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angeleyes55 Asked May 2014

Can I get information on caregiving for my three autistic adult children?

I want to know about programs for them, respite care, and if I can get paid for taking care of them. I live in Illinois.

jeannegibbs May 2014
Discuss this with each of their case workers. If they qualify for caregiving services you may be able to be that caregiver.

It MIGHT be kinder in the long run to set them up with services that support whatever level of independence they can maintain and remove yourself from their direct care. They may outlive you, and you may not be able to continue to care for them in your own old age. Setting them up so that they can get by without you might be best for them. Of coure you'll continue to be their mother and visit them often, etc. But being their caregiver, paid or not, may not be the best for them.

I sure can sympathize with you desire to care for them, and your need to get paid if you do. Talk the whole situation over with their case workers and try to come up with a plan that is best for them and fair to you.

pamstegma May 2014
You can't get paid to take care of them and also collect Welfare. Each of them has a social worker who can arrange for services for them through VESID.

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littletonway May 2014
Contact your local Autistic Association. I am sure they have loads of information to share. You can also contact the local social services department in your area. Even doing a search online might be of help of assistance available. Best of luck!

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