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NeedHelpWithMom Asked February 2019

I'm having a little bit of anxiety today. My mom’s brother who has Parkinson’s is dying. I'm nervous about what is ahead for my mom.

Hi everyone. My cousin called yesterday about my Uncle Eddie, 96 with Parkinson’s like my mom. He’s in a veteran home (WW11 and Korea) in New Jersey far away from us but we’ve stayed close by phone. He hasn’t been able to visit in a while due to his age and illness. He and mom were very close growing up and throughout their lives.


It was so sweet that my cousin called and let mom speak to her brother to tell him that she loved him and that he was the best brother in the world to her. He couldn’t respond back but my cousin said he perked up when he heard her voice.


Mom is accepting his impending fate but of course she is sad. I know it is causing her to think of her own mortality. I love her and it hurts to see this final chapter in their lives. My cousin said that he told the hospice nurse that he is ready to die and meet the Lord. That was comforting to my mom to know that he is at peace and is in no pain. They are giving him morphine to keep him comfortable.


I fully know that one day I will have to go through this with my mother and while I don’t want her to suffer I get afraid of not being able to let go and cause her grief by hanging on. I did that with my mother in law because we were very close and her doctor told me that I had to give her permission to die because she was hanging on for me. I had to force myself to let her go. I really don’t want to be selfish with mom when her time comes.


Please tell me that I will find strength and grace when my mom’s time is near to leave this world. How common is this? We are caught in the middle of everything, wanting to live our own lives, yet still wanting to be there for them as long as needed. Why is this so hard for me? Is this normal to have such mixed emotions?


How will I even know she is dying? Will I go into denial like I did with my mother in law many years ago?

Grandma1954 Feb 2019
It sounds like your Mom comes from some amazing "stock"
I think that you two should "celebrate" your uncle, her brother. What was his favorite food? Maybe make a dinner and have a few of his favorite things and let your mom tell some family stories that maybe you have not heard about before. (If possible please record these)

When a loved one is dying it is the rest of the family and friends that have a difficult time. Your uncle, your Mom, your aunt all seemed to have lived a wonderful, rich lives. Rejoice in that.
When it is time for you to go through this with your Mom you will just tell it is alright for her to go that you will be alright, that she did a great job raising you to be a strong independent person. And thank her for all that she has given you,
No it is not easy but would she want to live in a manner inconsistent with her life? I know for me with my Husband ...no I did not want him to die but to have him continue a life that he would not have wanted would not have been fair to him. So, as much as it broke my heart I told him I would be alright and that he could go when he was ready, I asked him to say HI to my Mom and Dad and to give them a hug for me.
Every day give your Mom a hug and tell her you love her.
NeedHelpWithMom Feb 2019
Grandma 1954,

Your answer touched my heart!

I did that with mom. You read my mind. We have been celebrating my uncles’s life. My mom has special memories and has told wonderful stories. I’m thinking of doing an ancestry dna thing while mom is still around too. I think it would be interesting.
Countrymouse Feb 2019
The only reason I can think of for your MIL's doctor to have told you that is that the doctor wanted you to feel better about letting her go. It wasn't so that your MIL could pass peacefully, although I hope she did, it was to make it more bearable for you to say goodbye to her. So that you wouldn't feel there was anything more you could have done to save her.

We are all of us pretty helpless when it comes to the reality of death. Those who are blessed with faith find strength and hope through it; but even so, with or without faith, we have no choice in the matter. When death comes, nothing human can make a difference.

Do you think your emotions are mixed, really? You are sad because your uncle is so ill and he is so important to your mother, and apprehensive about how your mother will take it when he's gone, and therefore sensitive to your own apprehensions about how you can possibly cope when the time comes that you have to.

But I don't think there's anything mixed about it. Simply, these are people you love, and seeing them hurt or losing them is terrible.

Your experience with your MIL must have been very painful. Still, you did find strength and grace, and you did let her go, and she found peace. I'm not sure what anyone can say that is both true and comforting, but I think you are going to have to trust yourself. Heaven knows how, and I don't even know what coping "well" would look like, but time passes and you get through each day as best you can.

