My mom has been in and out of hospital, skilled she stayed at NH for 3 years, checked herself out, went home. She was found on floor in January 2025 barely conscious, and the journey begins. She is completely bedridden, dysphasia, feeding tube, fell and hit head so she has bleeding on brain. Before that, I was able to get POA. She suffered another brain bleed a week after original brain bleed. I had to make decision for feeding tube. She is now in nursing home, I’m the only one caring for her and brother, sisters and brothers are not helping. She wants to go back home now that I got Medicaid for her. Does Medicaid cover 24/7 care? I don’t want to make bad decision.
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Of course you feel bad, watching our loved ones lose their autonomy and health is a grievous process but, we have to do what is best for their needs in situations such as yours.
I would encourage you to lead with your head and not your heart, it will be the best for your mom.
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My cousin had in home for his Mom and they only covered 8 hrs. He had a business so he was flexable but does have busy times of the year where he had overtime. He was given a list of care agencies that took Medicaid and he had to call them to set up aides. Eventually he had to place his Mom.
Was Mom finally diagnoised with dementia? 8 years ago she was 68 so she is 76 now? I know that family can care for feeding tube after training but I read some states don't allow CNAs to. Medicaid in home only pays for CNAs. If skilled nursing is needed its Longterm care.
Your Mom needs to stay where she is. The Medicaid she is receiving is for Longterm care only. Medicaid in home has different criteria. Your Mom needs care that you are not going to be able to get. Thats 3 shifts of aides and weekends. The aides that work during the week don't work weekends. Do you want to be in charge coordinating all this? Maybe having to do some of the caring. Really, if your siblings are not willing to help, why should you give up your life. Its no longer what Mom wants, its what she needs.
You do not say much about her general condition other than that she is s/p two brain bleeds and has a feeding tube.
I think it must be clear to you that your mother is in need now of 24/7 care by several caretakers on each shift of care. And the answer as to whether Medicaid will do that in a home setting is "no".
I am very sorry. Your mom needs now to remain in facility and with good care from more than a few caretakers on each shift.
I wouldn't chance her going back home to fall to her demise the next time. Some people are just so dead set on remaining independent until it kills them. Truth be told, usually a family member is doing all of the heavy lifting to keep them aging in place. This family member is doing all the worrying, the organizing, the planning, driving to a fro medical appointments, laundry, cleaning, and the list goes on. So, this person is not independent at all.
IMO if you take her home you are making a bad decision, no Medicaid does not cover in home 24/7 care.
And no Medicaid does not pay for 24/7 care in anyone's home, so leave her where you know she's being taking care of 24/7 and is safe.
That is your role as her POA.
If Mom was at home and there was a gap in caregivers , calling out sick , no shows etc . then who would care for Mom ?
IMO Mom is where she needs to be in the nursing home . Mom wants to go home .
Mom’s 24/7 care needs are what have to be the priority now, not her wants .