My 82-year-old mom has had subtle memory loss for many years, but her primary care declared she didn't have dementia after a brief exam several years ago, so she thinks she is fine and dandy. Honestly, sometimes I don't know if she is just mentally ill, has dementia or both. But she is definitely not normal. Dad died in early September, and starting the day he died, I have seen some disturbing behavior from her. She switches between her usual personality to this person who is unfamiliar, and it feels "dark". I call her "The other mother" when she becomes like this. The expression on her face becomes blank and expressionless but dark at the same time. She is more negative than normal, and she is manipulative and dishonest. On our way home from hospice the day my father died, she smirked and said "The house is all mine now. I can do whatever I want." It was very traumatizing to me. My entire life she has seemed to have OCD. It takes over 30 minutes to leave the house. She has to check lights, the oven, the curling iron, ect over and over again. Go to the toilet multiple times. When she loads the dishwasher, she will rearrange the dishes for hours on end. That behavior has always existed, and my parents used to fight about it. She creates scenarios that aren't real but once she has voiced them, she seems to believe that it is truth. For example: when at the checkout counter in the doctor's office booking the next appointment, she will wonder out loud if my brother can take her instead of me and state that she feels guilty about all the time off I am taking. She then begins creating a scenario, out loud, in which she assumes he might or might not be busy, what he will be doing, what the weather will be like and so forth. Within 5 minutes this one-sided conversation with herself will have become reality and she will proceed to plan her activities around it. She will book the appointment based on the activities she just imagined he would need to plan around and expect him to show up on that day of, without ever having talked to him. Another example, at lunch yesterday she noted that our waiter was not dressed in drag like he was when we were there at Christmas. And she again had a one-sided conversation, creating a scenario in which the waiter was reprimanded by the management and told to be more conservative if he wanted to remain employed. She ended her monologue with stating "Good thing he listened and decided to clean up his act."She will remain like this, creating her own alternate reality sometimes for days and then suddenly be herself again. She can be very sweet and pleasant when she isn't "The Other Mother". Is this how dementia acts? Or does it sound like something else?I saw a YouTube video called "A walk with Alzheimer's" and it was VERY VERY familiar. Just as the main character in the video becomes frightened of a puddle because she thinks it is a hole in the ground, my mother will react similarly at times when there is no real threat. There is one particular stretch of road that we drive, and every time we approach a specific bridge she starts gasping and shouting "Watch out!!! Be careful!!! ", but this bridge is nothing out of the ordinary and we drive over many others just like it. It isn't large, it has low steel guardrails, it isn't raised in the air, and it simply runs across a culvert between two pastures. I don't know what it is about that stretch of road that triggers her. The speed limit is only 35 mph in that area and there is usually no other traffic. It completely baffles me and her behavior is unnerving. She thinks there is nothing wrong with her. I am not sure how to handle this.The biggest question I have is in regard to the sudden change in her expression and sudden behavior change that comes over her without warning. Do dementia and/or Alzheimer's patients do this?
Primary care doctors aren't at all qualified to diagnose dementia. They ask you why you're there and how it's going at home and if the answers sound reasonable they're like ok you're fine. They don't even ask the same question twice, which in my mom would produce two totally different answers since she's making them up.
Cutting to the chase you can't force someone in the early stages of dementia (or the lifelong stages of mental illness) to do anything differently unless they are declared legally incompetent AND you have legal powers of attorney. You can keep an eye on things, you can try to get your own head in order regarding the way she's always been and the new ways she's acting. But for now that's it, and it's plenty. I'm sorry about the loss of your dad.
Hearing. This can be a big factor. Can't hear the conversation - so simply make it up! (Then the imagined conversation gets laid down as memory).
Eyesight too .. that bridge.. hmm
Anyway, in our case, mom's "dementia" is definitely variable. Up and down. I'm actually afraid the autopsy won't give us any answers, but I'll order one anyway. When she passes in 15 or 20 years. She's in great shape physically. I joke that I'll die before she does, but I kind of believe I really will.
My question for you is whether you live with her or not? I think it is time, whether you live with her or she lives with you, to consider whether or not this should continue on.
Grief can have a strange effect on some people especially ones who are already struggling with untreated mental health disorders.
It does sound, however, like a mental health disorder. Your mum having clear and obvious OCD throughout her life points to her having longstanding mental issues. The building scenarios, which she then believes, seems very specific and does sound like a break with reality.
One of the main symptoms of most dementias is forgetfulness. Although your mum does forget that she hasn't relayed the information from her invented scenarios, you haven't told us of any other memory issues. This is just one of the reasons this sounds more like a mental health problem.
I agree that the loss of her husband could have exacerbated an existing mental health disorder. If treatment isn't sought, then this is unlikely to clear up on its own. I say this because of the seeming break with reality, which could be a symptom of quite a bad MH problem, requiring antipsychotic meds.
The blankness and change of personality is seen in different types of dementias but, as I said, they are usually accompanied by significant loss of memory and cognitive decline.
I think you should ask to speak with your mum's doctor before taking her for an appointment, so you can detail these odd behaviours (including the OCD and any other MH symptoms that preceded this change). If your mum has had a psychotic break, she needs medical attention asap.
If your mum has dementia, then it's best to have it diagnosed sooner rather than later.
But (also just my opinion) no harm & possible much to gain by arranging an up to date cognitive screening test.
Could start with a typical checkup with local Doctor + a medication review & take it from there.