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My Mother has been in a conv. home since sept. She has alzheimers. She lived with me for 9 years. I really have to force myself to go see her and do not go very often at all. I am the only child and took care of her myslef while working until I finally got some help. Which seemed to take forever. It wasn't until she set my patio on fire that her doctor realized the extent of her disease since she always seemed fine at her visits. Its like I have a panic attack before I go to see her and it takes all I have to go there. Everytime she "never" remembers when I was there. I call her often but she does not ever remember the calls. Of course, I feel guilty not going. Actually haven't been there since Jan. But I find myself becoming physcially ill at the thought of going to see. My home is now peacful. I do have a 19 yr old daughter, but unfortunately she refuses to go see her. Only on the holidays. Does anyone else have this problem?

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Mia I too find myself hesitant when I go see my mom. Frankly sometimes I just flat out don't want to go. She's in her own home with a care-giver 12 hours a day. My sister and her family live there with her, (16 years they've been there).

She had a stroke last October and is bedridden. She is in the beginning stages of Dem/Alz and now thinks people are stealing from her.

I have my own place and she will call me and call me, and call me several times during the day so finally I go over(it's a long story) but most times when I get to her front door I start having the feelings of depression. Then when I get to her room, my whole body just seems like it wants to give out. But then she starts asking me to do this and that, and this, and that and I forget to breathe and I forget everything else, cause I don't have time.

Yes it is understandable how you feel like that but you must remember that the care takers at your moms facility need to know that your mom has someone so they will treat her with dignity and respect. If they think no one will come, no one gives a darn I wouldn't want to think how they would treat her.

I may say the total opposite of what others may say to you but I say suck it all in, and get over there to see your mom. Even if you can't stay long, go! Sometimes stay a while, and sometimes a little. That way the staff never knows what to expect. Keep them guessing but go see your mom. It's OK if your 19 yr old doesn't want to go, my 21 yr old doesn't like going with me either, can't really take her that way. I understand and don't force him.

Oh here's something else that might work prior to going to visiting your mom ----V-O-D-K-A!!!! :):):):):)
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I would go, oh, once a week. My mother didn't really even know where she was, and her speech was kind of garbled. I mean, she knew who I was and could speak clearly, but couldn't answer questions. "So what did you have for lunch today, Mom?" and she would start talking about her sister who was driving to Peoria for a church thing. She always seemed happy, though. I would check out her room to make sure her clothes and spare shoes were there, no one took her tv or stuffed animals. I would bring a magazine, like a nature magazine, cat magazine, or fashion magazine and we would look at the pictures together. I would stay half an hour or so, and then say "I will see you soon" and nip out. Walk to my car free free free as a bird! I did my duty, and I did go faithfully once a week, for a half hour....Sometimes I would stop at the Dollar Tree and buy a dozen little stuffed fuzzy animals, little bears and dogs and such, bring them and pass them out to her table mates in the day room. Mom loved her stuffed animals and thought they were real, try to feed them and would talk to them. They unfortunately always disappeared, so I would replenish with a cheapie little stuffed critter from the dollar store. People there loved to hold and stroke them, it gave them comfort, I think.
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When you sacrifice decades of your life doing and giving to parents who are capable but selfishly enmesh their life with yours, there comes a point when you realize your own life has passed you by. Then your parent(s) age, continue to be self centered and continue to make your life miserable, which effects your spouse, your grown childten, not to mention killing off all your own hope's and dreams for your own life. So, why do we feel guilty about anything at this point? Because this unwarranted guilt is from a lifetime of giving and caretaking, making us feel we have to dutifully suffer till we escorts them to their grave. Just because this person is our parent does not mean we have to spend our adult lives dedicated to them. A truly unselfish parent would release you with love. We were born through them but we dont owe our life's to them. Yes, they did provide and care for us when we were children. They are obligated to that by law. I get soo irratated when people say to my mother.. "you took care of her when she was little, now it's her turn to take care of you" Let's examine that statement. First of all, it's ignorant for someone to make that statement. In my case, my mother makes herself out to be so angelic when she tells everyone, "Ohh, I feel badly she takes care of me." Thats a flat out lie. She says that to elicit some kind of compliment to her, telling her she deserves it. Her sense of entitlement has me running ragged and has her lifting her feet as she sits in her bedroom chair while I'm vacuuming and cleaning her room.
With emotionally abusing, self-entitled guilt producing parents, we have very minimal obligations to them, eg: safety, food etc. Those of us with these types of parents will most likely take the severly damaging repercussions of our parents selfishness to our own graves... and here I am, with my miserable, unappreciative, self entitled narcissist mother living with me and complaining how she hates it, tho every need and desire of hers is met. My grown childen don't come to my home as her only interest in them is how they make her feel... my husband endures my daily complaining about her. If she thinks we're both out, like when my husband is walking the dogs and I'm in the back yard and she didnt see me... she gets all pissed off that we left her alone. Why? Because her driving privileges were take by her doctor and she''s angry staying home. Everywhere I've taken her for social activites she refuses cause at 87 she doesnt want to be with "those old people".
Tell me exactly why I "should" feel guilty if I am caring less about her and more about my emotional preservation, my children and my marriage? For those of you in my shoes... think about your life of unwarranted guilt. Our parent(s) instilled the "guilt button" in us and we push it ourselves. My kids hate my suffering, They tell me, "Enough with the BS guilt. Go live your life, mom!"
That's my message to those of you who relate. God bless you and me with the couage to take care of OUR needs and start living!
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Yes, I have the same problem. My mother is in a nursing home and has been there for two years. I visit her every Sunday for a couple of hours, but have to force myself into going. I feel physically ill every Sunday morning and would rather do anything than go. What keeps me going is the Bible commandment, "Honor thy Father and thy Mother". I pray for strength before I go and somehow I always get through it.
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Some posters here lack compassion often times because they are overstressed from their own caregiving situation. It is called compassion fatigue.
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I take Xanax before I visit with my 91 year old mother. Ask your doctor for a script. He or she will understand.

