My dad is 92 and my research shows he is in Stage 6c-e of Alzheimer's.
My dad thinks he is back at work, in the 1980s. I go along with it and join in the conversation as much as I can, but he knows I am not a businesswoman nor do I have a background in it. But I want to be there for my dad, and if it means talking like it's the 80's and he's still working, I can do that, no problem.
I do know enough about his past job to ask questions that pertain to his work. I ask how he should proceed with the "projects" he is currently working on. I sort of wing it, and he says I've been quite helpful.
Last year at this time, my dad would tell me that he needs a job to support his family. I would remind him that his finances are in order and he doesn't need to work. (I understand now I should not have said that.)
But then my dad would say, "OK, but how can I keep myself busy? I want to be productive." He used to write newsletters for work, so I suggested he write a newsletter on bird watching, which he loves. But then he'd ask, "How will I get paid?"
Last year he was quite focused on earning money. Part of me wanted to send him a check, to give him what he wanted: a paycheck. But last year he was aware it was 2024, so he was only focused on earning money every now and then. I never did send him a check.
But these days he thinks he is at work more often than not. (One thing that has changed is he does not bring up the need to earn money. I don't know if that will return.)
My husband is a businessman, and currently my dad thinks he and my husband are working together at my dad's business. My husband is really the only person my dad wants to talk to lately.
The issue: my husband wants to remind my dad that he is retired, does not need to work or earn money, and he should just relax and enjoy life. My husband doesn't seem to have patience for my dad's conversations about work, yet he is my dad's number one choice for work conversation.
I tell my husband that this will not help my dad. My husband and I have discussed this many times, and I just cannot get him to understand.
I suggested my husband read some of the countless articles and books by professionals and those living with dementia patients so he can become more educated on the subject of how to talk to someone with Alzheimer's. He sort of rolls his eyes.
Then my husband said to me, "If I find proof that it's ok to correct people with dementia, will you be ok with my telling him what I want to tell him?"
My husband is adamant that his way is the right way to handle this situation, instead of therapeutic fibbing.
I relented and said ok. I'm crossing my fingers that my husband is unsuccessful.
My advice is to keep your husband away from your dad because he's causing more trouble than he's curing. You're doing a great job with dad so keep it up.
PS....after reading your added info, when you FaceTime dad, just tell him your husband isn't home at the moment. God bless you for having TWO parents to deal with, and your dear brother also. Best of luck.
“I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.”
Maya Angelou
I'm sorry you're having this problem with your husband. He has for some reason decided to be bullheaded and inconsiderate of you and dad. Perhaps he is feeling that he doesn't get enough of your attention because you're so concentrated on dad. Maybe he's like a child who resents another child coming along and capturing all of mommy's attention.
I can't tell you what to do about that, but I know what I'd do. I'd disengage a bit from husband and stop talking about dad, dad, dad. Taking care of an elder with dementia tends to narrow our outlook on everything. Nothing else seems important sometimes. So I get it. I've done it.
This is how taking care of parents with dementia can change a couple's marriage forever. Just sayin'.
Nevertheless, it sounds as if your parents' mental health is deteriorating rapidly, and this might not be a problem for very much longer.
You said that their care can be afforded. I hope that's out of their own money. You and your brother don't know what the future holds - you may need more money than you realise for your own old age or ill health. Similarly, do not send your dad cheques for his imaginary job - that's a step too far for therapeutic fibs.
Please don't stress too much about your husband not understanding (or trying to understand) how to deal with dementia. It isn't his strength, but I'm sure he has others. It won't hurt your dad as much as it seems - I'm afraid he'll forget what's been said soon enough.
Do be open to your parents going into care if it seems that in-home care isn't enough.
Wishing you all the best at this difficult time.
My brother manages my parents' finances, and they are paying for their own in-home care. We do supplement often, however, in various ways. I have not sent any checks to my dad--it seems he has forgotten about wanting to get paid.
I now have a new perspective about what "saving money for the future" really means--however my husband thinks robots will be taking care of the elderly one day...
