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TinyAlien Asked November 2022

My mother-in-law refuses to use an alarm clock for her husband with dementia. Advice?

My mother-in-law is the caregiver for her husband who has dementia, and I do all the driving for both. My MIL is too sick/depressed to leave the house, so I go with my FIL to all his many appointments, some of which are quite early in the morning. I've been doing this for a year, and I just found out today that she has no functioning alarm clock. And she doesn't use her phone for an alarm either. Instead, when he has an early appointment, she just wakes up in her bedroom at whatever random time she happens to in the middle of the night, and then sits up awake all night until it's time to wake him up. It sounded so crazy, I had to double check to make sure. I flat out asked her, "So on the days he has an appointment, instead of setting an alarm clock for him, you just get up at 1 or 2am and stay awake staring at the clock in complete darkness and silence until dawn comes and it's time to wake him?" And she said yes. She said she just doesn't own an alarm clock even though they have tons of money. I told her that she shouldn't have to stay awake at night like that, that I would go and buy her an alarm clock ASAP, but she doesn't want me to. Once I started really pressing her, she claimed she would learn how to set an alarm on her phone, but I know when the time comes, she never will. What the heck is going on here? Is this normal elderly behavior? I feel bad for her sitting in the darkness half the night like that, but it's also baffling and frustrating and downright creepy. Can anyone give me some insight into her thought process or how to respond to this? Just to clarify, she does NOT have dementia. I guess the important thing is that her husband makes it to his doctors on time, and she has managed to do that, but my mind is just so blown by this whole surreal issue, it does worry me.

sp19690 Nov 2022
Weird about the alarm clock. Maybe wife is burnt out and doesn't want to deal with it another responsibility. Though her way if dealing with it is odd.

Why does husband have so many doctor appointments? It may be time to reevaluate all of them and reduce them.

A lot of times these doctors have the senior come to see them every 3 months just because it's money in their pockets for the office visits.

If he's not getting tests done every time or is not actively sick it may be time to start looking at and questioning the need for all these appointments. He's got dementia why does he need to see all these doctors? What are they treating him for?

Countrymouse Nov 2022
No no no no.

What she means is "I have enough problems, I don't want to talk about getting a new gadget or any other helpful suggestions for that matter, leave me alone."

What we would do, in the ideal world where our service really would be a reablement service - and not a safety-net crisis care provider of last resort with added reablement designed to allow our county authorities to claim they're meeting their statutory responsibilities, excuse the rant - is arrive at the gentleman's home in time to support him with getting up, washed, shaved if he wishes, dressed, medicated and breakfasted before escorting him to his appointment.

Would that be in any way feasible for you?

People have different ways of expressing the complete sentence of no. Yesterday I was with a lady who has been advised by Therapy (OT and physical) to use a standard wheeled Zimmer frame, and not only advised but given the correct one at the correct height for her, because the bariatric model she already had is too wide for her, not necessary for her size and weight, and won't fit through her doorways. She's not having it. Sympathizing with the OT who was trying to explain, I even gave the client a quick demonstration. She's still not having it. The standard frame is stored by her back door. She likes scraping her elbows and wrists, presumably. And having to back up sideways into her downstairs cloakroom.

Her granddaughter told me apologetically that the client threw the catalogue I gave her of frozen ready meals (delivered by security-checked drivers who will also put them in the freezer for you if you need help) in the recycling bin. She is living on soup and omelettes. She told me that what she'd really like is a gammon steak with croquette potatoes. "Let me get that catalogue out of the trash for you!" I said. "They do those! In different sized helpings!" Nope. She likes "proper food."

She left the gas hob on the other night, no harm done but not a habit we want her to develop. I suggested putting red dots on the 0 setting of the controls so that she can see at a glance that they're all off. "No, I'm all right thanks," she said. (She flat out refuses to learn to use her new microwave. She's destroyed two by placing soup cans in them and is convinced that technology is beyond her.) Well, her version of all right is that her granddaughter arrived late to check on her, smelled the gas, aired the house, rescued and scoured the saucepan, then rang the emergency helplines for health services and social services; so that the next morning the client's GP rang and the social worker rang and her granddaughter came round all while I was there for my 30 minute (ho ho ho) service review...

This lady has been with us for two weeks (it seems longer). On day one she couldn't stand up without assistance. She is now managing all of her activities of daily living independently and thriving on the attention of our team, the Therapists, the District Nurses, the social worker, her granddaughter; but she is doing this in her own way and so she will continue. Until she blows her house up, anyway.

The GP and social workers are circling before swooping in to do a formal mental capacity assessment. She will pass it easily. She is not demented, she was starved of company and attention and she is loving all this; and you only get to cite the gas incident as a concern if you have never in your life omitted to turn off an appliance.

