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MaryBX Asked July 2021

What can I do with a hospitalized PD patient?

When I went back to see Dad on Monday, after he was visited by the kids on Sunday, he was very tired and you can tell he's getting tired a lot this week. But he regained some strength. He was able to eat and drink completely on his own even though he needed help with the gesture. He needs the mask a little less and has switched to smaller clamps during the day and he has his mask at night.


I don't want to tire him out by talking too much, so I was thinking of reading to him that makes him happy, talking to him, telling him what's going on outside.


But what else could I do to avoid tiring him but to be able to stay just as long (so a few hours) a day because I know it soothes him and it makes him happy.


Thanks for the lovely answers you are going to bring me !
Mary 🪴

Midkid58 Jul 2021
If he wants to talk, then you do that. If he wants quiet, you do that. Basically let his behavior set the tone for yours.

My dad wanted me to sing to him. So, I did. Hours, sometimes. Sometimes he wanted to watch RoadRunner cartoons. Whatever.

We let him set the tone and we followed.

Countrymouse Jul 2021
Sit and read a book, knit, catch up on your memoirs, whatever. If it's your presence that soothes your father and makes him happy, but you don't want to tire him, then occupy yourself with a pastime that doesn't require him to participate.

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funkygrandma59 Jul 2021
First you must know that you just being there is enough for him. But if you feel you must keep him occupied(which is actually more for you than it is for him, I'm just saying)then your suggestions of reading to him and sharing your life with him are both great ideas. You can also share little videos that you've taken of his grandchildren playing or sending him a special message of love. You know how much he would enjoy that. You can also play him some of his favorite music, where he can just relax and listen.
Your dad needs to regain his strength now, so I would keep whatever you do, as simple as possible, so he can get the rest he needs to someday soon come home. Wishing you and your dad the best.

AlvaDeer Jul 2021
Bascially sit quietly at the bedside. I think none of us can imagine the sheet exhaustion of our loved ones. They attempt to waken simply to comfort US and that right now is a burden. Just be there and hold his hand. I still remember my brother trying so hard for my Aunt and her opening her eyes and saying in an almost pleading voice, "Dee, we don't have to talk". Meaning, please don't; I just want to rest. She knew he loved her. She loved him. But this journey is not always one that can be "accompanied". Let him rest. I think, if he wants it, reading aloud is lovely. I myself would love that. Or quite music.

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