And all this has made me not want to be around past 85 years old. What will I be like when I'm that age, or in my 90s, not one but both my parents have dementia.
Thanks again.
He also would be completely unable to tell therapeutic fibs, even when faced with advanced dementia.
I don't know how to help you, sorry. But I do commiserate.
It might be wiser if your can help your dad to develop several different interests. Your hubby may be more willing to discuss one of those other topics.
Well, she almost did. We had all been calling her, and getting no answer for a couple of days, which we figured out by calling each other. We just assumed she was out at the hair dresser, pharmacy or grocery store. We finally called her youngest brother to go check on her.
Turned out she was on her LR floor after suffering a massive stroke. EMT’s assumed 3 days based on her tv guide page. Long story short - she survived it, but not unscathed. After several weeks in the hospital with a drain in her skull to relieve pressure, she had to go into a Nursing Home for 24/7 care. She couldn’t stand or walk, and struggled to talk. Over time, with speech therapy, her speech improved, but she remained immobile had to be moved from bed to bathroom or a wheelchair by means of a lift.
This isn’t Dementia, but might as well be. What none of us were prepared for was the total loss of her short term memory. My husband (her son) and I would fly down to visit, and she thought he was his Dad (who passed away years before). The NH staff told us to correct her immediately every time she made a mistake like that, so we did, as gently as we could. We’d say, “Mom, it’s your son and DIL”. However, we could see on her face that it made her feel bad for us to do that. Sometimes she perked up after a minute and looked at my husband and said, “When did you get here? Did you see your Dad leave?”. When we’d come back in the afternoon, we’d repeat the same thing. As someone said … groundhog day. Sometimes she knew my husband, but most times not. Or she’d tell us to “go out on the porch and fix yourselves a plate. I just cooked a ham and made potato salad and (green) beans”. So we’d say “sounds great! We’ll go do that soon”. Then the Nurses would say, “You both need to correct her when she says things like that. Bring her back to the present”. But from what we could see - there was no “present” for her anymore. Just past memories where she “lived”. She no longer read books or magazines (she had been an avid reader). A small tv was often on, but it was just noise. She didn’t watch it. I don’t know if she even noticed it. She didn’t ever look at it while we were there.
Anyway, we talked over the “correcting her”situation and made a command decision NOT to correct her anymore. If she was confused as to who my husband was, he’d step into the hall and then back in, and I’d say “Look who’s here Mom, your son”. Solved lots of things she could not help. We certainly felt better about it. Told my SIL what we’d decided, and she agreed. Why make Mom feel bad when she couldn’t fix it herself? It was obvious to us all she was stuck somewhere back in time - and maybe that was God’s gift to her so she wasn’t fully aware of her situation. I pray He’s that kind to me. So, we kept that up until she passed away in 2006 (86).
Now she’s with her beloved husband again. 4 1/2 years ago, my SIL and my Husband both joined them, 3 weeks apart. So, now it’s just me and my SIL’s extended family. I read, work puzzles (paper and jigsaw), go to church, grocery shop, and get together with friends. A friend and I take my Godmother, who lives in memory care, out to lunch at least monthly. We guide our conversations to get her back to the present and off repetitious subjects, etc. It’s just a cycle of life.
I see in these people where I may someday be. My father’s mother sat silently in a chair until she died. My mother’s family were all lucid. If and when I’m no longer aware, I hope and pray someone will be as kind to me.
I think that you have dealt with all of this beautifully. I'm not religious, but I pray to all that's good in the world that you will be met with equal kindness.
her no wonder I am so tired. She said it was fun and we should do it again some time. She was also obsessed with her car keys so we brought in her keys and hung them where she could see them. It made her happy and kept her calm. We all figured that as long as she was happy that was all that mattered in the long run. To keep her content. Unfortunately we lost her 5 weeks ago but I do not feel guilty of playing along with her. My sister would constantly correct Mom if she said something that was not true which in turn upset Mom.i see no harm in it as long as everything calm.
good luck
It sounds like you gave her so much joy by joining in her world tho! I am trying to do the same and appreciate hearing your story, so thank you for sharing!
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