Hi there. My brother and I are the sole care givers for my 55 year old mother who recently transitioned to hospice at home.
My brother has mild autism and mild cerebral palsy. He is lucid and able to carry out Day to day activities. I work full time and the 3 days I have free, as well as, evenings after work...I am at home with her. I don’t sleep. Maybe 15-25 hours per week I get.
Her main is of hospice is copd and emphezema.
She also has bipolar, dissassociative personality disorder, high blood pressure and shows signs of severe narcissism. She refuses to take medication for her mental health and refuses to see psych. My brother dropped out of college and is stuck paying back $3000. However is unable to work because he needs to stay there 24/7. I stay there as much as possible to give my brother time to himself. I do get stressed out easily lately. My mother and I do not get along much because she continues to consume vast amounts of booze and smokes 2 packs a day on oxygen that her boyfriend provides her. So it’s a safety issue that hospice knows about. I need help. I do not want to continue this anymore. I know this is selfish and I know what you’ll think of me. But I need help with her