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CyndiP Asked February 2023

Has anyone had any experience with NPH (normal pressure hydrocephalus)?

My who is 78 was recently diagnosed with NPH. She was in the ER due to a UTI and blood clot. A scan of her brain showed NPH. We’ve had a follow up with the neurosurgeon who diagnosed it while she was hospitalized for the UTI and blood clot. He recommended a ventriculoperitoneal shunt. We have an appointment for a second opinion but both neurosurgeon specializes in back surgery. Has anyone had this procedure or knows someone who has? How did it go?

AlvaDeer Feb 2023
I sure haven't but though I was a nurse I never worked neuro. I would only tell you that while I hope others here might have some experience to share with you, their own experience, whether good or bad will be as individual as any patient's own thumb print. I sure wish you luck and hope you will update us on your decision.
Has there been any suggestion from your neuro doc what would be an outcome of NOT doing this surgery? How complex it is? How often he has done it?
If you cannot talk a good long time with an MD about what all is involved here that would be a bad sign right there.

AlvaDeer Feb 2023
I hope there are others here who have experience with this unusual problem but I myself haven't at all in a long career of nursing. Do just know that others experience may not be reflective of your own in any way. Every patient is as individual as his or her own thumbprint. I sure wish you luck.

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