After a year of hell where my dad was in and out of the hospital 7 times and his begging us just to take him home We decided to put him on home hospice. We thought him being in his own home was the best thing for him and my parents have limited assets.
I am in the health field and was under the impression that hospice was some magical experience where support was overflowing. My experience with my dads home hospice agency has been substandard. Our team leader comes once a week and it seems that her objective is to #1 get us to sign papers showing she was there so they can bill Medicare ,#2 to dodge questions , and #3 remind us what we already know that my dad is dying. We all understand that dad is at the end of his life, but feel efforts should have been made to get him out of bed when he first got home so that that the stage 4 bedsores he had could stand a chance. They told my elderly mom to call anytime but when she does is given the run around. Pain medications have been delivered a day late. The list of issues go on and on.
My dads wounds really need to be changed everyday and we were told most patients get three times a week so that is what my dad gets. His wounds are really what is causing his pain. He is dead weight for the most part and my elderly frail mother can not turn him to do it herself. What gets me is Care isn’t available on the weekend . Interested if anyone else has been in this horrible situation.