I recently posted "Talk to my mother's dr! Ugh
If you have read my post you know that I called my mother's Dr because I have been seeing signs of dementia. I talk to the receptionist about my concerns & asked her to put a note in my mother's file for the Dr. The receptionist not only refused to do this, but when I asked her not to tell my mother that I called & it would start trouble the receptionist said, "oh well, you should not have called". I know all to well the HIPPA laws & I understand why it is in place. ( I did not asked for any information on my mother)!
Fortunately, for me things did worked out so far. As if the receptionist wanted to start a fight?!
In my post I got some great advice and some that well, I just leave aside.
I have noticed that there is a lot of us adult children who are taking care of LO who we may not get along with for what ever reason; maybe, from childhood or perhaps due to the illness. Whatever the case may be, we try to get them dx so, we have a better understanding of our LO & the disease.
But what do you do when you go to medical professionals who either refuses to listen to you, or they rat you out knowing, not knowing, or perhaps don't care if it creates more barriers for you to help your LO who can not help themselves?
Research shows that Alz/dementia causes injuries to the brain. I have read on this forum people describing the person having this disease as having a "broken brain", which by all accounts is true!
So that brings me to my point: HIPPA is put in place as a safety measure to protect people's privacy. But who protects the LO from themselves? I am in "no way" saying to disregard HIPPA, but what I am saying, why can't the medical professionals just simply look into our (adult childrens) concerns and keep it under raps? Why cause more problems for those who are involved? Why make things harder than they already are?
If we see a LO making big life decisions that not only hurt themselves but other family members, shouldn't we be able to stop them?
Or do we just let people with "broken brains" out into the world and hope for the best?
Great example: your LO is showing a decline mentally but refuses to listen to you and states that they are find, gets behind the wheel of a car and gets in a car accident and kills someone. Who's fault is it? Theirs for having a broken brain (which they have no control over), yours for not stepping in (because Doctors won't listen to you or you fear the aftermath of the Dr ratting you out), or the Drs?
Another example, a LO gets scammed out of their life savings due to having Alz/dementia (with no dx), but you tried to get them help before the scam happened, however, you were unsuccessful because the medical professionals won't write a note for the Dr, or the Dr just didn't feel like doing it, or out of fear of having the backlash of being ratted out by Dr's who took an "oath of duing no harm to their pts",
Are doctors really keeping their oath?
What do you think? What has been your experience on getting a LO dx?
*Please do not post about taking the keys away from LO, or about getting a POA's because in my state there are 3 ways of writing POA's & in my mother's case a Dr must sign and give a reason why my mother can no longer make her own decisions.
*Take into a count that the LO refuses to believe anything is wrong and/or is distrusting of caregiver and/or is just downright mean/hateful!
Sorry for being so long!