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ksordh Asked August 2017

How many of your dementia loved ones have dealt with shingles and antiviral meds which forced them into a nursing home after the illness?

Mom developed shingles over night a week ago last Sun/Monday. August 7, 2017, I snapped a picture and texted to her dr. He immediately knew it was shingles and called in an antiviral. We also thought there was a uti and he started her on an antibiotic after we saw him in person the next day. Mom has been shaking, despondent, unable to walk, toilet, feed herself without the help of the aids in the assisted living memory care. She went from walking with a rolling walker to a wheelchair over night. After a week on the meds we went for a followup to see that she was healing. She is and we are now switching to topical antibiotics and another oral antibiotic to keep her from Staph as the shingles are on her buttocks. The problem is her being able to not care for herself in any way. He said there is a 50/50 chance she won't return to her prior cognitive/physical status and might have to be moved to a nursing home if she doesn't. We've been at AL Memory Care since March, 2017. She has gone fully demented before while having a uti but recovered all 3 times. This seems different and worse. Any hope of her "returning"?

ksordh Aug 2017
She has had problems with 2 antibiotics in her past, Cedfinir and Levaquin. He specifically put her on one for a mild uti (which grew no cultures), Macrobid and finished up Tuesday morning. In 48 hours she is back to feeding herself so maybe the new antibiotic (bactrim)to protect from Staph won't affect her recovery. Thank you all for the encouragement.

Midkid58 Aug 2017
Mom had shingles for 2 weeks before she noticed. She is bent into a C-curve and her breasts hang down to her waist--covering the shingles blisters. No one was helping her bathe and she never looks at herself in the mirror. By the time brother found the blisters, she was in agony and beyond the help of the antivirals.

She did take an antibiotic as she had scratched her way to an infection, she was absolutely miserable for months and months. I would say that there was a definite cognitive decline about that time. She stopped driving as she was on heavy pain meds--and she never went back.

Sounds like your poor mom just had a "perfect storm" of bad health. But have her evaluated and hope that when she recovers, she comes back to you. Any serious illness in the elderly can cause huge cognitive changes.

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JoAnn29 Aug 2017
It could be the antibiotic. My Mom is allergic to penicillin. The antibiotic they gave her caused the same reaction and it was because it had pennicillin in it. Ask the doctor to change her antbiotic. Mr Moms friend had the same problem. Ask to have her on a probiotic too. Yeast infections occur with antibiotics. A cranberry pill may help too. Mom is still in these and hasn't had a UTI since Nov.

lizzywho61 Aug 2017
Ksordh,
I am sorry I can't be of more help.

UTIs can be tricky and not test positive until some time after the different behaviors appear.

One round of antibiotics don't always clear them.

Any other med changes might need to be reviewed. Sometimes meds they have been on for some time start to have undesirable results.

I understand your concern regarding the sudden decline.

Someone should come along to offer additional advice.

(((Hugs)))

ksordh Aug 2017
She isn't complaining of anything pain related, thankfully. Shingles are drying up and she is off the antivirals. I'm more concerned about her cognitive state and whether she'll return to the previous one.

lizzywho61 Aug 2017
Shingles on the buttocks can cause internal/rectal pain that is maddening.

If she is able to communicate you might ask her.

Preparation H suppositories did offer some relief in my experience. That was used on the advice of the pharmacist.

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