Sorry to have hi-jacked, back to MIL. You mention that she's depressed, which would explain her insomnia much more satisfactorily than the lack of an alarm clock. Besides your kind support, does she have anyone else helping her?

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MACinCT Nov 2022
It looks like she has dementia and covering it up, called showtiming. She is struggling with old time technology that she would have learned as a kid. Notify her doctor of her concerns and ask for a referral for her to get tested. Her behavior or sitting up for several hours is not normal. Start working on getting mom to put you on the HIPPA form and when you take her in, ask her in front off the staff if she will allow you to talk after or before the exam.
Just as an aside, you should be setting up dad's appointment since you are the driver. You can start be calling each office to reschedule on your time. You do not have to accept the first appointment offering. My doing my mom's appointments allowed me to avoid rush hours and my workday

Grandma1954 Nov 2022
I know this is another step but...
On the morning of the appointment when YOU get up could you call MIL (or your husband could do this) and tell her that you will be there in "X" hours.
Figure out how much time she needs to get him ready and make sure that there is enough time for her to get him ready.
(I would also wonder if MIL has some cognitive impairment herself.)
Would a Holiday gift of an Alexa or other device like that be helpful. There would be nothing to "set".
What time would they get up on a "normal" day?
Can appointments be made for later if that is convenient for you?
freqflyer Nov 2022
I think Alexa or similar would eventually frighten a senior, as they would hear a voice but not find a person. Plus the senior would have to ask Alexa to remind them, and they may forget to do that.
JoAnn29 Nov 2022
I am with freqflyer here. If I was driving people around the appt times would be when it was convenient for me.

Really, for someone who does not understand how to do it, setting a phone alarm may not be easy. I agree, get one that is very simple like the old ones. Maybe you are going to need to be the alarm. Maybe its time for an Assisted living.

freqflyer Nov 2022
TinyAlien, easy solution. Have the doctor's office set the appointment for the afternoon.

TinyAlien Nov 2022
I just meant that she has never been formally diagnosed with dementia. She doesn't seem to have obvious memory problems like my FIL, but maybe she is developing dementia. I'm not really used to being around elderly people so I'm not 100% sure on what's normal ageing and what's not. But even if it is just depression/anxiety, if someone can't even agree with the statement "I should use an alarm clock for important appointments", then they really are in a very different world than most people, and a very sad world at that. She has a prescription for sleeping meds available but she won't use them because she feels like she has to keep an eye on him, and I've offered to write down instructions for an alarm clock, so I don't know what else to do to help her. I guess if that is what she truly wants to do, I should just leave it alone. But I feel like it's only a matter of time before she falls asleep and he misses an appointment. It just really hit me today that maybe she is far worse than I realized, either from dementia or mental illness or both, and that means that even more will be falling on my shoulders. :( That's why I joined this forum today.
againx100 Nov 2022
My mom originally passed the doctor's "memory test". I felt that test to be sorely lacking. As someone else stated, there's much more to it than just memory loss. My mom would get overwhelmed with making plans - something that a couple years before would not have been a problem at all. She would get really stressed when dealing with filling her weekly pill pack as well as angry at CVS all time. So, I agree with others that something is definitely going on here.
BarbBrooklyn Nov 2022
This is disordered thinking/behavior.

Looking back, one of the earliest signs that my mom was declining cognitively was her inability to cope with the simplest of technologies, like simple clocks and phones.

I'd be concerned.

NYDaughterInLaw Nov 2022
They BOTH have dementia! My goodness. That is absolutely not normal for someone to sit in the dark hours and hours before an appointment because they are incapable of using an alarm clock. Your mother-in-law (MIL) may be suffering from cognitive decline BECAUSE she is spending all her time around her husband who has dementia. Many studies have shown that people who spend most of their time around someone with dementia start to show signs of cognitive decline/dementia themselves.

Get her an old fashioned alarm clock - like the ones she would have used as a little girl. Or, show her the alarm clock on her phone and see if she can set it for a few minutes in the future.

Her situation is very, very sad. Please try to get her to socialize with healthy people her own age before it's too late. But it may be. I don't know. But it's worth a try to get her to recoup a little bit of cognitive functioning.

vegaslady Nov 2022
And what about this behavior makes you think she does NOT have dementia?

Fawnby Nov 2022
Dementia presents in different ways. She’s also depressed. Consider that she might be resistant to the alarm clock because she can’t learn to set it. Or can learn to set it but easily forgets and has to learn again. Or forgets what the knobs are for. She could be so anxious that she can’t sleep and “has” to stay awake because she doesn’t know any other way to meet expectations. There’s a lot going on but don’t rule out dementia. They can appear perfectly normal for a long time with only little odd “quirks” to give them away.

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