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WalterDeemer Asked June 24, 2025

Wife discharged from hospice after eight months. How best to proceed?

Wife with severe dementia has been in skilled nursing facility for two years. Was just discharged from Hospice because no recent deterioration: no weight loss, PPS holding at 30% and still eating 50% of meals. Sleeping 16-18 hours/day. Would like to get her back on Hospice ASAP. Suggestions? (Have noticed she is slumping to the right in her wheelchair where she is confined during day.)

Charleneteiro Jun 30, 2025
This is the same exact thing that I am going through right now . However she might be able to stay in hospice since she has heart problems. My mother also has such. Ad dementia but she still eats etc . They told me if they have other health issues most likely they can stay in hospice

Llamalover47 Jun 28, 2025
WalterDeemer: Pose your concerns to her physician.

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funkygrandma59 Jun 24, 2025
I'm not clear as to what your urgency is to bring hospice back on board as they really don't do much except send a nurse to check on your wife once a week to start and aides to come bathe her about twice a week.
The good folks at your wife's nursing facility can do all of that, plus watch for any signs of decline.
So for now just enjoy whatever time you may have left with your wife, and don't hesitate to bring hospice back on board when your wife is showing more decline and really needs them.

JoAnn29 Jun 24, 2025
Dementia does not mean Hospice is needed. They feel wife is no longer terminal. She has no terminal desease like cancer, congestive heart desease, etc. My Mom was actively dying when Hospice was called in. Hospice really has not done much for your wife. A Nurse comes out about once a week. All the work is done by the facilities aides and Nurses. Wife probably does not need morphine or anxiety meds at this time. Medicare determines if Hospice is needed.

Slumping is tge Dementia. She could be propped up with pillows or get her a
Jdjn99 Jun 28, 2025
Joann , dementia is indeed a terminal ex however it doesn’t have a timeline . If she’s not deteriorating then hospice is mandated to discharge, as in any known terminal disease .
AlvaDeer Jun 24, 2025
Your wife doesn't qualify for end of life care because she isn't at the end of life with any predictability. I would discuss all this with her doctor.

brandee Jun 24, 2025
Give it a couple of months but call them back to come out to reevaluate her for reenrollment.

Mom also slumped to one side as the disease progressed.

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