Nineteen months ago I began caring for my elderly parents. My siblings are no help...In fact they do not come see her at all - neither do the grandkids or the great grandkids. Mom's dementia was out of control for a while.
I have worked hard to get her physical health managed - including diabetes, food allergies, etc. Dad died a few months ago so now I have no help at all.
So there are a few things I need thoughts on:
1) She is not sleeping well and we are now awake at 3:30 am again. This means I do not sleep and am feeling tired a lot. It is not a huge issue yet, but if I cannot figure out how to get her to sleep at night (no she does not sleep all day), it will take its toll.
2) She constantly says, "What shall I do?" Any ideas what she is really saying or needs?
3) She does not qualify for Medicaid nor is there a lot of extra cash for additional help. Any ideas for getting respite for me?