Meanwhile, here is your mother in need of a loving daughter, today! I'm so happy for her and for your uncle that they had that conversation. Don't forget that the older people are, the greater their experience of everything that life can throw at a person. Wishing comfort to the whole family.
NeedHelpWithMom Feb 2019
Thanks so much, Countrymouse. Your message hits home with me.

I know I do all that I can for mom. There is one area that she is sad about and I know it’s because she was always close to her brother. She hates that I am not as close to my brothers. I have tried, really I have but I can’t be miserable just to please my mother either.

She is seeing things for herself because I learned to back off and not put myself in the middle of everything. Have to say I wish I had done that sooner. But live and learn.

I used to feel responsible if they didn’t call mom because I hadn’t reminded them. It drove me crazy and hurt me because she was hurting if they ignored her. Then I said to myself, ENOUGH!

She says she understands that my brothers and I will not be a ‘close knit’ family after she dies but I know it bothers her. It’s the one area that I feel I have failed her.

I have told her that her brother showed her love, respect and appreciation. I have been taken for granted by my brothers. Oh well, I suppose things will fall into place somehow.

I’m just realizing that maybe the reason I feel like I sometimes cling onto to my mom so much is because I know when she’s gone I won’t have any close relationships left in my family. Any thoughts? How do families deal with unresolved issues?

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NeedHelpWithMom Feb 2019
I want to thank everyone who responded to my anxiety post. I just thought of something that another cousin did for me when I was thinking about days gone by.

This cousin, Ann, is such a positive person and is always a delight to speak with.

She is 96 years old! She lives about an hour away from me in a senior apartment community and takes care of her neighbors by cooking for them and showing them love!

While I don’t get to see her very much anymore, we speak on the phone. We used to get together quite often.

We love to remeber good times and she recently sent me several old photographs of my family that I absolutely cherish. It’s a little thing that we all could do for others. This meant so much to me because all of our family photos were destroyed in hurricane Katrina. She had packed her photos up before evacuating the city. She wanted me to have them. They are the only photos I have of myself as a baby and growing up.

This lady is such a hoot! She is 96 and in great shape and loves to talk about what she is doing in the future! No, “God willing” talk from her or anything. She behaves like she will live to be 100 and she just might!

Isthisrealyreal Feb 2019
You have your husband and children, that is your close family. You will have in laws and grand children. Appreciate them for being there for you.

I am going to take you to task, you feel you failed your mom because you and your siblings aren't close, stop taking responsibility for their actions. A person can only do so much, that you take credit for the failure just bugs the crap out of me. They choose not to be involved with you and their mom, how does that make you responsible?

I am sorry that your uncle is passing but Praise The Lord your mom was able to say goodbye and somewhat prepare her heart. It is a blessing they got to say goodbye and as believers the separation is temporary, as it will be when your mom passes.

It is never easy to watch death take a loved one but it can be a beautiful experience and knowing it is for a short time can help ease the loss. You need to find out who you are outside of the caregiver you have been for 14 years, that is probably as scary to face as anything. It's like retiring and not knowing who you are as a person, it takes time and adjustment. You can do it!
NeedHelpWithMom Feb 2019
isthisreallyreal,

I’ve told you this before but I’ll say it again. I’ve always felt a connection to you in a positive way. I resonate with how you think. I so appreciate everything you’ve told me and it hits home.

Your words center me to back where I need to be. Guess I slip sometimes and feel the GUILT of feeling that I haven’t done all that I could as best as could and I have to snap myself out of that and know that I am not responsible for others, nor do I have the power to change anyone.

Thanks for reminding me. I know my family, hubby and kids are there for me and I definitely don’t want that not to be enough for me because it is. I’m blessed to have them. I don’t want to take them for granted or feel cheated that I can’t have an ‘ideal’ situation. Most of us don’t live ideal lives.

I can count on you and many others on this forum to set me straight. Thanks from the bottom of my heart!
NeedHelpWithMom Feb 2019
Hi Everyone,

My cousin just called. My Uncle Eddie died peacefully this morning. My mom was so glad that she got to say that she loved him one last time.

