First of all, my mom refuses to go to a nursing home, she says "I won't go and nobody can make me". I came here last March, she had fallen several times and wasn't eating. She's 96 and her doctor said she's developing Alzheimer's/dementia. I was staying with her for awhile, but then she started having trouble walking, now she can't get around by herself -- her physical therapy says she has the muscle strength but she has a fear of falling and just won't even try to walk unless somebody is helping her. She's been approved for Medicaid Waiver for homecare but they only approved her for 31 hours per week. After calling a dozen home care agencies, I found one with some availability, but they have trouble covering more than a few hours per week. They tried sending someone different each day for 2 hours per day 4 days per week, but that was too difficult for her and didn't do me much good. We finally found a caregiver she likes who can only come for several hours every Tuesday.
I lost my job and my apartment over this, there is nobody else I can get to help. I was able to get approved to be paid but my mom only gets 31 hours, so if the caregiver comes for 3 hours, that only leaves 28 hours that I can get paid for, yet I have to be here 24/7. According to the Agency on Aging, with her condition, she can't be left alone period, not even for a short time.
There is a job coming up that I would like to apply for, but right now, there is no such thing as a caregiver who can cover all those hours, they just want to come for a couple hours to give me a break.
My mom's lawyer had her sign papers back in 2008 when her mind was still good, updating her will, giving me POA and there's something about where she sold me her house for $1 then retained it as a life estate.
We know that if my mom does go the the Nursing Home, she will be on Medicaid right from the start. I would then have to move out of the house since I have no job and Medicaid would require that I pay rent, but I wouldn't be able to pay rent, so the house would sit empty and I would be homeless. Then after she dies, Medicaid Estate Recovery will force the sale of the home. Since it's just a small house and isn't worth much, it isn't very likely I would get anything.
Would there be a way I could take a job now and leave my mom alone while I'm at work? We talked to my mom about it and she said she won't go to the the nursing home just so I can take a job. She said it's her house and she has the right to remain in it until she dies. I inquired about private caregivers and can't find any in the area.
The closest living relative is my mom's brother in Ohio who hasn't spoken to either of us in 30 years. Then I have a Cousin in Kansas who hasn't been here in over a year. Nobody has even been here to visit my mom since I came last March. The home care agency is really all we have. The Agency on Aging has really been no help other than to get my mom approved for Medicaid Waiver.
Also my mom will eat fairly well if I cook, but she refuses to eat her home delivered meals.
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