My father has end stage liver disease. He lives alone in his own home and I’m his only child, living 2 states away from him.
My father went into the hospital almost 2 months ago with a GI bleed, got pneumonia. Was discharged to a rehab facility because he was too weak to go home. He has not gained his strength back and has gone back & forth between rehab & hospital for paracentesis. He met with the palliative care nurse at the hospital last time and he decided on comfort care. He was discharged back to the rehab nursing home as that’s where there was room for him. While I’ve been told he has months (maybe up to 9) to live, no one has said he qualifies for hospice care.
He can’t walk, toilet, bathe, cook or undress/dress himself due to his weakness.
Yesterday he told me that in 2 weeks he'd like to see if he can go home. I think this is due to the cost of housing him at the nursing home. He has Medicare Advantage and we are now into co-pay days.
I think about how being home would be good psychologically for him but how??
I would come help him get situated for a week or two but I have a husband and 9 yr old daughter & job in another state. I don’t think physically I could lift my father (he’s morbidly obese).
I know there are nursing agencies where you hire caregivers. He would need round the clock care since he is basically bedridden.
Do you have any advice? What have you done if you had a similar situation?