The good news is that I have gotten better. I feel little guilt that at 50 I want to be a daily part of my 11-year-old daughter's life (and not my 87-year-old stage 5 Parkinson's dad's life or my 84-year-old mom's complete martyr complex). Keeping in mind she was refusing the 24/7 in home care they DESPERATELY need, insisting their nighttime 12-hour care is enough and 2-3 spotty days per week. My mom has even refused the extra 4 hours of FREE care my dad is entitled to through the VA. But just when I think I’m out, I become wrecked with guilt when their night caregiver calls in sick but can’t get through to my parents because they can’t answer the phone. I sent 1 text to an alternate, but I refused to drive out there. They lose 45k per year on in home care (that’s not even ft) but refuse to move. Oh well...I guess. I've called the state. They said they couldn't do anything. My mom passed a cognitive test so that option is gone. I kind of want to just wash my hands even more than I have.
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Spend more time with your 11 year old daughter because it goes by so fast. You are right to refuse to drive out to your parents' place and stay the night because their caregiver called out sick. You don't have to let your parents' asinine stubbornness control your life.
They refuse to move to assisted living or to a more manageable housing option? Okay. A crisis will have to happen that will most likely result in both of them ending up in a nursing home permanently and against their will.
Unfortunately, too many of our senior 'loved ones' have to learn their lesson about being stubborn and unreasonable the hard way.
You did the best you could by them and now you have to take a step back and let the chips fall where they may.
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So it does end. My only advice is to try to enjoy your parents as much as you can, you are doing your best already. It will end, and do whatever you can now to help yourself psychologically, when the inevitable changes come. I wish you love and as much kindness as the world can give you.
The fact that your parents, moreso your mother wish to live the life they currently have is their decision, nothing to do with you. You cannot fix what is clearly broken with their thoughts processes.
If the caregiver is sick, you cannot be expected to fill in at short notice. It sounds as if your parents organised the care so they have to live with the shortcomings.
Regrettably the state/authorities will only intervene when there is a serious incident, a fall or the further deterioration of your father. You have done your best in difficult circumstances. Please look after yourself xx