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Sami1966 Asked January 2023

My mother has mild dementia and is in assisted living. They leave the front desk at 8:30 pm and anyone can walk outside. Is this allowed?

My mom has not tried to get out at night but who knows if that might change. Are there regulations on assisted living facilities requiring someone monitoring the front door? You can walk out but can’t come back in. Also, if I come back with her after 8:30 it’s difficult to get anyone to to come to the door. The say to push the emergency button at the door but no one comes . I’ve just had to wait until I happen to see a person working there way down the hall and bang on the door. I don’t want to move her because she’s comfortable there, not happy about being there, but at least used to it and the staff are very nice. I just don’t know if I can get the management to change this. I’m in Colorado.

AlvaDeer Jan 2023
At the point where Mom isn't safe to know when it is safe to leave then ALF isn't the right place. Some now have locked cottages or units and that is a sort of halfway between ALF and MC (memory care). If you know that Mom isn't safe should she leave the facility, and if you fear she is too confused to know whether it is safe to leave or not, it is time to talk with the facility about another level of care. The very sad thing is that without an inbetween care such as locked cottages the cost goes up greatly for memory care due to staffing needs.

BurntCaregiver Jan 2023
AL is not the same thing as a nursing home or memory care facility.
The residents are free to go as they please. There is supposed to be someone to let them back in if they are going to be out past desk hours but the person is supposed to let someone know they will be back. I worked in a lovely AL years back and every resident had to be accounted for after the desk closed which was around 8:30 at my place.
There is supposed to be night staff who do regular security rounds. They check on all the residents periodically, mind the doors, and make sure all is well. If the AL your mom is in doesn't have this kind of staff, someone should have a word with their administration because they're supposed to.

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Isthisrealyreal Jan 2023
Sami, AL is not prison, people can come and go as they please.

If mom is at risk of wandering, AL is probably not the correct level of care. You say she hasn't done this yet, so what is your concern? Is she starting to have behaviors that lead you to be concerned?

My grannie was in a wheelchair and she was a flight risk from the NH. They had to put an ankle bracelet on her so they could catch her if she took flight.

She was in a room that was far from the front door, only door that actually exited the property but, still managed to go missing a couple of times :-( fortunately, they knew right away that Elvis had left the building :-)

I would like to encourage you to not borrow trouble. Deal with things as the become problems or you will wear yourself to a frazzle trying to stay ahead of a very unpredictable disease. She may never become a wanderer.

I would get with the ED and find out why you can't get a response from the emergency buzzer. That is a concern for safety.

RedVanAnnie Jan 2023
Assisted Living is not a lock-up facility. Residents are free to come and go as they wish.

mom2mepil Jan 2023
When I moved my mom (who has Alzheimer's, mid-stage) to AL a year ago, they told me that if she ever wandered, she would have to move to their locked Memory Care floor.

Mom and her friend in AL would take walks around the neighborhood. After a few months, they started getting lost. Each time, they were able to figure out how to call my best friend for help. (Mom didn't want me to know what had happened, but of course my friend told me right away.) We would find them and bring them back home.

After about the third time they got lost, the AL staff realized that telling my mom and her friend not to go out on walks wasn't working because they couldn't remember that they weren't supposed to go. So the staff set up the medical call buttons my mom and her friend wear so that an alarm is triggered whenever either of them tries to exit the building. I only found out when I picked Mom up for a doctor appointment, and the concierge told me they have to keep her call button so she can leave the building. They have a set of hooks behind the counter where they keep the pendants for the residents who leave the premises for appointments, etc.

