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LizannG Asked February 2018

My mother has fought dementia for over ten years and now has gangrene, she can't have amputation or surgery. Any advice?

8 months ago palliative care was started as doctors thought she was approaching the end of her life and she had developed gangrene. She has a lot of pain from her foot which is now infected and she is on a morphine patch and antibiotics. She is non responsive most of the time and hasn't recognized anyone for a year. After such a long, long illness it is cruel to see her like this, it's a torture...she is eating and drinking small amounts, but I wonder how the next stage will be with the gangrene...any advice?

97yroldmom Apr 2018
Just Checked in on your post and saw that your dear mother had passed. I’m very sorry for your loss. I’m glad your mothers passing was peaceful.

BuzzyBee Apr 2018
So sorry for your loss.

Always remember you did your very best for her at all times. You were brilliant. Be kind to yourself and take the time you need to mend.

Take care. Hugs

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BarbBrooklyn Apr 2018
I'm so sorry for your loss, Liz. Take care of yourself, and be proud of all the good care you gave to and got for your mom.

smeshque Apr 2018
Lizann, very sorry for your loss.
May God bless you.

SnoopyLove Apr 2018
Lizann, please accept my condolences for your loss. I am very glad as well to hear that she passed away peacefully.

jeannegibbs Apr 2018
Thank you for taking the time to give us an update during this stressful time. You are a very considerate person, Lizann.

I know what you mean by losing someone slowly, bit by bit, and then also facing the final loss. And I know what you mean by death being incredibly special and profound. I was surprised at how much I found that to be the case. I am so glad the passing was peaceful, for both of you.

You have lost your dear mother, and also lost a very significant role you have held for ten years. Be gentle with yourself, and take all the time you need to heal.

My congratulations on fulfilling this very meaningful role, and condolences on this loss.

chdottir Apr 2018
I am so sorry for your loss, but very glad to hear the end was peaceful and pain free. I was with my father when he died two years ago, also peaceful and pain free, and that memory has been a comfort as time has passed.

Thank-you for the update.

LizannG Apr 2018
I just wanted to let you all know that my mother passed away peacefully two weeks ago...she had wonderful hospice care at home for the last three weeks of her life and she was mostly peaceful and pain free during that time. It is very difficult to witness your loved one dying but it is also an incredibly special and profound time. I am finding it particularly difficult as my mother's underlying condition was dementia..I feel as though I'm now grieving all the piece-by-piece losses of the last ten years...the sense of loss is much more than I had expected ...after being so involved with Mom's care and every aspect of her life for so long, now I see what an honour it was to able to do that for her. Anyway, wishing you all well and thanks again for the advice about hospice a while ago.

LizannG Feb 2018
Thanks everyone so, so much for your help, I really appreciate all your kind words and advice. It is very sad to face the reality of the situation, as Mom has bounced back from so many setbacks over the years that I suppose I was expecting this to be the same. When I think back to the person she was ten years ago, even five years ago that person is gone and yet she is still here. That is the hardest part of all. Even asking about hospice services does feel a bit like I'm letting her down, even though I know that's not the case at all, your thoughts on hospice do make me feel better about it...thanks for listening and helping.

TekkieChikk Feb 2018
Exactly what Veronica said... hospice to help her pain because, sadly, mom isn't going to ever get well. And it can be comforting to the family, too since most hospice facilities will have counselors and pastoral care for both the patient and family. Don't be hesitant to use those services if offered, just talking to someone who understands end of life can be a great relief and help alleviate your anxiety and any guilt you may be feeling.

Veronica91 Feb 2018
Lizann your mother is in the final stages of her life and palliative care is no longer sufficient. Have her tranferred to full time Hospice where she will receive more personalized care and the family will get extra support.
i know hospice sounds more final than palliative care but she is already receiving some of the care hospice provides so apart from different people she won't notice much difference. If she is capable of understanding and would be fearful you don't even need to tell her about the change.
many people see hospice as giving up and admitting defeat. This is far from the truth. It is making the loving decision to provide the best possible care for your mother. She has suffered long enough and everyone needs to be able to relax and accept the reality of the situation, sad as that may be. Without the option of surgery there is no other treatment available except comfort care. be blessed that you still have a short time left with Mom and get family to visit if they want to say goodbye and make time to have good conversations with her if she is able. If she has religious beliefs ask her minister to visit. if there is something she wants to do hospice will try and make that possible and provide volunteers to help.

Countrymouse Feb 2018
You must speak to your mother's doctors and palliative care team. Second-guessing their advice through the internet is also a form of torture. I hope your mother's palliative care team succeeds in keeping her pain-free and unafraid, and supports you through this awful time.

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