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BreeFitz80 Asked January 2022

My stepfather won't let my mother have a life and ruins my day if she tries to get away while I caretake for him.

I have many questions these days, however this question is about my stepfather "with dementia", pertaining to my mother. Today started off great because his son and his sons best friend came down early this afternoon to put together the new TV they bought us all for Christmas together. My mom had an actual day to herself to go do what she loves and headed off. My stepbrother and friend took him out to see a movie....etc.
They came home and watched the end of a football game then they had to head back home an hour away. I'm still here to be with him and watch out for him....etc, and my mother is still out at her auction she likes to go to. I called her up to let her know that my stepbrother had left, and she explained to me how much longer she expected to be at the auction. I informed Joe (my stepfather) made sure he had all he needed and had a channel on TV he liked. I proceeded to my room and fell asleep for about 30 min. and then was awoken to Joe asking and apologizing but would I call my mother to see where she was. I must have told him 100 times where she was, however it didn't matter in his mind of course. He was saying things like he was going to have his sister come and get him (which isn't possible), he then proceeded to ask me if she sounded like she had been drinking which she doesn't even do. He also accused her of being with an old boyfriend he said she met up with I again said no Joe she's at the auction and she will be home very soon. He wouldn't sit down to watch TV or anything else other than obsess over when she would be home. He kept having me call her. He was talking so much nonsense that was offensive to me about my mother. I understand it's his brain and I don't get upset with him but I do get frustrated and in a bad mood. Ok, so she gets home and his whole demeanor like she had never been gone.....after what he just put me through! My poor mother isn't allowed to have a life which is not ok. Anyone else with these issues and any suggestions?

RedVanAnnie Jan 2022
Your step father's obsession and anxiety over your mother's absence is exaggerated by his dementia. He is more insecure than ever without the familiarity of her presence. Drinking? Old boyfriend? Those are common insecurities--fears that your spouse might leave you.
Yes, his neediness and demands will "ruin your day," but that's a lot of what caretaking involves. It sounds like you do not have to do this every day, so do your best to accept that when it's "your turn," your time and energy will be very much taken up by your stepfather's needs.

Llamalover47 Jan 2022
BreeFitz80: Imho, your stepfather may have been exhibiting signs of sundowning since he has dementia. Speak with his physician about medication(s) that can assist with this.

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gofin4 Jan 2022
Wow! You sure have made this situation all about you! He has dementia so deal with it.If you arent willing to accept the situation as it is you should not be his caregiver.
partyof1 Jan 2022
" My poor mother isn't allowed to have a life which is not ok." And asked for suggestions to deal with it. The OP went through the whole day's scenario to give a sampling of the day's events and he was content throughout the whole day until? The OP asked why this might have been and for suggestions to better handle it.

Seems like a fair enough question to me.
my2cents Jan 2022
You can't fix the broken brain. His normalcy is your mom with him 24/7 and waiting on him. When she's out of the house, there's that piece of the brain telling him something isn't right. Allow her more time out of the house and maybe he will get used to that being more normal - worth a try. Redirection of the conversation sometimes works. It's very tiring for those in the conversation with him, but it's part of the disease. Maybe ask the son(s) to come more often to give mom a day out on more regular basis - he seems to enjoy their company.

XenaJada Jan 2022
Yes, my aunt was convinced her deceased husband was still alive and had left her for another woman. She later accused her niece (who she adored before her alzheimers), of being “the mistress.” It was horrible!

The niece didn’t visit for a couple of weeks and the delusion was forgotten.

