I am 68 years old. I am living in an adult care home facility with 5 other residents who have dementia/ Alzheimer's. I am cognitively stable and was placed here because I have a rapid terminal neurodegenerative disease requiring 24 hour care. I am wheelchair bound, need oxygen, incontinent, assist with ADL's, swallowing issues, dysphagia, bipap, respiratory issues. Did not want to go to nursing home. Staying at home was not an option. My husband too stressed and could not keep up with the upper level care that I needed even with home care 2 hours in AM and PM. My issue is I am finding it very difficult coping with the behavior issues and outbursts of some residents that occur on a daily basis. I don't have anyone to communicate with other than the staff. I find myself living in my room a lot. My husband looked at many other facilities with a senior home advisor and this was the best. I don't know what to do. He feels guilty he can't provide the care I need, I am on a special diet and he can't provide that either. Would need 24 hour nursing care at home and house keeper and someone to make meals. Unhappy person now. I am a retired registered nurse.