Yes, I want my life back too. I hate it and I hate her. But what are you going to do? These old people need to be looked after. It's the right thing to do.

I've found her dementia easier to deal with than her original personality. I tell her lies and they seem to satisfy her better than reality. Then she forgets and we move on to some other distraction.
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Thanks Maggiesue,
I know what you mean. I hate it and her too. Which makes me feel even more guilty. I gave up 9 years of my life taking care of her, I didn't go anywhere except work and errands after my Dad passed away, and now I finally have it back. I am the only child so she moved in with me. When I do go see her I get constant calls she wants to come home, etc. It makes it even worse. My daughter even went 8 hrs away to college to get away from her before she went into the convalescent home. Now my daughter is back home and going to school near by. I am enjoying spending time alone with her, that is time we never had growing up becuase my Mom was ALWAYS there. But, the guilt is incredible. I feel damned if I do and damed if I don't.
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Bless you, dear. It is completely normal to have all of these feelings. It does not mean you are not strong. It is simply a loving heart reacting to the tragedy of this disease. Do what you can. Don’t do what you can’t do. Make sure Mom has her hair and nails done. Fresh flowers. Cookies. Comfortable socks and shoes that are secure to walk n and don’t slip off. Sanitary toothbrush and hairbrush. Pretty blanket on the bed. Keep in touch with the staff. When you do visit, keep it short. 5 or 10 minutes. Bring someone with you. You can oversee her care without necessarily being there. Remember, each day we have is a gift. Use it wisely.
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Mia, first of all - DON"T feel guilty.. you have to do what you have to do - what's right for you and for your family. I just got back from visiting my dad - I dread going each week. I need to go more often, but I cannot and will not go every day. He's critical and it's just not worth my time n effort. I went today to pay his March bill - private pay... and he saw me with a receipt... WHAT's THAT? he questions me and I just say, OH It's a receipt and talk about something else. He doesn't care nor understand where his money is going... It's a sad situation. I visit alone b/c he is so ugly with company... very few of family come see him..

Tina, just hang in there. Again, YOU HAVE TO DO WHAT YOU HAVE TO DO.. don't feel guilty about it..

I am preaching to myself.. I question my decision. I wonder if they are treating him right.. I wonder what his brother thinks.. I wonder what my brother (whom I never hear from) thinks... and then I don't care... it's a roller coaster of emotions... But I drag myself there to the nursing home outta duty and love.
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My mom is undergoing end-stage Alzheimer's and I have to do everything for her including manage her bowels. If she does not go after a few days I get very anxious because she can easily become impacted. It sounds sad but the center of my life is her bowels and keeping her clean and it's a struggle just to get her to brush her teeth. I think you made a very wise choice getting her in a nursing home because life is quite miserable for me. I have to watch her deteriorate more and more and there is nothing I can do about it. It is very depressing. Since she requires 24/7 care I sacrificed my entire life for her including job. Everyday I wonder if she's going to fall (I had to buy a hoyer lift) or catch pneumonia from a cold (very prone). So consider yourself lucky she is in a nursing home. You can't change the course of Alzheimer's. You forged your own life. Live it. I'm so close to my mom I could not put her in a nursing home but you can see the sacrifice this has done--I sacrificed myself for her entirely. The saddest thing after years of this I've grown so attached to my mom when she dies I will not be able to cope and may even succumb from the stress of it. So think about all of these things and take it with all seriousness.  Cargiving is a living hell and you get NO HELP from the government.  Nobody.  PS: I have two brothers. They are of no use. And I'm sure all they will care about is fighting over the estate while they live their merry lives while I am her sole caregiver: They have no concept what I go through everyday and think all of this care is free but at enormous cost to my life, finances and adversely affects even my retirement (I won't be able to).
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