Hi. I am just wondering what it means to be stabilized when receiving inpatient hospice care at a hospice facility.
I am very new to this -- my mom, who lives with my teen daughter and me, had refused to go to a doctor for 7 years, was unwell for most of the past year, was unable to eat for the past month, and finally let me take her to a doctor. She was sent to the hospital immediately, given a Stage 4 cancer diagnosis, metastasized, growths in her throat, lung, and liver, prognosis of "weeks, not months", and was admitted to a hospice facility in 4 days. She wants no treatment, nothing invasive, so that's that.
The hospice social worker told me that people do not stay there for weeks, definitely not months, and that the purpose of inpatient hospice is to stabilize my mom. It has only been 2.5 days in the hospice facility (yes, a week from initial diagnosis to this), so they have been working out a pain med schedule and seeing what allows her to swallow. She is feeling better -- she must have been in some awful pain -- and I am now starting to wonder if and when they will release her from inpatient and send her home. I want to prepare for that, if I can prepare for that at all, figure out her care at home, since I work full-time and I am the only person who will be caring for her. All I've heard is that if they are still changing her pain med schedule, she is not yet stabilized... but I imagine it will change until the end of her life, as her pain increases. And I know that home caregivers increase pain meds at home, so I am confused.
Anyone have someone in patient hospice and have them sent home? How well were they, what were the hallmarks of being ready to have hospice care in the home?