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angela1973 Asked October 2021

Early stage dementia with anger issues and lying. What do I do about my mother who has lied to everyone about an incident that took place?

What do I do about my mother who has lied to everyone about an incident that took place? We were on our way to appt at hospital and we had gotten into it about a lot of things, my husband for one, and other things. On way to visit I told her if she didn’t quit when I dropped her off I would give her 20.00 to take a taxi home. Well when we got the appt she didn’t want me to go in so I dropped her where the front door was so she wouldn’t have far to walk and I told her as I pointed straight ahead that I would be parked there .. I was waiting and waiting hour and a half, almost two, I sat there then I get a text from my daughter saying my mom texted her and told her I left her at hospital. I did not. I have proof on google maps that I am sitting here, long story short she told her she even walked up a little hill looking for me so she couldn’t find me and that she walked all the way home which is 1.7 miles - she has bad back and breathing problems ... I did not do this !! but she proceeded to call and tell everyone that I did ... why would she lie about that and then she called my daughter in law and asked her if she could take her dr appts from now on cause she didn’t wanna be left.

Grandma1954 Oct 2021
You NEVER leave someone with dementia to navigate anywhere particularly a large busy hospital.
You NEVER argue with someone that has dementia. The argument will not go anywhere, will not solve any problems. You change the subject. You ignore what is being said. You wear headphones, earbuds or ear plugs if you have to.
She is not lying....this is the truth as she sees it, as she remembers it. Her truth may not be based in reality.
With the health problems you list for yourself you might want to consider looking into either full day caregivers that can help you out including going with mom to doctor appointments. Or begin the thought process that Memory Care is a viable, safe option for you as well as mom.
angela1973 Oct 2021
well she refused to let me go with her she doesn’t believe she has dementia there is nothing wrong whtv her memory she says now that she is on pills the memory dr gave her she says .. and she has a caregiver at her house 3 days a week but they can only take her ever so often as tenncare don’t pay the caretaker to drive her there the company she works for does .. ( don’t make sense to me, but that is what i was told ). she told me and her coordinator fir the care she received at the same time she puked kill her self before going into any type of nursing home — right now she lives in apartment complex for seniors over 62 she is 73 .. she has a dog but talks to all these service guys or what they say they are and she believes everything they say it is just getting to be too much and i am only one who can help her
GardenArtist Oct 2021
I'm going to be kind of blunt.   First, avoid the topics that cause friction.  Change the subject, talk about the weather.   But don't "engage".

Second, I have a lot of sympathy for your mother and how she interpreted the situation.    Regardless of her advice not to accompany her, recognize that she was annoyed and perhaps retaliating against you.   This is merely an observation, but I think sometimes people grow to rely on frictional relationships as part of their daily life.  Absent that, and they are forced to reassess, which she may not have been able to do.

Notwithstanding, we caregivers sometimes or often experience hostility,  and in my opinion, it's best to let the issue drop as quickly as possible, especially with someone who's not able to think clearly.  Nothing positive will come of debating the issue.

I think that either she felt abandoned and probably panicked, or she was in fact retaliating against you.    If she did perceive she was abandoned, that's a frightening situation for anyone, especially an elder person.   Given her lack of mental clarity, it may not have occurred to her to just walk outside and locate your car.

I don't blame you for feeling offended, and I'm sure that mischaracterization of the situation is concerning.   I would reach out to "everyone" she contacted and explain the situation, assuming you value their opinion.    And emphasize that your mother sometimes gets facts confused, but don't attempt to elevate the blame against her.    She (and you) already have enough to deal with.

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Cashew Oct 2021
You were miffed. Got it. Been there, done that.
However, dementia means never leaving them to navigate a place alone. Her brain is DYING.
She didn't want you to be in the appointment with her? Fine. You wait in the waiting room or at the door for her to be done.
You don't expect her to remember where you parked...her short term memory doesn't exist in the same way as a normal person's. She will remember emotion and not reason. She will have a flash of what you said in the heat of the argument and that will be the reality of her memory.

lealonnie1 Oct 2021
It's a miracle your mom was able to find her way home, walking 1.7 miles alone to do so!

You have to learn all about dementia, unfortunately, to understand what transpired on that day your mom had a doctor's appointment. You can explain something 1000x to an elder with dementia, but they'll hear and believe what they WANT to hear and believe. Then you can't chop that idea out of their head with an axe. It's part and parcel of the condition OF dementia. It's what makes dementia so unreasonable and so darn hard to deal with.

Your mom is not 'lying' in her reality; she's telling the story as she sees it. She came out of her appointment (probably from a different exit door) and you weren't there, so she had no other choice but to walk home. In her mind, you abandoned her and that story will STAY in her mind forever and a day.

So, if you are mom's POA and she doesn't want you going in with her to the doctor's appointment, you say ok. You then park the car and follow her into the doctor's office ANYWAY. Or now you allow the DIL to take her to the appointments, but if she's not the POA, she cannot accompany mom into the actual office for the exam.

If you are the POA and want to accompany mom on her future appointments, you may want to apologize for the confusion and explain to her what happened. Not that she will understand it or sway from her story at all. Who knows?

You say, "she has a dog but talks to all these service guys or what they say they are and she believes everything they say it is just getting to be too much and i am only one who can help her." The best thing you can do is to learn all you can about dementia & how it presents itself so you can help your mom to the best of your ability rather than continue to get upset and overwhelmed at what's happening to her. Many elders don't believe they have dementia but they DO, so extra care has to be taken with them so they don't get hurt or lost, etc.

Go to Alz.org to learn all you can about dementia and what to expect. Watch some Teepa Snow videos on YouTube as well; she is very informative and entertaining to watch, too.

