Just wondering if I'm a weirdo. I cared for my Mama for two years prior to ever having a home health agency coming to our home for bathing, etc. About one week into it, after finally acknowledging maybe they would help give me a break, Mama broke her ankle, the anesthesia during surgery pretty much rendered her completely bedridden and now hospice is involved. For the most part, they are fine. I love our nurses. The bathing aides are ok but a pill to deal with on occasion, but for the most part, Hospice is great! Absolutely!
Now.....I am not a needy type of person. I don't need someone holding my hand all the time, I have always been independent hence the going for two years before acknowledging perhaps home health assistance would benefit me and Mama. Here's the issue, included with hospice of course is the fare of a variety of personnel, including social workers, chaplains, and such. I do not want or need social workers or chaplains . I may need them some day. I don't need them now and don't want them here....They persist on coming out. The last time the social worker came, all she did was make inquiries regarding our financial situation, perhaps to ascertain whether we needed other forms of assistance, I don't know, but I found her questions nosy and invasive. She also began discussing funeral planning issues in front of my Mama, which, IMO is totally inappropriate...Additionally, I will deal with that as needed, when needed.
The social worker continues to, it feels to me, harass me about coming out here. I have told her point blank that right now I don't need a visit and really do not want one. She persists. This morning, our nurse called and told me she was en route with the social worker. (The nurse knows this is an issue with me)...I told our nurse she knew I did not want or need a social worker and she handled it ....for now...
Once again, here we are with the social worker. I had a long discussion with the nurse...What is the deal with the social worker???? Why are they so dang persistent??? I even asked the nurse is there something she knows that she is not telling me as to why this woman insists on coming? I also told her that while I started to call last week, I was able to handle my issue and so did not need a visdit.
I let the nurse know that to be honest the insistence of the social worker to come out is causing me so much stres and quite honestly, making me extremely angry, that I needed to know what I need to do to handle this. At this point, I do not want to go through changing hospice care providers as Mama is used to the nurses and I have gotten very attached to them as well. They feel like part of the family.
When the social worker comes, all she seems to want to do, other than inquire about our finances, is sit and stare at me...period...stare....it is unnerving and it makes me feel as if she is hoping I will fall apart so she will have something to write up a report about. I am sick of it....I thought hospice was here to help my Mama and me as well. Why are they causing me so much aggravation. Are they trying to make me angry so they can dump me? I don't get it...Am I the only one who has gone through this?
Maybe other folks enjoy the company, but to me for a total stranger who does not know me, to try to engage me about how I'm feeling...Besides the fact that I know I am going to lose my Mama, how am I supposed to be feeling. Honest to God, it is all I can do to be strong and be here for Mama. I do not need or want people coming in here trying to convince me I cannot make it through this alone. WTH????