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anonymous262233 Posted September 2018

Tinyblu - Overall... Success

I know so many well-intentioned folks on the forum told me to avoid moving Dad in with me like the plague, but I can honestly say... I'm SO happy with my decision.


It's NOT EASY, and I'm sure it will get harder as his condition continues to decline. I'm not opposed to moving him to a NH when it gets to the point where I absolutely can't manage his needs anymore, but things are... good... as can be expected.


1) Overall, my stress level has gone WAY down. I was spending SO much time going behind the AL staff and worrying about things that they SHOULD have been doing (helping with incontinence, plugging in his oxygen, reminding him of meals, etc.) Now that I'm managing all of that, we have a LOT less challenges.


2) Dad is happier and gaining weight (it helps that he likes the food and that I can be more on top of what he's eating)


3) Dad's VA disability now covers ALL of his expenses and then some. NO MORE SECOND JOB FOR ME!!!! 


I'm learning a lot. Dad has...interesting sleeping patterns (typical with dementia I think). I can now stop him before he takes off all of his clothes in the mornings leading to incontinence accidents (he wants so much to change his own clothes. We pick them out together)


4)... and I look forward to our morning coffee every morning and hearing the same story about 15 times. I'm getting moments that I won't be able to get back at the end.


 ... and the cutest thing so far... he has the freshest breath EVER. He forgets that he's brushed his teeth already and brushes them again. I don't correct him. There are worst things he could be repeating.


 Of course, I could melt down tomorrow over this little stressor or that little stressor, but this was right for my peace of mind, Dad's happiness and THE WALLET. It's not awful.

JoAnn29 Nov 2018
Barb, Yes, I would like to know how things are going. I tried to private message but there is no longer an option. So I posted a separate thread. Note, above says anonymous. Wondering if that means she left the group.

BarbBrooklyn Nov 2018
Tiny; hope all is well and that you had a nice holiday.

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BarbBrooklyn Sep 2018
That's great news, Tinyblu! Keep up the good work; I'm so glad it's working out!

freqflyer Sep 2018
Tinyblu, that is so great. You are lucky, your situation is probably one in hundreds where the dementia patient is working out so well living at home.

Do have a question, since you are working [yeah, down to one job now !!] is Dad ok being left at home, or is he back at senior day care?

polarbear Sep 2018
Good that the arrangement works out for you. For a lot of caregivers here, it usually doesn't and gets worse over time.

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