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Kindness2025 Posted December 16, 2025

On hospice with ILD.

Anyone dealing with a parent on hospice with ILD and dementia?

AlvaDeer Dec 16, 2025
Without a lung transplant, this is the usual progression for this disease, Kindness. Whether others here have a direct knowledge of anyone with it (I do both as an RN and friends of someone who left this earth at a very early age due to it, and my partner's best buddy from school days having died of it), I can assure you that no matter how many you know or talk to who have ILD, it manifests for each person as a "one of a kind" illness, as most illnesses do.

I am so sorry for you coming loss.
Is the dementia in any way caused by or worsened by the general difficulty with the lungs and poor oxygenation?
Are you communicating well with Hospice and do you feel they are doing a good job?
Is there anything you would like to tell us about your loved on, or any question you have?

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