I know this is a long out there question..but my mom is in stage 7..she cannot feed herself cannot walk..cannot care on a full conversation..there are using a hoyer on her she loss control of bowels and all..does stage 7 know to last as long as the other stages..i heard 1-6 years..just curious..
I’m sorry for what transpired but it is not your fault in any way. I hope your father doesn’t suffer.
God bless you both.
My mother-in-law has been suffering for about 10 years and has lived with us for the last three years and passed away recently. The first answer that I've learned is that the end usually comes as a result of a complication (broken hip, infection, pneumonia).
My mother-in-law started wondering about a year ago and got very unsteady about 4 months ago, commonly just collapsing as she stood or was walking. Two months ago she wondered into the front yard, got to the driveway, collapsed and broke her hip. She then went into the hospital and had hip surgery and the anesthesia dramatically increased her dementia. She was transported to a skilled nursing facility and hospice was brought in to help us manage the process. They put her on pain meds to keep her comfortable. After the hospital, she was 99% non-communicative. She didn't eat anything substantially for about 45 days and ultimately wasn't able to take any fluids. After 5 days she passed.
My understanding is that this is a very common scenario with dementia and just thought that I'd share. Good luck to you.
For both your sakes, I hope the Good Lord is merciful and brings your husband home to Heaven to rest and be well again.
I will include you both in our prayers at night. Hold on to God for strength.
Only just joined in. Been with my beloved 66 year old husband for several hours today. I'm with him most days. He's in a Care Home. He's in Stage 7 - diagnosed with Early Onset Alzheimers in 2010 aged 58. He choked badly yesterday and today carers and me in tears as we thought he was entering his 'end of life' phase as hadn't eaten or drunk for 24 hours. What happens next : he perks up, accepts his supper (puréed), drinks his thickened juice, tries to sing along to Classic FM, answers no when I ask if he's ever sung that song and smiles at me!! He's VERY thin, bedridden (5 months now), doubly incontinent, hardly speaks, pulls at his bedding constantly but continues to love his classical music, and seems to know me in and out of his staring into space. I can't believe this terrible state of affairs can go on for much longer, and the above posts fill me with dread - another few years? Please no, for his sake. I weep constantly as he was a vibrant classical singer and Home Office Civil Servant, and our retirement has been stolen from us. The cruelty of dementia. I feel for you all. Truly I do. With love to all who suffer.
I became involved when he was a Stage 4 at age 65. Three years later he is now a Late Stage - 7B.
Although he has not been able to do anything for himself for a year now; he could walk. Broken hip in June of this year and surgery has taken that away . I care for him in my home and last month placed on Hospice. He sleeps 18-20 hours; but when up he sits in his chair and hums.....being non verbal ..... no words, but hums.
No words can describe how horrible this disease is ......
being classified as a “ stair stepper “, I check on him throughout the night and fear finding he has passed.
He does not gradually go from Stage to Stage ( 4 Stages in 4 years), but rather goes to sleep one person and wakes up another.
My heart goes out to you and pray for you to have strength as you go through this journey with your husband.
I realize that the residents in the Memory Care where my LO resides likely have any number of causes for their dementia, but, many of them have passed way since my LO moved in. She's been there for 3 years and a number of those in her wing have passed away. She's lost 2 roommates and many other friends there.
I have read a lot about Vascular Dementia and often it gives the life expectancy from diagnosis to death as 4 years. I have no idea if that is accurate, but, it's an average expectancy. Based on my LO's progression since this all started, I think that it may be about right.
I check her weight at the facility monthly - she is gaining weight because she is like a goldfish, and eats everything they offer to her.
We have been told that this could go on for several more years, easily. Save your money. It only gets worse.
It appears that Motherof5's mother has progressed to Stage 7c if not 7d. (We would need a breakdown of her abilities.) As I understand the scale, you count FROM the stage they're in, going forward. Assuming each stage lasts the amount of time given, she appears to be at 7c. She could have up to 3-1/2 years left. The reality is that patients become more susceptible to infections and pneumonia and some don't make it all the way to 7f (then death). Also, this scale doesn't mention anything about difficulty or inability to swallow or how long a person can last through that stage.
taken from your 2nd site; www.mccare.com/pdf/fast.pdf
Stage 7a Severe Dementia-(speaks 5-6 words a day)-expected untreated (unmedicated with Alz. drugs) duration of this stage is 12 mo.
Stage 7b Severe Dementia-(speaks only 1 word clearly) duration is 18 mo.
Stage 7c Severe Dementia-(can no longer walk) duration is 12 mo.
Stage 7d Severe Dementia-(can no longer sit up) duration is 12 mo.
Stage 7e Severe Dementia-(can no longer smile) duration is 18 mo.
Stage 7f Severe Dementia-(can no longer hold head up) duration is 12 mo.+
Taken from 'Dementia Care Central' (your 1st website)
Very Severe Cognitive Decline (Late Dementia)
"People in this stage have essentially no ability to speak or communicate. They require assistance with most activities (e.g., using the toilet, eating). They often lose psychomotor skills, for example, the ability to walk. Average duration: 2.5 years."
This description is poorly worded. "They require 'assistance' using the toilet". No, they require TOTAL care and are not able to walk, even with assistance, to the toilet. They are incontinent of both urine and feces and are bedridden, using diapers and a caregiver to clean them. For this reason, I don't think this reference is accurate information.
As I'm interpreting the above scale, if motherof5's mom is already showing she can no longer speak, walk or eat on her own, she would progress to the next stage and start counting from there. She's possibly at 7d, giving her (without other medical problems) possibly 3 1/2 years before passing. These are AVERAGES of how long a person CAN last in a particular stage. Each person is different and depends on many other factors, (existing medical conditions, genetics, caregiving, etc.).
Motherof5, I mistakenly thought your mom wasn't eating (due to difficulty swallowing) also. My error. That's the reason I mentioned such a short amount of time. I'm sorry. In the end only God knows the date. We're only guessing.
This website says 7 years is average. https://www.mccare.com/pdf/fast.pdf
Oh dear, no, Stage 7 doesn't last anywhere near 6 years. There is no exact time frame but people in this weakened condition are susceptible to a variety of health problems, which speeds up the time of their passing. The brain is no longer sending signals to the body (like hunger, talking, repositioning, elimination, etc.). That's why they don't react.
I hate to be so blunt but often the immobility (bedridden status), coupled with the lack of cough reflex (from weakness), coupled with the swallowing difficulties (where food and liquid can be sucked into their lungs) can turn into pneumonia. Pneumonia is what finally terminates their life. Or, they succumb to systemic infections because they have a compromised immune system. My best guess would be 6-12 months. If you aggressively try to treat the infections (pneumonias, other infections, etc.) you will be prolonging her life (and suffering) to only stretch out the inevitable, her passing. If she is on any medications, and is unable to swallow them, then she could have deterioration from the lack of medications also. But placing a feeding tube (a gastrostomy tube put directly into the stomach by a hole made in the abdomen) doesn't always help either. My dad had one when he was in the dying process and the liquid food just stayed in the stomach-it didn't move down like it was supposed to. They had to stop the "feedings" because his body was taking over and was in "dying mode".
They have done studies that suggest that letting the body's natural course take place is the least painful and least disturbing to the patient. That is how I will let my mom be on her way (she's in stage 6).
We normally treat any physical problem but, in this case, the body is trying to shut down and we are preventing that from happening by giving treatment (medications, tubes for feeding, etc.).
See on this board; How long can a person live after reaching the last stages of Alzheimer's Disease
Asked by neiseo99
God bless you Momof5, this is a heart wrenching time.