disease is that the decline is not linear. The changes aren't the same from hour to hour, never mind day to day. Today your mom could be back in time to when she was 25, a point in time before you were born perhaps, which may be why she's not recognizing you. Tonight or tomorrow she could be at 50 years old, and remember you quite well as her daughter. Then revert back again to 20 or 25 years old, expecting to see those people she knew in her life at THAT TIME. If you keep in mind how your mom's brain is functioning now, it'll be easier to understand why she's acting as she is. Doesn't make the scenario easy, I know, but makes it more understandable.

Good luck to you