Wishing you the best of luck with a tough situation.

BurntCaregiver Oct 2021
I'm probably going to catch hell here but I'm speaking from experience.
Many elders with early dementia are well off enough to understand and remember easy and simple instructions like the ones you gave your mother on the day you brought her to the doctor.

She was trying to instigate a fight or make some trouble with you on the way to the doctor's appointment. You stood up for yourself but this wasn't the response she wanted.
I believe what she wanted was a fight so she could engage in a bit of verbal abuse with you. Then she wants to play the poor victim a bit because you hurt her feelings. When finally you arrive at the doctor, she wants you to beg her forgiveness and insist that she let you go in with her to the appointment because of how sorry you are for not doing anything. If she was able to call several people and repeat the same story to them about what a horrible person you are and keep all the details straight to match them up with each telling, then her dementia isn't as advanced as you might have thought. If she was able to find her way home 1.7 miles then her health and dementia isn't so bad.
Get her a home/health aide please. For your own sake. Then make sure all the doctor's appointments are made during her aide's working hours.
lealonnie1 Oct 2021
Actually, you might be right about that.........b/c how could she have found her way home 'walking 1.7 miles alone'? After I wrote "It's a miracle your mom was able to find her way home..........etc", I should have realized the same thing! Until the late stages of dementia hit, lots of these folks (my mother included) are way more manipulative than we give them credit for!
velbowpat Oct 2021
Let someone else be her chauffeur you need a break. Don't defend yourself. It was just a very bad day. I believe you. We all have them.
velbowpat Oct 2021
My father would always act up or start arguing with me when I was driving.
I didn't do anything right. Sometimes he would lean over and shout in my ear or try to obscure my line of vision so I couldn't see. On particular bad days he would start in on my husband's nation of origin in front of my child. So one day I just pulled over and told him to get in the back seat and STFU. ( Sorry for language ). He remains in the back seat to this day. If I can get someone else to drive him, they do it. ( Pre Covid).
Countrymouse Oct 2021
You're looking at this regrettable incident as though your mother is deliberately slandering you. She isn't. She had a bad experience and she believes her own interpretation of what took place.

What took place is that you had a stressful dispute on the way there, you - quite naturally, I don't blame you for a second - vented by threatening her with having to make her own way home (with no intention of doing that, and presumably you didn't even hand her the $20 fare either), and with that emotional cloud hanging over her she emerged from her appointment with negative expectations and went on to fulfil them. That's what she remembers. It was a silly misunderstanding, that's ALL it was, and you can say so to anyone it may concern, including your DIL. Don't let this get out of proportion.
rovana Oct 2021
How can a person tell when someone is demented, or simply being nasty and manipulative? The issue could be more what the caregiver can do to deal with others' perceptions. Whether the elder is demented or just a troublemaker. I've known people who would just put it out on the table and let the onlookers think what they want, but others actually do care about the opinions of family and friends, so how do you protect against lies?
KMom2010 Oct 2021
I’m not a professional, but I know from experience with my grandmother, that sometimes the resistance you receive as a caregiver can be them just trying to retain any small semblance of control of their own lives. Imagine being told you must shower every night, when your caregiver says. That even though cooking is your life’s focus and your best show of love, you can no longer help make dinner because your caregiver thinks you are unsafe with a knife (and your brain still tells you you definitely aren’t). You aren’t given the choice in a lot of matters. And to top it, your adult privileges like getting to drive are taken away. It’s for their safety, of course, but if your mother refuses to believe she has dementia, and people treat her as if she does indeed have dementia, she may be annoyed and offended. I know I would be.
Dont let a person with dementia navigate places alone. She may have been adamant that you not attend her appt, but maybe you “just need to use the restroom”, and so you follow a couple steps behind her. Close enough to lunge and grab her if she walks in front of a vehicle, but just far enough she doesn’t feel constantly supervised. Search for that bathroom all the way to the receptionist. If you’re concerned about what she may tell (or not tell) the doctor in your absence, give the office a call and let them know she’s insisting on going alone, but here are your concerns.
BurntCaregiver Oct 2021
In a perfect world a person with dementia would be looked after exactly the way you're saying. It's not realistic though. The world doesn't run on elder-dementia time and logic. This is why we have places like assisted living, nursing homes, memory care, and homecare programs.
babsjvd Oct 2021
It’s hard.. my mom throws me under the bus whenever she can. Looking for sympathy. My husband… treats him like a king. He doesn’t see it .
Recently moved my mom from another state. Family had a send off gathering, while I was hard at working packing up. I went to pick my mom up , mind you , I hadn’t seen my cousins and second cousins since pre covid. When I entered , not a single person said hello.I can just imagine the tales my mom had regarding the stresses of moving her.

yes unfortunately, the choice to wait in the car was hers. She didn’t want you to go in. As our parents age, they think they have more capabilities than they have. I hope you corrected your mother s assumption to her. My mom does the same manipulation. Passive aggressive. My mom did it to my sister who is now passed. I am now the black sheep of our family. Try to forgive and move on…

Chlokara Oct 2021
I know it is infuriating, but, believe me, other people realize what the truth is. When my husband first started getting dementia, he accused me of telling his friends that he was going crazy. His friends, of course, without my saying anything, knew what his problem was, and were very caring and sympathetic about my position. If you think your sister-in-law thinks you are at fault, just wait. Your mother will do something similar to your sister-in-law and she will understand. However, you must realize that there is no guarantee what a dementia patient will remember, so you should have waited for her in the doctor's waiting room, or where you could see her walk out the door. Unfortunately, you have more lessons coming and you will be the one who has to learn.

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