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Without the official diagnosis it seems very tough. Also what sort of steps should be taken now before the possibility of the official diagnosis come March. What's the best way to prepare for this? She is only 61.

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My Mom seems young for having dementia too, she was showing signs in her mid to late 60s but didn't go to the doctor for it until she was around 70, at that time they said it was Mild Cognitive Impairment. Her active lifestyle and intelligence had probably helped her disease progress stay somewhat slow, but this year, at 77 we finally got an official diagnosis, however, we were treating her accordingly all along without that official diagnosis. Even the Memory Care Home accepted her without an official diagnosis, and they re-evaluate every quarter to make sure she is suited to be there, and of course, she is. Her official diagnosis is Alzheimer's primary and some mixed small vessel disease. Knowing this was helpful, at least reassuring that we had been acting and treating appropriately.

Also important was setting up the legal documents so that her husband and then later, myself, could take care of her without issue. I have DPOA and have been asked to provide it multiple times, once it is provided, no problems.
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My mother lived with dementia for 5 or 6 years with no official diagnosis. Her doctor told her she had "Mild cognitive impairment" and never updated that. We cared for her knowing she had dementia and the nursing home did the same thing. With or without a diagnosis you address each symptom as it arises.

I am glad to hear that she will be evaluated in several weeks. Having that diagnosis won't magically change anything, but I think it will give you more confidence in her care. Between now and then you can begin educating yourself about dementia. The more you know, the easier it will be. It will also help in talking to the doctors if you already have some background knowledge.

My heart goes out to you and your mother. 61! All dementia is sad, but early-onset seems especially cruel to me.

Come back and post often, as questions occur to you.
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