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realtime Asked September 2016

What do the movements of her hands and feet mean?

When my mother is resting on her back, her hands and feet move constantly. Her hands open and close, or seem to tap at the covers. Her feet rock back and forth on the heel. Have you seen this and do you know what it means, if anything?


Her neurologist has already diagnosed tardive dyskinesia because of constant nodding of her head, movement of her lips and mouth; but the descriptions of tardive dyskinesia that I have found online don't mention hand and foot movements as symptoms.

realtime Oct 2016
And yes, the PCP (we visited a couple of days ago) confirmed the tardive dyskinesia. New PCP --- her long-time doctor gave up his practice a few years ago, his replacement moved out of state, but at last we have a delightful young guy that my mother adores. At 96, she still likes to flirt, and he responds beautifully. Knows exactly what she needs from him. (When he met her for the first time last week, he started out by saying, "Hey, they told me you were 96 so I was expecting a little old lady! You look great!") I'm so relieved to have someone to ask questions of without struggling through a specialist's time constraints.

realtime Sep 2016
Pam, Thankless -- Thank you! Don't know how I missed that.

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SueC1957 Sep 2016
There are educational videos of TD on YouTube. Poor souls are always moving, from mild (just small mouth movements) to whole body involvement. Hands and feet included.

pamstegma Sep 2016
Look further, tardive dyskinesia affects "extremities" meaning both hands and feet.

realtime Sep 2016
Thanks, Freqflyer. She isn't aware of the movements, so they don't bother her. It's just that she's 96 and I don't want to overlook a symptom of something that needs treatment or that's a warning of a future problem. It could be nervous energy. She used to have severe anxiety problems, but I haven't seen any evidence of that for over a year. I'll discuss it with her PCP at the next appointment, in two weeks. As I understand delirium, it wouldn't be that, since she's in very good shape cognitively.

freqflyer Sep 2016
Realtime, it sounds like "delirium" or either nervous energy. If this is bothering your Mom, then ask her primary doctor for some meds to calm her down.

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