I had 2 friends, 1 female and a juvenile diabetic. She was on Peritoneal dialysis. This is the last ditch effort when reg dialysis no longer works. When she went on Hospice she could not take it with her. She passed 2 wks later at age 63. My male friend, type 2 diabetic, was on reg dialysis and just could not do it anymore and chose hospice. He was gone in a week at 70.
Ask for Hospice. They can give you a good idea as to what will happen. The Hospice Team will help you and support you as well as provide supplies and equipment that you may need.
I am so sorry for your situation. My husband died from renal failure after being on dialysis for a year. There is a more predictable time frame in that situation. What has his nephrologist said? And I absolutely agree with the recommendations to contact hospice. You do not need an order for them to come out and do an evaluation. They will take it from there if it is appropriate, which it sounds like it is.
I’m sorry for your situation. Please ask your husband’s doctor for an explanation of what you can expect his future to look like and when hospice services may be helpful
Ask his urologist what the hell is going on? That is who knows the "Time Frame."
How can he have Stage 5 kidney failure and NOT be on dialysis? He must have refused it. Being 65 is still pretty young. But dialysis is a horrible experience, so I can see someone refusing it.
Of course your heart is broken, and I'm sorry to tell you it will likely be worse before it gets better. I had to watch my husband die from Stage 4 liver cancer, it was brutal. I've been single 24 years since. I had to work at that time too, before the FMLA was passed.
This might be a better question for your husbands doctor and or hospice as it may very well be time to bring them on board. I'm sorry that you're having to go through this with your husband who in reality is far too young to be in such bad shape.
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The Hospice Team will help you and support you as well as provide supplies and equipment that you may need.
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How can he have Stage 5 kidney failure and NOT be on dialysis? He must have refused it. Being 65 is still pretty young. But dialysis is a horrible experience, so I can see someone refusing it.
Of course your heart is broken, and I'm sorry to tell you it will likely be worse before it gets better. I had to watch my husband die from Stage 4 liver cancer, it was brutal. I've been single 24 years since. I had to work at that time too, before the FMLA was passed.
I wish you the strength to get through this.
I'm sorry that you're having to go through this with your husband who in reality is far too young to be in such bad shape.