Mom's cognition continues to decline, but she still lives in AL, which has exit doors everywhere, and she hasn't left the building without a staff member or family member since the change to the call pendant was made. I do not know if this sort of arrangement is common in ALs, but it's working for now with my mom. I'm grateful that this technology is available, since it gives Mom the maximum "independence" she can handle while still keeping her safe.
Sami1966 Jan 2023
Thank you for the response. I’ll see about the pendant. That would be great if she would wear it.
Llamalover47 Jan 2023
Sami1966: Imho, that is standard protocol for an assisted living, e.g. residents are allowed to come and go. Perhaps your mother will require a higher level of care at some point, which would be a secured facility.

freqflyer Jan 2023
Sami1966, back in April you had mentioned that your Mom cannot remember back 5 minutes ago. If that was the case, I was surprised that the senior facilities where she currently lives accepted her for "Assisted Living". https://www.agingcare.com/questions/mom-is-in-denial-that-she-has-dementia-what-to-do-474472.htm

My own Dad moved into Independent Living in a senior facility. Much to my surprise later down the road the Adm had a meeting with me where they suggested it was time for Dad to move to their Memory Care section, as Dad was found on numerous occasions trying to leave the building at night, and not coming to the dining room for his dinner.

Dad always acted pretty sharp for his age whenever I visited. Apparently he was "showtiming" when I was there. And now he was "sundowning". So we quickly choose a room in Memory Care for Dad. It was easy to move Dad as I told Dad a "therapeutic fib" that this new room was less expensive and Dad was always trying to save money :)
lealonnie1 Jan 2023
My mom lived in regular AL at a great place in Colorado for 4 years and had pretty moderate dementia going on (but no wandering). It's difficult for the administration to make the resident move into Memory Care; it normally takes some event to force the move. Like with mom; she got pneumonia and went to the hospital, then off to rehab for 20 days. Then the AL nurse came to the rehab to 'evaluate' mom; that's when she said 'we cannot accept her back in AL and she has to go into Memory Care.'

That's how we made the move; by being forced; that's how it may have to happen with this OP too. In hindsight, I WISH we'd waited another year before moving mom to MC b/c she disliked it a lot & wanted her old apt back in AL very much so. :(


In my opinion, the family should wait until it's ABSOLUTELY NECESSARY for the parent to be placed in Memory Care before making that move b/c it's very difficult for (most of) them to transition (unless they are VERY far advanced). AL is freedom, while MC is another world entirely with many restrictions, etc.

I can def understand about your dad FF, with the wandering and stuff, why he had no other choice but to go into MC. Mom was the queen of Showtiming too, which makes things SO MUCH HARDER!! :(
Doingmybest101 Jan 2023
I'm in Minnesota, and what you describe is exactly how assisted living is supposed to work.
Assisted living is just that: assisted. It's meant for seniors (or others) who need occasional assistance with things like cooking or cleaning. It's designed for independent adults who just aren't able to complete some household or personal tasks. Just like in my apartment building, you are free to leave whenever you want-- it's not a jail, and it's not designed to be.
What you are in need of is memory care. It may be an option in your mother's building and it may not be. MC units are locked and staffed 24/7. We specifically chose a building with MC for my parents when my dad had mild Alzheimers, knowing that it would progress and he would eventually need 24/7 MC.
The plan was that when my dad required MC, mom would still be in the same building and be able to see him every day.
Unfortunately (or fortunately), his disease progressed very quickly, and he died before we could move him.
Once he was diagnosed, he could never have lived on his own in AL. If my mom turned her back, he would dump hot coffee or wander off, or anything else to put himself in danger.
I'm sorry for what you're going through. I can definitely relate. I felt like I went through 3 years of hell, mainly trying to help my mother survive my father's disease. There are a lot of us out here, so keeping reaching out and be sure to take care of yourself.

MACinCT Jan 2023
It will soon become time for memory care. I suggest you start looking around without your mom first
Harrylcnm Jan 2023
That’s hard when she doesn’t want you out of sight. (Scared)
taimedowne Jan 2023
People in assisted living can come and go as they please. Many of them even own cars and drove themselves. I think you are confusing assisted living with memory care. In a memory care all of the doors are alarmed and people are not allowed to wander.

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