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Bunnyo Posted February 2015

I am the wife with dementia/Alzheimer's and my husband takes care of me.

We both have disabilities, and that is what started all of this. We & our dog together. I don't have too many problems now, but it's getting worse. I fell a couple of years ago on the ice, hurt my back, went to the hospital, then a nursing home for about a month. Nothing was the same after that. I can't figure out things very well anymore, like which way the lock and key go together in the back door. I am able to go shopping to Wal-Mart, but sometimes get the wrong thing or too much/less. I didn't accept this in the beginning. I was very upset, I saw exactly how AZ was because mil had it, and I had paid her some visits. I prayed & prayed, Lord please don't let me have AZ. I don't want to forget, I don't want to be like mil. Well so far I have been dx'ed with forgetfulness. I am grateful for this and pray it doesn't get any worse. I am riding on a cloud, I know, but I think I will be able to accept it now. I have some memory problems, but I usually remember after awhile. I am very clumsy. I spend a lot of time on the computer, and can still balance the checkbook. We have help for the wash & cleaning. I am 75, and my husband is 80, and we get along quite well. He doesn't usually get upset with me because I can't help what happens.

I also have Scleroderma, Copd, rds, Ra, rsd, and many other ailments.

I can't type anymore now because my hands and arms wear out.

JessieBelle Feb 2015
I had a friend who had multiple autoimmune disorders and know that it is not easy to live with these things. He had a wife who worked and took care of him the best she could. You sound like you are holding up well. I wondered if the fall might have caused some local damage in your brain that is causing your problems, Bunnyo. That would be so much easier to live with than progressive dementia. Reading what you wrote, I have a feeling that whatever happens you will face it with the best you can offer.

Did the hospital do any scans after your fall to see if there was any damage? It would be nice to know if it was just a local injury. With the autoimmune diseases and your husband's disability, I thought Chicago's idea of assisted living could be something you would like. It would make life easier if you could find a place that fit your budget.

Welcome to Agingcare. Sorry that the nicer people didn't reach you before the strange ones wrote.

jeannegibbs Feb 2015
I am so glad that you, hubby, and dog get along well together in your home. It would be good if that could continue for many years -- ideally the rest of your life. But many things can happen as you are in your 70s and later. Any of your health problems could get worse. Your husband could develop a health problem. You memory problems could come to include some other dementia symptoms.

It is good to enjoy what you have right now, and it is also good to plan ahead while you and your husband are able to discuss and decide things together. I would think that moving to an assisted living facility would allow you to be together but would relieve you of grocery shopping, cooking, cleaning, and other mundane chores. There would be trained people available to help you any time of the day or night. You might not need this kind of environment right this minute, but I think you would be smart to plan ahead a little, so you are ready if the need arises.

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Chicago1954 Feb 2015
Have you looked in to Assisted Living? You could both be together. Some will allow a dog, within reason. That way you have housekeeping and meals prepared and there are activities that you could go to.

JeanetteB Feb 2015
Good catch ohmeowzer

ohmeowzer Feb 2015
I apologize my comment was directed at Pam ,I'm sorry bunny you got lousy answersc

ohmeowzer Feb 2015
Bunnyo I am a RN and I feel what you said was very rude . How do you know the person is a hypochondriac ? Are you a medical professional ? I think you are the troll

vstefans Feb 2015
Bunnyo, sorry you got some crummy replies to your post! I thought it was very good and it is helpful to read a story from the point of view of someone who is doing they best they can and doing everything they are able! I wish everybody took that approach. You sound upbeat and grateful for the support you have in your life and I'll tell you what, that's a good way to be.

JeanetteB Feb 2015
And if it wasn't a troll question?

Most people who join this website has no clue how it works... in the beginning.

Maybe she was being nice?

You really need to stop posting such crappy shit Pam. Look, I cherish your wisdom but there are times when you are so out of left field. This was one.

pamstegma Feb 2015
hehehe well Cap, the person who posted the question liked my answer. So I'm guessing it was a troll question to begin with.

anonymous158299 Feb 2015
pam , youre bein a jerk ( again ) .
at age 75 those ailments are not at all hard to believe . i suffer from all of those AND priapism . knock on wood i guess is what im sayin here .

anonymous158299 Feb 2015
i have shortterm memory problems at only 56 . i dont even try to remember names because unless someone has genitalia growing out of their head they all look the same to me . i just keep things simple . no doors or drawers in my house . possessions are few and all are in plain view . i know my brain is going downhill but by the time anyone notices ill be rooted in this bunker with enough provisions to hold off the red army for 20 yrs .
dont mind my bs . im trying to unwind enough to fall asleep by doing a little bit of delusional / grandiose ranting .

pamstegma Feb 2015
You are a hypochondriac. How is hubby doing?

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