Riley2166 Jan 2022
Sounds like he has dementia and is very controlling. I would sit him down and read the riot act and set very firm boundaries - YOU, not him, and you mother will decide what to do and where to do - not him. You simply stand firm and tell him if he does not stop there will be serious consequences......like he will be placed. You do what you have to do to stop him from attempting to control things and do what you want with her. Stand tough.
Katefalc Jan 2022
You NEVER argue with a dementia patient. This is very bad advice. He could become violent and lash out. His brain is broken. He may have no control over his actions and someone could get hurt. He needs a psychiatric evaluation and you need professional help to deal with this issue. Best of luck. There are meds for this problem. 💜
BlueEyedGirl94 Jan 2022
Also something else I learned about here - "Shadowing" is another symptom or part of dementia. Where they fixate on a particular caregiver. It can manifest in a number of ways - from following them around and mimicking them to getting anxious and not being able to deal with that caregiver leaving them. We deal with this with my grandmother when my mom leaves her. My grandmother for the most part is fairly independent as far as her own physical care - she can take care of her own hands own care - but needs mom around to make sure she does it, makes sure she gets places, etc. So she can be left on her own and mom can leave her for extended periods of time as long as someone checks in on her. But it becomes a big thing with my grandmother calling her constantly, treating MOM like she is a teenager going out with friends wanting to know who she is with, how long she will be gone, what time she will be home etc. My grandmother is 95 years old so it drives my mom crazy that she can't leave the house without an interrogation but a lot of it is driven by anxiety on my grandmother's part. And it can't be satisfied by one of us being there either. She can have any number of other people that she dearly loves by her side and still be asking where my mom is constantly.

PeggySue2020 Jan 2022
Burnt,

The kids are all ready to do this. However, my mother isn't. At the end, it was her decision only--they haven't given anyone POA nor do they have dementia or really chronic illness.

BarbBrooklyn Jan 2022
I think one thing you need to know about is "sundowning". This refers to worsening behavior as the day draws to a close. It sounds like this was the case with step-dad today.

Meds can help enormously with the agitation and anxiety that is often present in dementia.

AlvaDeer Jan 2022
Your stepfather has dementia. All of this behavior can be explained by this simple phrase. It is the dementia speaking. It makes no sense to someone of sound mind, but every sense to him. I am so glad that your Mom had a bit of time off to do something that she loves. I am certain, living with him, that she is well aware his memory isn't that great. I am certain she understands what you went through, but again so glad you could give her some relief, and the guys with their TV as well. Good on you!
My only suggest is that you get a good read up on dementia, so that you will know that this will be typical behavior for stepdad in future, or that similar incidents are bound to happen. If you find it too taxing, too disturbing, you may not be able to take your place at the helm when your Mom needs just a little time off. But I hope you will. I understand how hard it must be, but given THAT, she has to do it all the time.
The thing about his asking if she had gone out drinking is kind of cute; at least he doesn't think she has another boyfriend (tho that TOO may come!). Best wishes of the new year.
The time may be drawing closer when your Mom can no longer care for him alone at home. And where others cannot care for him in her absence. So time here is limited and is precious. Best of luck going forward.

JoAnn29 Jan 2022
This was my father. Mom waited on him hand and foot. Even drew his bath water. I loved him but told my brothers that if Mom went first I was not caring for Dad.

ElizabethY Jan 2022
Hi Bree, Your stepdad has reached the point in his dementia where his short term memory is gone--He's not going to be able to retain new information beyond a few minutes. Because he has no recent memories to make sense of what's currently going on, your mom is his stable reference point and he gets distressed when she's not there. No matter how many times you tell him he won't be able to remember that she's out. He may have started to be lost in time and is accessing memories of the past, even about incidents that were between other people, but the disease causes him to use that memory to 'fill in the blanks' as to what is occurring right now. The main thing to remember is that your stepdad is having more losses than just his memory and this isn't deliberate. Everything he's thinking is real to him.
This really helped me understand what was going on with my mom who has Alzheimer's dementia--it applies to many of the other dementias as well. http://www.dementiacarestrategies.com/12_pt_Understanding_the_Dementia_Experience.pdf
You both might want to check out the Alzheimer's spouse & caregiver forum--like this forum, there are a lot of kind people there who have seen a lot, and have excellent advice and are happy to read a caregiving rant. There's a lot of threads about how to cope with behaviors and caregiving demands, and the choices to make as a caregiver. One option for stepdad might be to find a local adult daycare or have an aide come in to either take your dad out, or do some of the housework so your mom can have a break. Another option might be to think about a dementia focused assisted living or group home, or memory care--lots of resources at the website...
https://www.alzconnected.org/discussion.aspx
Here's a good list of the stages & behaviors seen in Alzheimer's, but they can be common with other dementias too--not sure which one your stepdad has...you may recognize some of these
https://tamcummings.com/stages-of-dementia/
Teepa Snow has excellent videos on the changes that people with dementia experience.
https://www.youtube.com/watch?v=u5QMeQpkPhA
https://www.youtube.com/playlist?list=PL2E2lPBsUeBjA1Utglo8q6yANAijEf8cX
https://www.youtube.com/watch?v=6cZTgG6kDjs
Good luck,