Wow! He lived to be 96. He was a good man. He volunteered at his church well into his 80’s. Helped care for an elderly neighbor until neighbor died. He was married over 50 years (Aunt Marion died many years ago), raised five kids. Played the guitar beautifully. Served in WW11 and Korea. Was a great brother to my mom and aunt. Wonderful Uncle to me. Numerous grandkids and great grandkids. Wonderful son to my grandparents. And so much more. Sorry if I am boring anyone but just remembering his life.

Please share are your favorite memories of your loved ones with others. I did not know my paternal grandparents (died before I was born) but my dad always made me feel like I knew them because he shared beautiful memories with me, especially about his mother. He always told me that I had her beautiful blue eyes. They were Scottish and Irish and daddy said I looked like his mom. I loved when he told me that. It was so special that he kept their memories alive for us. We had two beautiful quilts that she made. I had hoped to own them one day but they were destroyed in Hurricane Katrina like everything else. My daddy cherished those quilts.

Can any of you you share a memory of a family member, neighbor, best friend, etc on this page please? I’d love to read those. I think it’s important to remember and honor those we loved. They do remain alive in our hearts.
Yes, we move forward and those who died would want us to but today especially my Uncle Eddie is on my mind and in my heart.

You know he left New Orleans many years ago. He missed the food! He would cook some of my grandma’s recipes for his family and as a treat I would send him pralines and king cake. Oh how he loved that. It’s Mardi Gras season again here in New Orleans and I think when hubby gets home from work I will go and buy my mother a king cake (special Mardi Gras desert) and we will eat a piece for my Uncle Eddie! He’d like that.
ImageIMP Feb 2019
I guess it's about time I shared something positive about my Mom! Your post made me think back and there were so many wonderful things about Mom. She was extremely bright - almost a concert violinist when younger, before arthritic hands - independent - had a wicked sense of humor... She always wanted to learn Russian! Way back when I was in high school she took a correspondence course from the U of Nebraska. (It was truly a legitimate course, and my English teacher agreed to meet with her to administer tests, etc.). Of course she got an A... (This was still during the "Cold War" mentality, and my Dad was incensed! "What do you want to learn that Commie language for!!!" She just said it was interesting, challenging, and it was a good thing to understand your enemies!) Over the years she was frustrated there was no one to practice with, and she tried to study on her own. (Her motto was "use your noodle or lose it!") When she was 88 (we lived together at that point), she was bored and I heard about a Russian course starting up - second semester - at our local college... I told Mom "You're going back to school! I'm tired of listening to you whine about how bored you are!" She looked at me for a minute, then asked "What am I taking?" "Russian... second semester" The huge grin she got was as if I'd given her the best gift in the world! The first day of class I drove her up close to the classroom, which thankfully had a ramp up to the door... I got her rollator walker out and she headed up the ramp. One of the "kids" who'd just completed first semester looked at me, almost in dismay, and asked "Are you joining our class?!" His look when I pointed at Mom and said "Heck no! She is!" was priceless! Mom took that semester, and 3rd semester, and studied her butt off! (She also had macular degeneration, and a lot of trouble reading.) She got A's both semesters, which her professor told she legitimately earned. She also said Mom was the best influence on the class - those kids had never worked that hard in their lives! - because no one wanted to be shown up by an 88 year old half-blind old lady!
Llamalover47 Feb 2019
You will find the strength through the Lord, our God. The comfort of knowing that the Lord is with you always will get you through.

Psalm 34:18

" The LORD is close to the brokenhearted and saves those who are crushed in spirit. "
NeedHelpWithMom Feb 2019
Yes, we do pray more when we feel overwhelmed. It is a great comfort. Thanks for responding to my post.
Sunnygirl1 Feb 2019
I sometimes think of how our family will stay cohesive once my parents are gone. The adult kids and adult grandchildren have our own lives....will we still gather at holidays? Will we keep in touch on the phone and visit? It's hard for me to imagine and scary. I hope so, but, I'm glad that I have friends that I have been close to for 20-40 years that will have my back.