lealonnie1 Jan 2022
When mom can no longer deal with her DHs dementia issues, then he needs to be placed in a Memory Care Assisted Living facility. While he's living at home, you and your mom need to understand what dementia behaviors look and sound like so you can respond appropriately. Yes, these behaviors are extremely annoying but they'll only get worse as the disease progresses. This is why Memory Care ALs are popping up like flowers on every street corner in America. Because family members reach a point where they can't handle it anymore. If you are at that point now, you may want to move out and into your own place. If you're there to help your mom out, then learn all you can about dementia and how to care for your stepdad; watch Teepa Snow videos on YouTube and pick up a copy of The 36 Hour Day as a start. It's a great reference guide to answer your questions as they crop up. Go to Alzheimers.org and read too; they also have an 800 number to call to speak to a trained counselor about the behaviors and get some guidance.

It's good that your mom is able to get out to auctions that she loves and get away from the grind of the endless questions and repetitive behaviors that go along with dementia. It's a frustrating and difficult situation for both of you, I know, so I hope you can figure out a few techniques to deal with Joe a bit better. Definitely do NOT call your mom when he asks you to; the key is to keep him distracted from the constant questions and requests he makes of you, and lead him onto another diversion like a TV show, a snack or sorting nuts & bolts you put out for him on the table.

Wishing you the best of luck!

AnnReid Jan 2022
If you know that what you say to him doesn’t matter, or even more important, change his behavior, then why bother to do it?

You are saying that what he says doesn’t “bother” you, but then saying that what he says is “offensive” to you. If so, that’s on you, not on him. It’s a waste of your time to be frustrated and in a bad mood

His behavior is the way people with dementia talk and think and act.

Your job is to learn to accept what he does and says as products of a broken brain, and not related to what you do or how you feel.

BurntCaregiver Jan 2022
If you and your mother are planning to continue being your step-father's caregivers at home, you will both have to learn how to stay in control of the situation.
There can be no more "he kept having me call her". The demented elder cannot be allowed to be in charge of a situation anymore. You do not call her. You do not give his delusions or the asinine rambling nonsense that accompanies them any validation whatsoever. You answer him a few times that she went out and will be back soon. Then completely ignore any line of questioning about it. If he keeps repeating over and over again and starts up with the outlandish nonsense about her drinking or being out with an old boyfriend, tell him that you've already told him where she was and do not ask you again. If you have to repeat this a hundred times over, do it but do not call her again for him.
If you're planning on being a caregiver for an elderly person especially one with dementia, you're going to have to learn how to ignore with love when it is safe to do so. You're going to have to learn how to take control of a situation and remain in control of it.
This is often hard to do if the elder is a parent or a parent figure to you. You will sometimes have to be a bit stern with him.

PeggySue2020 Jan 2022
My father, 89, is starting to do this to my mother, 84. She just wanted to go down to LA for one day to see her sisters, all about as old as she is. A grandson agreed to stay over as the caregiver (he doesn't have declining ADLs or dementia) and all the sudden he's bellowing Nabout how EVERYONE WANTS HIM TO DIE without the Mommy being there personally.

But, see, she enabled this too by saying yes. Yes to all these annoying 1970s behaviors that he once had, like yelling upstairs for Mom to get him supper in his recliner. In the 1980s, she almost left him, but did not. Now she is just resigned to helping.
BurntCaregiver Jan 2022
PeggySue,

If your father doesn't have declining ADL's or dementia as you're saying, then why is anyone paying him any attention whatsoever?
Is seems to me what you and your family have on your hands is a Senior Brat. The grandson's response to this behavior and everyone else's should be:

'Shut the hell up. Nobody cares.'

This has been my Go-To response in many caregiving situations. Not all of course, but many. The ones where an elder was still capable and possessing independence but wanted to be a senior brat or was instigating because they want someone to fight with. You, your mother, and your family should try this response sometime. It works.

Then completely ignore him. Your mother needs to start ignoring him too. Let him get his own food and help himself if he's still able to.

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