Strohdg Feb 2019
If you have your mother's faith, God will help you when it happens. My husband has almost died too many times! I take an anti-anxiety medication due to this! A few years ago I told the Lord I couldn't carry this weight any longer! I gave these fears to Him at that time! I was always afraid of coming home and finding him dead! I had come home once and found his head bloody!! I had PYSD and didn't realize it for a while afterward. There is no way as humans that we like the thought of our loved ones going but you cannot live your life this way. I also saw a good Psychologist who worked with me on relaxation methods. Either way you have no control over when your loved ones go! If you live your life in fear though you can't enjoy your life with them now! You don't want to look back someday and see time wasted with worry! Just do what you can for her and then enjoy her now!
NeedHelpWithMom Feb 2019
Wow, what a challenge for you! Thanks for reminding me of faith. If I get depressed or deal with anxiety because I’m exhausted I have lost sight of my faith. This site is good about reminding everyone of that, plus giving personal support by telling others how they were able to get through. It helps.
DesertGrl53 Feb 2019
I think what lizzy1952 said is spot on ... "when the time comes, you will find the strength." It reminds me of something in one of Corrie ten Boom's books. For those of you unfamiliar with Ms. ten Boom, she was a survivor of the concentration camps of World War II. She reminisced about traveling by train with her father as a young girl and asking him how she would ever find the strength to go on without him, should he die before her. After some thought, he responded by asking her when he gave her her train ticket to be punched by the porter. "Just before the porter calls for it," she replied. He then told her that in the same way God would give her the strength she needed just when she needed it.

I think all of us who have been through this have found this to be true, and we can assure you that you will find it to be true as well. You may look inside yourself today and find your courage lacking. But do not fear. When that day comes, the courage will be there. It's called grace. Just take each day as it comes. You'll do. 💖
NeedHelpWithMom Feb 2019
Desertgirl,

I thank you for responding and find your answer to be truly comforting. We lose sight of things at times.
Grandma1954 Feb 2019
First a bit about me as that effects how I think/feel.
I was born and raised Catholic. Went to a Catholic Boarding School
(my Mom died when I was 11 and my Dad died 4 years later, no one to care for sister and myself so off to boarding school...whole 'nuther story there)
But it seems the church and I do not see eye to eye on several major points so I am now a non-practicing Catholic.
I do believe that you are given strength when it is needed, or you get strength when it is needed. It may have always been there but we seldom push ourselves to such limits unless we have to.
I do believe that when a door closes another opens. You just have to be prepared to look for that open door..or do we push ourselves that we force another door to open, or possibly make a door where none existed. Again we push ourselves!
There is a Higher power that guides us, we just have to be willing to walk a path that we may never have taken in order to find that path. And you have to TRUST and for many that is difficult to do it is a form of surrender and again very difficult to do. Surrender not in giving up but surrender in allowing help in any form.
When caring for my Husband I always to the CNA and the Nurse that I was ruled by 2 major organs in my body. My Brain and my Heart. When it was time for my Husband to die, I would want my brain to rule and give him permission to go where my Heart would want him to stay. (Like I had a whole lot of influence in that area!) As difficult as it was Brain won, Heart broke.

We are much stronger than we think we are.

For most of us that are caring for loved ones with long illness is it not selfish to want the illness, the pain to continue just so we can have a few more days? As much as it pained me to tell my Husband that I would be alright and that he could go be with his Mom and Dad and meet my parents this was not the man I fell in love with, the vibrant laughing husband and father I knew for over 35 years, this was a shell.
Again Brain won, Heart broke.
NeedHelpWithMom Feb 2019
Grandma,

I too am Catholic and while I find beauty in the church I am also aware that no church is perfect. There are no perfect people, therefore in my opinion, there is no perfect church. Indeed the church has it’s flaws. You get no judgement from me, just know that. It is your business only. It’s between you and God. I believe in offering help if it’s asked of me but I suppose I would not ever be called a ‘preacher.’ The best teaching is by a example.

I often think of St. Frances who simply walked in the town square and that was his way of evangelizing. He was drastically different from St. Paul, wasn’t he? I get St. Paul though. He was so passionate in his preaching. Different styles and neither is right or wrong.

Yeah, I get the heart and brain thing. I feel more or less the same way. Thanks for a beautiful, honest response.
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